Discussions By Condition: I cannot get a diagnosis.

Too many symptoms and no answers!!!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: dimps74
  • August 16, 2010
  • 07:33 PM

I am a 36 year old female with an active 4 year old. I myself have been active like working from home, taking care of house (with help from babysitter), going to the gym, active social life etc. I was diagnosed with Grave's disease (hyperthyroidism) approx 2 years ago and have been on sythroid and methimizaole ever since. My T3, T4 and TSH levels are normal.
But for the last 4 months I have been suffering from a combination of symptoms which are getting worse - excessive exhaustion and fatigue, nausea throughout the day, have started getting heaviness in the right side of head recently with some headache on and off. The fatigue is accompanied by fogginess, lack of concentration, lethargy, lightheadedness, forgetfulness to the extent that sometimes I cannot remember where I am going or what I am supposed to do that day. I have been pushing myself to do normal day to day activities but its becoming increasingly difficult. I need to be in bed after every 2 to 3 hours and still cannot recharge myself. Nausea is accompanied by lots of burping and of course I have been waking up every morning with a really bad taste in my mouth which lasts throughout the day.
The doctor has given me some nexium which sometimes helps with the nausea but not completely.
Other symptoms are: excessive hair fall (for the last 4 years), tingling and stabbing pain at times in my right foot (doctor told me not to wear high heels which I hardly do), increased urination (every 20 to 30 minutes)
I am not pregnant, I dont smoke or drink, get plenty of sleep and eat a healthy vegetarian diet.
My endo has ruled out all possible autoimmune diseases (he claims so) and my PCP thinks i should go see a shrink.
Could this be a gastro problem which is somehow leading to extreme tiredness and mental fog?
Please help!!! I just want to start feeling better and be my old self again.....

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3 Replies:

  • My endo has ruled out all possible autoimmune diseases (he claims so) Just not possible for a person to rule them all out.. He has ruled out the "common" autoimmune diseases. Unfortunatley many doctors once they've ruled out all common things they can think of.. give up at that point. Does aerobic exercise make your condition worst?? If so you should check out chronic fatigue immunity dysfunction syndrome. That can cause all your symptoms including the issues with needing to pee a lot and hair loss. http://wwcoco.com/cfids/bernesx.html (good symptom list based on studies)........... In CFIDS, vitamin B injections (i have this issue and have two injections per week and im a heavily meat eater on top of this).. are helpful to many of us (as there is often a B deficiency in our actual body tissues and brain.. which doesnt often show up in a blood test as the deficiency isnt in the blood). I hope your doctor has checked your B vitamin level.. if its in the lower range of normal and you have CFIDS, that is very suspect and indicative that you should be trying B12 injections (most CFIDS specialists would have you trying that). A good forum for this if you want to find out about others with it, to check things out more.. is the "not crazy CFS forum" The fact you are vegetarian.. may be really adding to this issue thou often food, supplementation pills arent enough anyway for some improvement with this condition. (beware.. there is a lot of crap out there about this illness.. so its best to do your research about it by chatting to ones who have been diagnosed with it before you approach your doctors to get their opinion. Also different countries diagnose it completely differently and some government health recommendations are actually harmful to many this this illness (actually have caused death in a couple of people trying to follow them).. the governments cant even work out how to define the illness!! and kept on changing the info on it). England is apparently currently thinking about introduce a lifetime blood ban on ones who have this illness, the CDC have changed their info on this illness at their site, at least twice in the past couple of mths!!. Their site is crap on this! I suggest to check out the Canadian Consenus CFS document which also quite a few other countries follow, they have the illness much more right.)
    taniaaust1 2267 Replies
    • August 17, 2010
    • 05:26 AM
    • 0
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  • Hi Dimps,Wow that's amazing, you pretty much described all of my symptoms! In the last few days, I have had increased dizzyness and felt a bit shaky on top of all those you listed, that got so bad that I was taken to the emergency room today.I, and a few nurses/doctors etc, were worried it was Diabetes (very similar symptoms, it seems), but 3 blood tests failed to confirm this (a good thing!). This left the doc totally stumped, and this has now happened on 2 occasions.I'm very keen to follow your progress, I'll definitely keep you informed if i find anything!PS my Dad thinks I need a shrink too! :)
    RareBreed 1 Replies
    • August 18, 2010
    • 10:17 AM
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  • Rarebreed,I am going for another sleep study this friday. The doctor is convinced all of my symptoms are being caused by me not getting enough rest and obstructive sleep. They will send me home with a mask and I need to try it out for a week to see how I feel. The doctor says that if I feel better in a week then all my symptoms were related to sleep. Else he will send me for all sorts of X-rays and MRI's. Will keep you posted. Dimps
    dimps74 4 Replies
    • August 18, 2010
    • 10:12 PM
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