Discussions By Condition: I cannot get a diagnosis.

Todd's Paralysis

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: bfish13
  • April 1, 2011
  • 01:37 AM

I have been suffering from stroke like effects for 7 years now. Previous doctor thought for sure it was Multiple Sclerosis. I saw a new doctor today and she thought I may have Todd's Paralysis. I have been paralyzed on the right side more than a dozen times. EKG, blood work, MRI's, Spinal fluid, blood tests are all normal. I even went to a psychiatrist consult for Conversion disorder. I am so confused. I do however get severe migraines that can last over a week. I was thought to have hemiplegic migraines however, nothing confirmed it. Could I have finally gotten the correct diagnosis? I have speech impediments, complete paralysis on the right side, wake up exhausted, have terrible tremors, in some cases I have numbness and tingling on one side. I black out for moments, and my husband says that I clench my jaws and violently ***k at night. I have not noticed these. I have had an EEG once, but it did not show anything. However, my doctor said that unless I catch the seizure I may not be showing any effects. Any thoughts? So tired of living this way and being constantly drug tested! I am not on drugs nor have I ever taken any type of drug that has not been prescribed.:eek:
I can give more info if needed! THANKS

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  • I have been suffering from stroke like effects for 7 years now. Previous doctor thought for sure it was Multiple Sclerosis. I saw a new doctor today and she thought I may have Todd's Paralysis. I have been paralyzed on the right side more than a dozen times. EKG, blood work, MRI's, Spinal fluid, blood tests are all normal. I even went to a psychiatrist consult for Conversion disorder. I am so confused. I do however get severe migraines that can last over a week. I was thought to have hemiplegic migraines however, nothing confirmed it. Could I have finally gotten the correct diagnosis? I have speech impediments, complete paralysis on the right side, wake up exhausted, have terrible tremors, in some cases I have numbness and tingling on one side. I black out for moments, and my husband says that I clench my jaws and violently ***k at night. I have not noticed these. I have had an EEG once, but it did not show anything. However, my doctor said that unless I catch the seizure I may not be showing any effects. Any thoughts? So tired of living this way and being constantly drug tested! I am not on drugs nor have I ever taken any type of drug that has not been prescribed.:eek:I can give more info if needed! THANKSYOU AND i HAVE A SIMILAR STORY..I also have severe pain fatigue, memory loss cognitive impairment, malabsorbsion issues, chronic UTIs, a neurogenic bladder(I cant void..no sensation) 2 litres in size which I self cath, high homocysteine, pancratic issues, bowel issues,blindness in left eye, I have gained 50 lbs in a year and doing this alone. The Drs tried conversion with me...however it does make your CPK elevate to 30 thousand during paraylsis, I have all the symptoms you mentioned as well, tingling, pins and needles, pain in my back and feet, thyroid issues, dropping things, recent insomnia..I can't get a diagnosis,,I feel so alone..and scared..I'm here please reach out.I was perfectly healthy..it all started following a routine surgical procedure,,I never recovered 1 1/2 years ago.Kim
    kimi1229 1 Replies Flag this Response
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