Discussions By Condition: I cannot get a diagnosis.

Too young for this

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Monkishgi
  • February 14, 2008
  • 11:16 PM

Hi, 17 year old male here, non-smoker, don't drink, don't do drugs everything had been fine in my life up until November 19,2007. Prior to any of this I was on antibiotics for about 6 months due to nodual cysts.

I had absolutely no stress, depression, anxiety, etc. I was as happy as I could basically be with life.

On November 19,2007 I was sitting at the computer with my brother and friend, when all of a sudden I was hit by chest pain, light-headedness, numbness and tingling,weakness, nausea. We waited about an hour with these symptoms coming and going before we woke my mother up, we headed to the E.R (12:00 am). They did a EKG on me, urine test, blood test, had me swallow some sort of numbing agent for my throat to see if it helped with the periodic chest pain, and did a chest X-Ray. Everything came back fine. The only thing that the doctor saw was a TINY bit of fluid in my ear.

Left the E.R still feeling very light-headed, after about 4 hours. Was up all the rest of that night, in pure misery from being so light headed, and getting the periodic chest pain which scared me to be honest.

We went to our family doctor that morning at 8:00 am right when they opened. Gave some decongestants saying it was probably my sinuses causing me to be so light-headed. Was also given a nausea pill, that also helped with sleep.

Was up until 6:00 pm that day, until I finally fell asleep.

Days went on, still felt the same, kept on with the decongestant pills, and no relief.

Went to the E.R 2 more times in between the and they did a CT scan of my neck area to check for a sinus build up, and a spinal tap, Nothing.

On November 29, I was laying there talking to my brother in absolute misery when all of a sudden my neck and check felt like every bone had been broken inside them.

My mom woke up and saw me in such pain and we went to a different E.R. Chest X-ray was taken, and they saw air around my heart. EKG followed shortly after came back abnormal. Echo cardiogram was done, it came back normal.

Was admitted for 4 days to the hospital, and remained lightheaded, nauseated and of course, terrible chest pains at this time. Heat surgeons and pulmonary doctor were baffled as to how I got the air around my heart. It resolved itself, and on the 3rd day a Neurologist came to try and figure out what was causing my light-headedness. Had a ct scan done on my head, an MRI with contrast. And nothing was found.

Followed up with pulmonary doctor, who told me to go out and get some sunshine, and said I was depressed.

Continued going to neurologist over the course of about 2 weeks, with same symptoms minus the terrible chest pains, (periodic like when it first started). He ran a blood test, on what he said, quite literally everything. Everything came back fine. Had a EGG done to check for seizures, and nothing.

We went to a ear nose and throat specialists, and did a hearing test, and the works. He ordered blood tests like every other doctor before him, and even checked for lime disease. He told us to head to a cardiologist.

Mind you, between all this, everything is getting worse and worse, with numerous E.R. visits in between these visits. During this time it's getting to the point where I'm getting so light headed and getting such strong rushes to my head, plus weakness causing me to barely be able to take a shower. And I'm basically getting no sleep from being SO miserable.

We goto the cardiologist, and am given a heart monitor for 24 hours nothing was found. Later a GXT (Stress test), is done and I have a small abnormality (very minor) during recovery time. After the stress test I was feeling extremely nauseated, and light headed, with burning in my chest.

About 1 week, later, we take a stress thalume (nuclear thing). Everything came back normal. another echo is also done before the GXT is done.

Numerous E.R. visits follow, same stuff as usual is done. (sorry about not being in detail, I'm skipping some things, but I feel absolutely terrible even while writing this.)

During one of the E.R. visits they do an echo on my neck, (I'm guessing to check the arteries) and everything came back normal.

Anyways, about a week goes by and we goto a gastrologist, he throws me on depression and anxiety meds immediately and orders a go down the throat test to check for stomach ulcers and reflux.

About a week after that, (and anxiety pills later, which have done nothing.) They go down my throat, they find a 2 centimeter hiatal hernia, and very minor inflammation of my intestines due to anti inflammatorys an ER doctor gave me.

We follow up with the cardiologist, and he refers us to sacred heart for a week later. (everything is still getting worse, and I'm getting weaker).
During that week, my mother calls the gastorlogy office to ask if any of these things I was diagnosed with would cause what I am feeling to such a degree, or period. They said no, and the gastrologist decided to FINALLY look at my record and told my mom on the phone to take me off the meds he put on on immediately.

We head to sacred heart, and talk to a cardiologist there, echo is done, and some pulmonary tests are done, was told by the pulmonary doctor that my lungs were impossibly good from the test, and I was WAY above average. The cardiologist tells me based off a sit and stand test I'm dehydrated, and need to eat more salt. I tell them I've had the same test done at the E.R. numerous, and had my electrolytes checked for so many times, that didn't seem to matter to them, nor did me telling them how much water I drink (atleast a gallon a day). And on the trip there, I hadn't drank anything, which I told them.

We're sent back, and I'm now waiting and following what they told me(Drink more, and eat more salt). And we have to email them in 2 weeks to tell them if I'm getting any better.

Again, I'm sorry about how jumbled and rushed this is, I'm feeling absolutely terrible and forcing myself to write this, it's honestly taking me alot.

I'm at the point now where I'm starting to get depressed from feeling so terrible, and weak.

Thanks for ANY info someone can give me.

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8 Replies:

  • Does mom have a carbon monoxide detector that she can put in your bedroom?
    Monsterlove 2,921 Replies
    • February 15, 2008
    • 02:14 AM
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  • Bump up for any other opinions.
    Monkishgi 1 Replies
    • February 17, 2008
    • 10:06 PM
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  • Have you ever been tested for hyper-acidity? When you got your first attack sitting on the computer - do you recall what you were eating or had eaten at the last meal? Some people with hyper acidity disorder exhibit classic signs of heart burn but a large proportion do not have strict, 'by the book' heartburn signs. They can have tightness of the chest. Often strong chest type pain which can radiate to an arm or up the neck as well. Some also experience pain towards the back shoulder blades.Perhaps it might be worthwhile for Dr's to concentrate a bit more on your gastric region. Just a thought? To check out if in fact you are showing signs of hyper acidity, and to also check out if perhaps you might have a very small opening at the top of the oesophagus which means that if you eat rich or spicy food (for some people *any* food can trigger an attack) - when the food is pushed up through the faulty opening and the person feels as if they are having a heart attack!Some of those are 'incidental symptoms' which the Dr's picked up such as the air around the heart might not be indicative of anything and simply one of those things which come and go in most people. Why not pick up the best ant-acid your pharmacist can give you (such as Zantac or similar) and pop one or two the next time you have one of these painful attacks and see if this lessens the pain. This *might* hopefully help to give you some kind of indication if this might be gastric related... If your family doctor would be agreeable, perhaps a 30 day course of an acid blocking med such as Omeprazole might also be an excellent indicator if all this pain, nausea, etc, etc is possibly linked to your stomach - believe me, hyper acidity can make the patient feel as if they *are* having a heart attack and then some!Best of luck - I hope you can get to the bottom of this.....
    LadyStar 3 Replies
    • February 18, 2008
    • 07:20 PM
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  • Apologies for my stupidity. I worked a l-o-n-g day with little sleep and missed that they in fact found a hiatial hernia!I hope you can get yourself to a very good gastroenterologist as a hernia that size IS going to cause you to feel as sick as all hades and the only way out of this is to have the hiatal hernia repaired.Drs just LOVE to throw anti-anxiety and depression pills into the mix. That is a crock! Who would not feel anxious or depressed if they felt so sick for such a long time. You have a very conclusive, medical diagnosis there which needs to be repaired! I hope you can find a surgeon to do this for you A.S.A.P. so that you can start to feel good again.
    LadyStar 3 Replies
    • February 18, 2008
    • 07:27 PM
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  • I am so sorry your going trough this but please listen to me. I had terrible pain and to be honest I still do in my calf I know your probably saying what does this have to do with me. I would have pains to the point I could not walk I been to the ER numeros times and to different doctors. Finally I went to what is called a chiropractor but just not the ones that crack you they use what is called applied kinesiology she found out what I was missing was calcium and that everytime I got stressed out my calfs would suffer because adrenal glands are connected to calfs. please go to this website and found one near you. From now on ill rather go there then to any doctor.http://www.icakusa.com/ and click on find a doctor. Please this helped me out so much and I am sure it will help you. with any questions email me to coolgirl8802@hotmail.com
    coolgirl8802 2 Replies
    • February 18, 2008
    • 08:26 PM
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  • Not sure what's wrong, but here's what I would do if I were in your shoes:I would get copies of ALL of my medical records, including all labs, EKGs, chest X-Rays, etc etc. EVERYTHING.I would ask a family member (since you are not too strong right now) to please summarize all of the tests you have done (include normal ranges for the lab values), as well as a summary list of all the symptoms as they evolved, and when you had each lab/study done. Sort of outline a story of how your symptoms evolved and what tests were done and the results. Don't write in any diagnoses from other doctors, though unless they show up on the radiology reports or EKGs, etc.I would take this and find another opinion- perhaps at a teaching hospital where they have more experience perhaps in complex cases. Someone needs to explain the air around your heart, and other symptoms. If they ask about why you have been placed on anti-anxiety and antidepressants, ask them if they wouldn't be a little anxious and depressed if they had your symptoms and no diagnosis.I'm sorry you are going through this. Hope you get some answers soon.
    Anonymous 42,789 Replies
    • February 19, 2008
    • 07:54 AM
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  • Are you a tall, thin person? If so, check out spontaneous pneumothorax. Why were you on antibiotics for a lymph node cyst for 6 months? I would think that would fry anyone's esophagus if they were refluxed. Did they biopsy the node? Has it gotten better? I know you had a CT of the neck, but did it go all the way to thoracic vertebra number 1? Have they looked at the glands in your neck (salivary,thyroid and parathyroids) for abnormalities? I don't mean the hormones these glands produce, but rather the organ itself. Ladystar is right about the reflux of stomach contents causing such pain that it is mistaken for heart related problems. I believe the nerve pathways are close together. Are you taking Nexium? Elke is also right to suggest you compile a lucid history with reports and go to a teaching hospital.
    rad-skw 1,605 Replies
    • February 19, 2008
    • 10:47 AM
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  • The more I think about it, I think you have to have that node, especially if it is in your neck, biopsied.
    rad-skw 1,605 Replies
    • February 19, 2008
    • 10:49 AM
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