Discussions By Condition: I cannot get a diagnosis.

Tired of loosing my mind...

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: braindrain
  • December 1, 2008
  • 04:42 AM

I have been struggling with two problems for several years and have not received the help I need. The first, I get confused and feel dazed at times. Some days are worse than others and some days I am incapacitated.
On good days, I am alert and have plenty of energy and I can concentrate fairly easily. I have found that I can no longer multi-task, even on the best of days. My good days are becoming rarer, about once a week. A normal day for me, now, consists of forgetting where I left things, forgetting what I was just saying, and what I am doing. I have started writing notes, since I am having problems remembering what I am doing, but I can't find them. I get tired easy and weak. I have difficulty leaving my home, since I can't find keys, my purse, coat, etc. which I could have in my arm. On my bad days, my personality is effected. I get angry so easily, which has never been my style. I walk around in circles hoping to remember what I am looking for. I tried to go to my friend's house and couldn't figure out how to get on the expressway. It took three times of passing the exit, before I figured it out. Often I have trouble speaking, can't find the words, can't complete a thought, and sometimes slur my speech. There are days that I can't understand what someone is saying to me. I hear the words, but can't make sense of it. It is as if they are speaking random words. I also have trouble reading, either because of my concentration, or I can't understand it.

I have had a MRI and have been in the hospital where they decided it is my migraines and put me on Keppra. I don't have the head pain much anymore, but the other stuff is getting worse.

If that isn't enough, when I eat, I get pain immediately in the center of my upper abdomen, directly below my breastbone. I feel a little nauseated as well. It does pass fairly quickly, but does make me put off eating.

Since I don't have insurance, getting time with a neurologist is difficult, and tests are expensive. I have had an ultrasound of my abdomen and blood work in addition to the MRI. I also had an EEG which showed something, which could just be the result of my migraines or seizures. That is the reason for Keppra.

I am having difficulty working, driving, and even cleaning my house. Please help if you can.

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7 Replies:

  • Some questions first:1) How old are you?2) How much Keppra you take?3) Did you have headaches before the memory problems?If you are over 50, the most probable cause of the symptoms are depression and/or cognitive impairment.
    tsoukase 18 Replies
    • December 1, 2008
    • 11:34 PM
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  • I am 42. I take 2 500mg tablets of Keppra a day.I have had migraines since I was 16 yrs old. The headaches start out, the aura, with cluster headaches and seizures, weakness on the left side and my eye droops.
    braindrain 2 Replies
    • December 1, 2008
    • 11:51 PM
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  • Two more questions:1) did the brain MRI show any lesions?2) did any of your parents had chronic migraine or/and episodes that seemed like a stroke?
    tsoukase 18 Replies
    • December 2, 2008
    • 00:01 AM
    • 0
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  • I don't know about the lesions. Everything they have found they say "could" be part of the migraine syndrome. My father and grandmother had migraines, so does my sister. They don't have the same symptoms. They just get the visual auras and nausea.
    braindrain 2 Replies
    • December 2, 2008
    • 00:42 AM
    • 0
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  • I don't know about the lesions. Everything they have found they say "could" be part of the migraine syndrome. My father and grandmother had migraines, so does my sister. They don't have the same symptoms. They just get the visual auras and nausea.The migraine-stroke-dementia complex of symptoms arise ususally in various overlaping diseases, that have to do with vessels or clotting-mechanism.At this point, I suggest the following:1) clotting factors testing (called thrombophilia)2) tests for antiphoshpolipid-syndrom (APS): ACA, antiβ2-GPI, Lupus Anticoaggulant3) genetic testing for CADASIL syndrom
    tsoukase 18 Replies
    • December 2, 2008
    • 01:27 PM
    • 0
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  • I have been struggling with two problems for several years and have not received the help I need. The first, I get confused and feel dazed at times. Some days are worse than others and some days I am incapacitated. On good days, I am alert and have plenty of energy and I can concentrate fairly easily. I have found that I can no longer multi-task, even on the best of days. My good days are becoming rarer, about once a week. A normal day for me, now, consists of forgetting where I left things, forgetting what I was just saying, and what I am doing. I have started writing notes, since I am having problems remembering what I am doing, but I can't find them. I get tired easy and weak. I have difficulty leaving my home, since I can't find keys, my purse, coat, etc. which I could have in my arm. On my bad days, my personality is effected. I get angry so easily, which has never been my style. I walk around in circles hoping to remember what I am looking for. I tried to go to my friend's house and couldn't figure out how to get on the expressway. It took three times of passing the exit, before I figured it out. Often I have trouble speaking, can't find the words, can't complete a thought, and sometimes slur my speech. There are days that I can't understand what someone is saying to me. I hear the words, but can't make sense of it. It is as if they are speaking random words. I also have trouble reading, either because of my concentration, or I can't understand it. I have had a MRI and have been in the hospital where they decided it is my migraines and put me on Keppra. I don't have the head pain much anymore, but the other stuff is getting worse. If that isn't enough, when I eat, I get pain immediately in the center of my upper abdomen, directly below my breastbone. I feel a little nauseated as well. It does pass fairly quickly, but does make me put off eating. Since I don't have insurance, getting time with a neurologist is difficult, and tests are expensive. I have had an ultrasound of my abdomen and blood work in addition to the MRI. I also had an EEG which showed something, which could just be the result of my migraines or seizures. That is the reason for Keppra. I am having difficulty working, driving, and even cleaning my house. Please help if you can.Heya, ive been having almsot the same problems as u for the last 2 years. Up until then i was totally normal, had no medical history of anything and going into my last year of university. then one day i just woke up with the worst pain and most incredible dazed feeling ever. the pain has pretty mushc subsided but the dazed feeling as remained 24 hours aday never letting up. It has made living and doing the simplest of things almost impossible. I constanty forget words, find it impossible to muli tas or work. I had to drop of of university. it just constanty feels like i dont know whats going on around me or where i am. I've had many tests: CT Scan, blood tests all have come back ok. the only thing they have found wrong is i have very high blood pressure, which i take several tablets for everyday. The only tests i havent had done is MRI and lumber puncture. I've seen neorologists and a psychiatrist all of which dont know whats wrong with me. Ive been told im not depressed or anything like that, and feel worse and worse all the time. I just need to know whats wrong with me! Anyone have any ideas?!Chaeers matt
    Matt567 6 Replies
    • December 2, 2008
    • 03:11 PM
    • 0
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  • Has anyone thought of celiac disease? Try here: http://www.webmd.com/migraines-headaches/news/20030321/migraine-linked-to-celiac-disease and: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm
    aquila 1263 Replies
    • December 2, 2008
    • 05:19 PM
    • 0
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