Hi, hoping someone might be able to help because I am getting very frustrated with fruitless visits to the doctor... (warning: this is quite long, I'm sorry!)
I am a 22 year old female and have been suffering from an array of vague symptoms for at least 3 years now.
Nearly 3 years ago I went to the doctor because my periods were quite irregular, with gaps of 7-8 weeks between them, sometimes longer. I think I was asking for some sort of investigation into why but perhaps I put to much emphasis on the fact that I also found it irritating because it was difficult to plan things etc if I never knew when I was going to come on. So I ended up coming out of the doctors office with a prescription for the pill because he thought that solved my problem. (I was also advised to go to the GUM clinic & get checked out for STI's, which I did, got the all clear there.)
So I stayed on the pill for a year & had no problems but I decided to come off it... that was a little over 15 months ago now & I have had no periods since, absolutely nothing.
I also have no sex drive what so ever which is frustrating, I just couldn't care less about it - I want to care, but the feeling/drive just isn't there (it did used to be!)
So that's that. I also have been suffering from fatigue, I am constantly tired, I try to stay active but I only have so much to give.
Headaches are also a feature of my day to day life, low grade but present over 50% of the time.
I also suffer from the cold terribly and have been told that I have Reynold's Syndrome (feet go purple & white, as do hands to a lesser extent). Saying that I don't do well in the heat either. The Reynold's started about 2 years ago.
Other odd things that are going on: My eyelids always feel heavy & are always swollen in the morning, my tongue feels a little too big for my mouth & as teeth indentations on it, I suffer from diarrhea on a fairly regular basis, I have to get up in the night to go to the loo (started about 2 years ago, before then I always slept through the night), & in the last six months I have started to get some very coarse darks hairs growing on my head (I have dark blonde hair so it is quite noticable to me at least.)
Something is not right, I can feel it inside me but getting a doctor to take me seriously seems to be an up hill struggle.
The doctor I have visited has run some blood tests, TSH apparently normal, hormones apparently normal, although I do wonder how they can say my hormones are normal when I am not having menstural cycles because they have no idea if they are fluctuating at all or not, if they are in the 'normal' range but are constantly at that level then that is surely not 'normal'?
The doctor has also arranged for an ultrasound of my abdomen but I am not entirely sure what he thinks they will find.
On my most recent visit his first reaction was that I was depressed, I honestly do not believe I am and he had me fill out a quick questionnaire/screening sheet & I scored very low i.e. not depressed.
His next critisism was my weight, I am quite slim. He calculated my BMI to be 19 & told me this is likely the reason that my periods have not returned. He said that BMI's between 20-25 are considered optimal, although I have read 18.5-25, I agreed with him that I could afford to gain a few pounds but I eat quite a lot & would say that I have a pretty good diet. Everyone in my family is slim & I have consistently been that weight, if anything I did weigh a little more a few years ago but I seemed to loose a few pounds when I started the pill.
Anyhow, I get the impression my doctor just seems to think that I'm a hypercondriac who could do with gaining a few pounds which makes it difficult as I don't feel I am being taken seriously when I visit but what ever it is that is wrong with me is having major implications on my life, the headaches make me impatient with people, the fatigue makes me antisocial because I haven't the energy to go out with friends & the non-existent sex drive is just sad. I want to want a relationship, but as I said before, just no urges.
Any idea what could be wrong?
From 'googling' (the thing doctor's hate the most!) I would think my symptoms are suggestive of a non-functioning pituitary tumor, seems to fit the bill better than anything else but I doubt I could persuade the doctor to schedule me in for an MRI...
Thank you in advance for any suggestions/advice. Means a lot.