Discussions By Condition: I cannot get a diagnosis.

trouble breathing is worst part-no answers yet

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: toybug2
  • July 9, 2008
  • 04:27 PM

I've been to several doctors, had several tests, turns out it's not my heart, not my lungs, not my GI... So WHAT IS IT? I am female, 47 (menapausal) y/o. At the start of this journey I took no medications but in order to make breathing easier I take Lasix occasionally when the breathing is really bad, but sometimes even that won't help. My only medical diagnosis is a mild mitral valve issue which is checked yearly. I am in good physical condition, work outdoors a few days a week doing moderate to heavy work in the hot florida sunshine. Work indoors 3 days a week as caregiver.
My symptoms are:
*A feeling of fullness in upper abdomen(Exactly like when I was nine months pregnant)sometimes the fullness causes my stomach to swell up quite a bit
*Inability to take a full deep breath(again, like when I was pregnant)
*Mild swelling of ankles
*Perspiring very little working outside in 90+ degree heat
*Fatigue
My symptoms do not stay with me all the time. I get them in episodes which usually last weeks. The following bring them on:
*Being out in the hot weather
*Consuming excess salt(I love chips!)

Coffee aggrevates symptoms.

Problems with low potassium. I take suppliments and have added magnesium for better absorbtion

When breathing gets bad, I've gone to ER, tested negative for heart attack. Given oxygen(WHICH HELPS!!) and lasix IV(WHICH HELPS!!) put out a lot of urine (WHICH IS GREAT!) and sometimes the episode is over for awhile. These epidsodes have lasted many weeks and after a time I get chest pain, palpitations, muscle cramps, but they are a result most likely from the low potassium, or stress of the fluid build up in my abdomen. I think this is a fluid imbalance problem but cannot figure out why, and why is the fluid retained in upper abdomen?
Any thoughts?

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5 Replies:

  • Hi, since you are menopausal, (I am too, 49), I recommend you check out this site: www.power-surge.com it is non commercial site with info on menopause and perimenopause...but the best part is the forum where the ladies are so great....you may be surprised how many symptoms and problems can be attributed to the changing world of hormones...for me recently I am often out of breath....no idea why....even just going up the stairs! I get bloated out of no where off and on and I cannot digest food very quickly so I get a weird "full" kind of feeling so I have to eat small meals many times...this all began around age 45. I also get very fatigued...and many many more symptoms that like you...come and go! Please do check it out...it is always reassuring to know you are not alone with all these crazy symptoms. Hope to see you there! Joan
    Joan5555 316 Replies Flag this Response
  • Yesterday I began a new supplement. It is from Nature's Bounty and it is called "Water Pill" and says it supports fluid balance and contains postassium. I took it twice yesterday (according to directions) and I do seem to have less fullness in the abdomen, which in turn, makes the breathing easier.I will be starting two new supplements next week. Flordix w/herbs Iron supplement and digestive enzymes. I will continue the water pill and keep posting results. Today is already better...I can breathe.
    toybug2 11 Replies Flag this Response
  • New to the forum. I'm further interested. My mother has some similar symptoms. She had this apx. 10 years ago, lasted for about 6 months or so, then gradually got back to old self after about a year. Now about 2 weeks ago started back. I think it is stress related, but I'm not a doctor. She has muscle "jerks" that go from just below her left breast to about her belly button and seems to feel her heart jerking as well and has a heavy feeling in her chest, she gets some shortness of breath and is very weak and trembly and scared she is going to die. 10 years ago it finally got so bad she just barely could get out of bed to go to the bathroom or eat. She saw numerous doctors, checked her heart thoroughly, went to ER several times as she thought she was literally dying as she couldn't breath, even though oxygen sensors on her finger showed oxygen levels OK. She did breath tests, I went in with her once and she could hardly even move the sensor on the breath test and they couldn't get any readings, but oxygen level on finger still ok. They always just sent her home and said it was just a panic attack, but we both strongly disagree, however I think it may be triggered by stress, BUT thoroughly believe it is much more than a panic attack, her root problem may be causing her to have a panic attack granted, but it is not the root problem, she is a very tough, previously hard working 74 year old woman who rarely ever complains. She finally just kind of got better on her own somehow? Now it's starting up again. 10 years ago there was a stressful time that occurred and lately times are more stressful than normal for her. Anyhow any ideas out there? She has severe back pain as well and diverticulitis and was told years ago she has Mitral Valve Prolapse which she thinks about a lot (I see you have that too, maybe it's something with that???) . If you could please email me if anyone comes up with any good ideas: allen@tennesseeland.com as I don't check these forums as I should.
    Anonymous 42789 Replies Flag this Response
  • New to the forum. I'm further interested. My mother has some similar symptoms. She had this apx. 10 years ago, lasted for about 6 months or so, then gradually got back to old self after about a year. Now about 2 weeks ago started back. I think it is stress related, but I'm not a doctor. She has muscle "jerks" that go from just below her left breast to about her belly button and seems to feel her heart jerking as well and has a heavy feeling in her chest, she gets some shortness of breath and is very weak and trembly and scared she is going to die. 10 years ago it finally got so bad she just barely could get out of bed to go to the bathroom or eat. She saw numerous doctors, checked her heart thoroughly, went to ER several times as she thought she was literally dying as she couldn't breath, even though oxygen sensors on her finger showed oxygen levels OK. She did breath tests, I went in with her once and she could hardly even move the sensor on the breath test and they couldn't get any readings, but oxygen level on finger still ok. They always just sent her home and said it was just a panic attack, but we both strongly disagree, however I think it may be triggered by stress, BUT thoroughly believe it is much more than a panic attack, her root problem may be causing her to have a panic attack granted, but it is not the root problem, she is a very tough, previously hard working 74 year old woman who rarely ever complains. She finally just kind of got better on her own somehow? Now it's starting up again. 10 years ago there was a stressful time that occurred and lately times are more stressful than normal for her. Anyhow any ideas out there? She has severe back pain as well and diverticulitis and was told years ago she has Mitral Valve Prolapse which she thinks about a lot (I see you have that too, maybe it's something with that???) . If you could please email me if anyone comes up with any good ideas: allen@tennesseeland.com as I don't check these forums as I should.
    Anonymous 42789 Replies Flag this Response
  • I finally have a diagnosis for my trouble breathing. I have a hiatal hernia! I do not want to have surgery so I am watching my diet, avoiding caffiene and salt, staying out of the hot humid weather. This seems to help most of the time. When I go off the diet, it comes back, but have been feeling a lot better most of the time.
    toybug2 11 Replies Flag this Response
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