Discussions By Condition: I cannot get a diagnosis.

transverse myelitis and paralysis

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • October 21, 2006
  • 00:26 AM

3 1/2 years ago I became paralysed, it started with a sharp pain down by thigh, then over a course of 6 months I lost the ability to walk. My doctor couldn't figure anything out so he told me to go to the E.R. and when I entered there I could still stand with crutches and shift from a wheelchair to the bed,, but before the night was over I couldn't stand or walk, feel, so they tested me for everything, first I had M.S. then I didn't, then I did, so I went to San Francisco and they said no M.S. Everyone focus on transverse myelitis but this condition comes on over 2-3 hours and lasts for a few days to weeks, my condition took 6 months. I have a pinched nerve but they can't tell exactly where because of the lack of feelings. I have had probably 10 MRI's and other tests. They show bulging discs, but nothing out of the ordinary. 6 months prior to the on set, my horse threw we flat on my back, I lost my breath and couldn't get up. I need to know if anyone knows a cause for paralysis other than transverse myelitis. I feel pain in my lower spine, pins and needles throughout my legs, spasms, hot and cold, but the doctors don't listen to me. They keep
"kicking me to the curb". Maybe it's wishful thinking but I think the pinched nerve has a great deal to do with this. I only feel pain and problems sitting up, lying down I am great. Please any information, study groups I can go to, I'm willing to try many things as long as they don't cause extra problems, like baclofen, I have discovered that every side effect of that med is what problems I have had lately. thanks.:confused: :)

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1 Replies:

  • hey, im not sure if anyone will see this post, but here goes. i made this account for my mother who was diagnosed with transverse myelitis about a year and a half ago.... i was wondering if anyone had any information about how to deal with the over abundance of tone.. and muscle spasms ... especially in the leg areas...
    dragonheart546 1 Replies
    • February 15, 2007
    • 01:31 AM
    • 0
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