Discussions By Condition: I cannot get a diagnosis.

Trigeminal Neuralgia

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Jillann1
  • March 27, 2009
  • 10:36 PM

Hello,
I am 58 years old. Almost 4 years ago I started with the typical face pain thinking it was a dental issue. When that was ruled out, they diagnosed me with TN. Every year, about November, it flared up with facial pain. Not wanting to take the drugs, I discovered laser therapy. After 5-6 treatments, it went into remission until the next November. This year, I have had 25 treatments and still can't get it to remiss.
I find it unusual and not a typical TN that would flare up at a certain time of the year only.
This year, I have daily painful "strikes" in the middle and lower jaw area but I never get these attacks at work but only at home, which I find unusual also.
When I get the attack, I rub the temple area, my head and neck vigorously and, I don't think it helps it subside but it does help me get through it.
In all of the information that I have read, I have not heard of TN having these specifics and I am wonderful about a misdiagnosis. (MRI was negative).
Do you have any thoughts about these symptoms or what else it might be?
Thank you.
Jill *****r
Michigan
jillbeaver@yahoo.com

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  • Hello,I am 58 years old. Almost 4 years ago I started with the typical face pain thinking it was a dental issue. When that was ruled out, they diagnosed me with TN. Every year, about November, it flared up with facial pain. Not wanting to take the drugs, I discovered laser therapy. After 5-6 treatments, it went into remission until the next November. This year, I have had 25 treatments and still can't get it to remiss. I find it unusual and not a typical TN that would flare up at a certain time of the year only.This year, I have daily painful "strikes" in the middle and lower jaw area but I never get these attacks at work but only at home, which I find unusual also. When I get the attack, I rub the temple area, my head and neck vigorously and, I don't think it helps it subside but it does help me get through it. In all of the information that I have read, I have not heard of TN having these specifics and I am wonderful about a misdiagnosis. (MRI was negative). Do you have any thoughts about these symptoms or what else it might be?Thank you.Jill *****rMichiganjillbeaver@yahoo.comHi Jill,From your signs & symptoms the TN diagnosis appears to be correct. TN is a condition that doesn't have a single confirming diagnostic test; it's diagnosed primarily by evaluating your presenting signs & symptoms. Then comes the process of eliminating other possible causes of those symptoms. In your case, as in most, the first thought is some type of dental pathology. Once that's been ruled out, an MRI (and/or brain CT) is done to rule out other possible underlying causes of the TN S & S...sinus pathology, brain lesions, cerebral aneurysms, and sometimes multiple sclerosis. Your MRI was negative for those possible underlying conditions...which is a GOOD thing!In addition to anticonvulsant meds and muscle relaxers, there are a number of other treatment modalities that can be considered. I'll send you some info.Best regards,John
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