Discussions By Condition: I cannot get a diagnosis.

too many symptoms reaches NO answers! HELP!

Posted In: I cannot get a diagnosis. 21 Replies
  • Posted By: moshbydefault
  • September 28, 2008
  • 03:05 AM

hi, I've been having a lot of symptoms that are all very random for a very very long time now, i do NOT know what they are from or what they could be linked too..
OK, ill tell you all my symptoms(sorry it will LONG):
i have horrible pain in my bones and joints constantly, i have blackouts a lot and not meaning PHYSICAL blackouts but periods where i don't have a clue how it happened or how i got somewhere or where i just was.
i get TERRIBLE awful migraines every single day! i have hot flashes about every night or evening, i cant stand the heat i get nauseated and start to get vomit coming up my throat, i get horrid stomach pains like someone is stabbing me, i urinate way way too much for the amount of liquids i consume, i always feel like i am dying of thirst, my memory is non-existent i cant EVER remember anything and its getting worse and worse everyday, i get night sweats even in freezing weather, my feet turn a dark reddish purple when i stand longer than five minutes, i lose hair a lot... like A LOT in clumps, my skin gets itchy and VERY bumpy in the sun, i don't heal well at all what will take someone 1 week to heal will take me more than 5 months, i easily catch infections, i scar a deep purple color and it stays that way it never gets lighter,i diarrhea at LEAST once a day, my skin doesn't absorb moisture to ANY lotion, and i get dizzy everyday for no apparent reason.
I've been getting about 85% of these symptoms for longer than 3 years.


IM ONLY 18 YEARS OLD! and i am a female.
sometimes people tell me i look physically sick, NO doctors listen to me or anything that i tell ANY of them because im so young and they say im just a "hypochondriac" and "i worry too much".
i hate that no one will listen to me! my mom didnt even believe me until she started to see my in so much pain i would cry (it takes A LOT of PHYSICAL pain to make me cry)..i don't know what to do anymore, i dont know who to go see because it doesnt matter it doesnt change that no one will listen to me because of my age.

i don't have a lot of money so i can't afford some expensive doctor but i will go if they'll listen.
im not sure if all these symptoms are connected or its something specific with a few random symptoms attatched?:confused:
im running out of options here! i physically feel like im dying (i know im most likely not) BUT thats how i feel..:(
PLEASE, if you read any symptoms that you know are something tell me.
i need as much help as i can get.



P.S- cancer runs in my family on both my mother and fathers side, my father currently also has cancer.
breast cancer runs in my family i know its none of this but maybe that narrows things out a little?
Also, i haven't gotten my period in years. i first got my period when i was 9 or 10.

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21 Replies:

  • Hey, I'm afraid I can't suggest anything for your symptoms except maybe a severe hormonal imbalance? I would like to sympathise with you though about not being listened to because of being 'too young'. That's happened to me from a doctor and it sucks. Fingers crossed for you finding an answer soon.
    Anne20 5 Replies
    • September 28, 2008
    • 03:08 PM
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  • could be diabetes for some of the symptoms; you better get to a clinic right away....there are clinics that base their fee on your ability to pay, so check around.
    Monsterlove 2921 Replies
    • September 28, 2008
    • 04:55 PM
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  • could be diabetes for some of the symptoms; you better get to a clinic right away....there are clinics that base their fee on your ability to pay, so check around.you're right! is this a specific kind of clinic i have to go to?or is it a regular clinic?
    moshbydefault 6 Replies
    • September 28, 2008
    • 05:39 PM
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  • Looks like diabetes to me too. Keep us informed.
    heartpain 5 Replies
    • September 28, 2008
    • 05:58 PM
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  • yea, that's what i thought too.maybe the other few random symptoms just straggle along.i took a blood test about 2 months ago and my old doctor said there was nothing that showed up!no diabetes or thyroid issues, but maybe that was pre-diabetes?any who, i am taking another blood test in a few days with ANOTHER new doctor..maybe she'll be find something?also..is diabetes serious? like life threatening or is it something that is kind of no too much to worry about if i AM diagnosed with it?:confused:oh and i will definitely tell you all what the results of the test are!
    moshbydefault 6 Replies
    • September 28, 2008
    • 06:16 PM
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  • yea, that's what i thought too.maybe the other few random symptoms just straggle along.i took a blood test about 2 months ago and my old doctor said there was nothing that showed up!no diabetes or thyroid issues, but maybe that was pre-diabetes?any who, i am taking another blood test in a few days with ANOTHER new doctor..maybe she'll be find something?also..is diabetes serious? like life threatening or is it something that is kind of no too much to worry about if i AM diagnosed with it?:confused:oh and i will definitely tell you all what the results of the test are!Check Wikipedia's comprehensive article on Diabetes. It's not a "deadly" illness, if you have it you'll have to deal with the nuisance of checking your sugar levels periodically, avoiding certain meals and so on.
    heartpain 5 Replies
    • September 28, 2008
    • 06:22 PM
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  • No idea what is wrong but if it is a hormonal imbalance, a few blood tests are NOT enough. I would start off with an endocrinologist. I went to one a few years ago and I had a lot of blood tests and got to collect urine for 24 hours. They must have taken 10 vials of blood, it was a lot. If money is a problem, I suggest you go to a low cost or free clinic and see a primary doctor. Specifically ask for a referral to an endocrinologist. From my experience endocrinologists all demand a referral even if your insurance does not. You also need to be seen by an OBGYN. You clearly have some female problems that need to be looked at. Before you see the doctor write out all your symptoms. It is so easy to forget something important when in the examination room.
    halal37 96 Replies
    • September 28, 2008
    • 10:28 PM
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  • You'd definitely need to rule out any hormonal problems, as they can cause multiple symptoms.Have you had any blood tests done so far? Here's a few things I suggest you look at and/or try to get ruled out. Your best bet is to see an endocrinologist. If you've really got joint pains / articulations, go see an arthritis specialist, it's uncommon for someone your age to suffer from arthritis, but not impossible (and I really think you ought to get tested for lupus) 1) Lupus 2) Adrenal glands diseases (cushing's / addisons)3) Diabetes / Insuline resistance4) Thyroid problems5) Keep looking.Good luck.
    geenie 39 Replies
    • September 29, 2008
    • 02:25 AM
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  • ugh. thanks guys!Lupus was ruled out by other doctors as was thyroid issues.i go for my blood work first thing in the morning, but how would i suggest the blood and urine thing that was almost 24 hours? someone else close to me suggested that too. hopefully this is not just going to be another blood test that comes back saying that absolutely nothing is wrong with me.:mad: and thanks ill go look up cushings and addisons!:eek:
    moshbydefault 6 Replies
    • September 29, 2008
    • 06:03 PM
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  • hello, i'd like a little more information about your case. have you had weight problems? low, high weight?are you taking medication?do u have blood tests?How is your urine? color?have you had eye vision problems?Skin problems? any rash maybe? skin color change?have you had nipple discharge? Pain on you breast? i'm very interested in your case. i'm a young doctor and i want to find out what's going on with you. my mail: paules86@hotmail.com
    paules86 18 Replies
    • September 29, 2008
    • 07:53 PM
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  • Sounds like Polycystic Ovarian Syndrome. (PCOS) Many of it's symptoms can mimic diabetes. The illness itself can lead to diabetes, heart disease, and infertility. You mentioned your hair falling out, however there is nothing abnormal about your thyroid. Hair loss and male patterned baldness is a symptom. Often there is a hormonal imbalance to blame. Too many male hormones and estrogen but often not enough progesterone. Low progesterone levels can give you the night sweats, joint pain, and head fog you mentioned. Weight gain, often around the middle, is also a symptom that can mimic hypothyroidism. PCOS can feel similar to menopause. An ultrasound can determine if there are cysts on your ovaries. Absent menstrual cycles, especially in young women, would also lead me to believe that PCOS is to blame. However odd it may seem, most treatment is with birth control pills, metformin, (a diabetic drug) and a low-glycemic diet. Please see an OB/GYN. Try a Planned-Parenthood in your area for low cost medical care. As well as Wal-Mart for four dollar generics. I do hope you feel better soon.
    missbarbiegal26 10 Replies
    • September 29, 2008
    • 09:06 PM
    • 0
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  • Sounds like Polycystic Ovarian Syndrome. (PCOS) Many of it's symptoms can mimic diabetes. The illness itself can lead to diabetes, heart disease, and infertility. You mentioned your hair falling out, however there is nothing abnormal about your thyroid. Hair loss and male patterned baldness is a symptom. Often there is a hormonal imbalance to blame. Too many male hormones and estrogen but often not enough progesterone. Low progesterone levels can give you the night sweats, joint pain, and head fog you mentioned. Weight gain, often around the middle, is also a symptom that can mimic hypothyroidism. PCOS can feel similar to menopause. An ultrasound can determine if there are cysts on your ovaries. Absent menstrual cycles, especially in young women, would also lead me to believe that PCOS is to blame. However odd it may seem, most treatment is with birth control pills, metformin, (a diabetic drug) and a low-glycemic diet. Please see an OB/GYN. Try a Planned-Parenthood in your area for low cost medical care. As well as Wal-Mart for four dollar generics. I do hope you feel better soon.hmmm... odd you mention that im going to go look up PCOS now BUT i did have a cyst on my right side next to my appendix about 3 years ago that popped and i had to go to the hopsital. the pain was so bas the dictors thought my appendix had burst until they took a catscan and saw extra liquid around my appendix from an arupted cyst.can these two things be linked?:confused:by the way, there isnt a day that goes by that i dont get sharp pain on the lower edges of my stomach are.:(
    moshbydefault 6 Replies
    • September 30, 2008
    • 07:14 AM
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  • Have your doctors ruled out q fever i have most of your symptoms and i know q fever has many other symptons as well good luck with getting believed . A serological blood test for q fever will hopefully rule it out . If you live near cows or goats be wary
    Anonymous 42789 Replies
    • September 30, 2008
    • 04:17 PM
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  • Have you been checked for Lyme Disease? More importantly, have you been bitten by a tick prior to these symptoms? The joint pain, headaches and rash fit, along with several of your other symptoms. Reaseach Lyme Disease, along with other tick diseases. Know that you can have SEVERAL negative results even if you do have the disease. That makes it very hard to diagnos. The good news is that all tick born diseases are treated with a broad spectrum antibiotic. That's all it takes.
    Anonymous 42789 Replies
    • September 30, 2008
    • 10:34 PM
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  • hmppf i doubt that because i live in NYC unless there are still ticks here? not sure but i definitely live nowhere near cows or goats =/
    moshbydefault 6 Replies
    • October 1, 2008
    • 05:53 AM
    • 0
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  • Sounds autoimmune to me, but the normal test for lupus (at least if the one they gave me 2 years ago is normal) will rule out most other common autoimmune conditions.
    Anonymous 42789 Replies
    • October 1, 2008
    • 06:16 AM
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  • hmmm... odd you mention that im going to go look up PCOS now BUT i did have a cyst on my right side next to my appendix about 3 years ago that popped and i had to go to the hopsital. the pain was so bas the dictors thought my appendix had burst until they took a catscan and saw extra liquid around my appendix from an arupted cyst.can these two things be linked?:confused:by the way, there isnt a day that goes by that i dont get sharp pain on the lower edges of my stomach are.:( It is highly unlikely that the cyst near your appendix has much to do with what is going on now. Now you say the lower edges of your stomach is in pain? Is the pain closer to your belly button or, near your heart? Lower abdominal pain could also be a syptom of PCOS as cysts on the ovaries can cause pain. Please see an OB/GYN. PCOS is quite common and is easily treatable. I have it myself and while the symptoms are annoying some times, no one should have to suffer. Take care.
    missbarbiegal26 10 Replies
    • October 1, 2008
    • 09:09 AM
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  • It is highly unlikely that the cyst near your appendix has much to do with what is going on now. Now you say the lower edges of your stomach is in pain? Is the pain closer to your belly button or, near your heart? Lower abdominal pain could also be a syptom of PCOS as cysts on the ovaries can cause pain. Please see an OB/GYN. PCOS is quite common and is easily treatable. I have it myself and while the symptoms are annoying some times, no one should have to suffer. Take care.thanks!!i have JUST made an appointment with a OB/GYN, im quite nervous but understand i need it =).
    moshbydefault 6 Replies
    • October 1, 2008
    • 07:51 PM
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  • Those are very diverse symptoms.The pain sounds like fibromyalgia but you are young for that. Sometimes assoicated with fibromyalgia and CFS is dysautonmia - especially based on your age. It explains a lot (but not all) of your symsptoms (not usually the pain unfortunately). Dysautonomia is a medical term often utilized for a group of complex conditions that are caused by a dysfunction of the autonomic nervous system (ANS). Childhood dysautonomia conditions typically (but not always) strike adolescents, often after a period of very rapid growth. There is a female to male ratio of 5 to 1. Some patients report a sudden development of symptoms after a viral illness, immunization, or trauma. Others may see a more gradual onset.Symptoms of dysautonomia may include: Tachycardia (extremely fast heart rate), bradycardia (slow heart rate), palpitations, chest pain, dangerously low blood pressure, wide swings/sudden drops in blood pressure, orthostatic intolerance (the inability to remain upright), excessive fatigue, exercise intolerance, dizziness, fainting/near fainting, gastrointestinal problems, nausea, insomnia, shortness of breath, anxiety, tremulousness, frequent urination, convulsions, cognitive impairment, visual blurring or tunneling, and migraines. This site is very helpful http://www.dynakids.org/what.jsp
    Anonymous 42789 Replies
    • October 2, 2008
    • 10:09 PM
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  • My daughter had alot of the same symptoms as you do. She went to her OBGYN and they discovered she has a tumor on her pituitary gland. She is now on medicine to reduce the tumor. She had not had a period in 4 years and was told she would not be able to have children (she was 18 and newly married at the time) after starting the medicine she start having her period randomly. And is now almost 3 months pregnant. Its just a suggestion but ask about it when you go see the OBGYN. Terri
    frustrated9967 12 Replies
    • October 4, 2008
    • 00:44 PM
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