Discussions By Condition: I cannot get a diagnosis.

Tired of being tired & headachey etc etc...

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: burbur
  • July 7, 2011
  • 07:19 PM

Hi, hoping someone might be able to help because I am getting very frustrated with fruitless visits to the doctor... (warning: this is quite long, I'm sorry!)

I am a 22 year old female and have been suffering from an array of vague symptoms for at least 3 years now.

Nearly 3 years ago I went to the doctor because my periods were quite irregular, with gaps of 7-8 weeks between them, sometimes longer. I think I was asking for some sort of investigation into why but perhaps I put to much emphasis on the fact that I also found it irritating because it was difficult to plan things etc if I never knew when I was going to come on. So I ended up coming out of the doctors office with a prescription for the pill because he thought that solved my problem. (I was also advised to go to the GUM clinic & get checked out for STI's, which I did, got the all clear there.)
So I stayed on the pill for a year & had no problems but I decided to come off it... that was a little over 15 months ago now & I have had no periods since, absolutely nothing.
I also have no sex drive what so ever which is frustrating, I just couldn't care less about it - I want to care, but the feeling/drive just isn't there (it did used to be!)

So that's that. I also have been suffering from fatigue, I am constantly tired, I try to stay active but I only have so much to give.
Headaches are also a feature of my day to day life, low grade but present over 50% of the time.
I also suffer from the cold terribly and have been told that I have Reynold's Syndrome (feet go purple & white, as do hands to a lesser extent). Saying that I don't do well in the heat either. The Reynold's started about 2 years ago.
Other odd things that are going on: My eyelids always feel heavy & are always swollen in the morning, my tongue feels a little too big for my mouth & as teeth indentations on it, I suffer from diarrhea on a fairly regular basis, I have to get up in the night to go to the loo (started about 2 years ago, before then I always slept through the night), & in the last six months I have started to get some very coarse darks hairs growing on my head (I have dark blonde hair so it is quite noticable to me at least.)

Something is not right, I can feel it inside me but getting a doctor to take me seriously seems to be an up hill struggle.

The doctor I have visited has run some blood tests, TSH apparently normal, hormones apparently normal, although I do wonder how they can say my hormones are normal when I am not having menstural cycles because they have no idea if they are fluctuating at all or not, if they are in the 'normal' range but are constantly at that level then that is surely not 'normal'?

The doctor has also arranged for an ultrasound of my abdomen but I am not entirely sure what he thinks they will find.

On my most recent visit his first reaction was that I was depressed, I honestly do not believe I am and he had me fill out a quick questionnaire/screening sheet & I scored very low i.e. not depressed.

His next critisism was my weight, I am quite slim. He calculated my BMI to be 19 & told me this is likely the reason that my periods have not returned. He said that BMI's between 20-25 are considered optimal, although I have read 18.5-25, I agreed with him that I could afford to gain a few pounds but I eat quite a lot & would say that I have a pretty good diet. Everyone in my family is slim & I have consistently been that weight, if anything I did weigh a little more a few years ago but I seemed to loose a few pounds when I started the pill.

Anyhow, I get the impression my doctor just seems to think that I'm a hypercondriac who could do with gaining a few pounds which makes it difficult as I don't feel I am being taken seriously when I visit but what ever it is that is wrong with me is having major implications on my life, the headaches make me impatient with people, the fatigue makes me antisocial because I haven't the energy to go out with friends & the non-existent sex drive is just sad. I want to want a relationship, but as I said before, just no urges.

Any idea what could be wrong?

From 'googling' (the thing doctor's hate the most!) I would think my symptoms are suggestive of a non-functioning pituitary tumor, seems to fit the bill better than anything else but I doubt I could persuade the doctor to schedule me in for an MRI...

Thank you in advance for any suggestions/advice. Means a lot.

Reply Flag this Discussion

3 Replies:

  • Hi,"The doctor I have visited has run some blood tests, TSH apparently normal, hormones apparently normal, although I do wonder how they can say my hormones are normal when I am not having menstural cycles because they have no idea if they are fluctuating at all or not, if they are in the 'normal' range but are constantly at that level then that is surely not 'normal'?"= unfortunately, the one of the main principles of the modern medicine is: if all tested numbers are within > range, they think that the person is healthy. What a shame! The modern medical "scientists" remind me computing machines with numbers in their eyes and integrals in their minds, nothing humane."From 'googling' (the thing doctor's hate the most!) I would think my symptoms are suggestive of a non-functioning pituitary tumor, seems to fit the bill better than anything else but I doubt I could persuade the doctor to schedule me in for an MRI..."= I doubt that you have a tumor, the probability of this is very low.Most of your conditions and symptoms, such as: amenorrhea, lack of sexual emotions, headaches, cold feelings, etc. are the classical set of symptoms which are united by definite principle well-known by good doctors, and can be cured successfully. I could tell you more, but I'm afraid, you don't have sufficient medical background, like the most of modern doctors, though.
    alltimatehelp 128 Replies Flag this Response
  • Reading your issues I can see a few possible problems (be aware that some medical issues commonly coexist with other medical issues). My first thought is you could have possibly polycystic ovulation syndrome (PCOS). That is the most common causes of infertility in women. It will cause very long menstrational cycles or no periods. You being skinny dont fit with PCOS, most PCOS women have trouble with being over weight. You also dont mention other symptoms of PCOS (eg problems with excessive hair growth) so Im not sure if your issue is PCOS. Being put onto the pill will just discuse what can be a serious issue such as PCOS. What you do need to do if you havent seen one already is see gynocologist and find out why you arent ovulating (you will probably be sent for an ultrasound on your ovaries). No periods mean you arent ovulating well. As far as doctors go.. Ive personally found they arent good with knowing what is correct as far as female hormones go. I have PCOS but my hormones were in range.. it took a specialist (gyno) to see that I had an issue thou with the hormonal ratios (one hormone compared to another hormone). No sex drive could well be just from the fact of not being well and you are fatigued. Hard to have a good sex drive if you have a headache and feel tired. I also suffer from the cold terribly and have been told that I have Reynold's Syndrome. (feet go purple & white, as do hands to a lesser extent). Raynauds is a symptom which may indicate someone has something else also going on as it commonly appears with some other illnesses women more commonly get. Irritable bowel syndrome often appears in those things too. I suffer from diarrhea on a fairly regular basis, Im thinking possible irritable bowel syndrome (IBS). (or you may have issues with a food). my tongue feels a little too big for my mouth & as teeth indentations on it, That issue can often be caused by a vitamin deficiency. Be aware that it is possible to have deficiencies which dont show up on blood tests as the levels are checked outside of cells and there can be intercellular deficiency (some issue with a vitamin getting into cells). This can commonly happen with Vit B deficiency. I know that above symptom Ive quoted is caused by a deficiency of one of the B vitamins (right now I cant thou think which B it is). The B deficiency indicated by your tongue and teeth indentations, will also cause fatigue. (i cant remember if B deficiency can cause headaches too)......... Anyway.. I see your issues as probably B deficiency, irritable bowel syndrome and also something else wrong with your hormones. I suggest seeing a gyno next. (it is also possible you have something like chronic fatigue syndrome but I dont think you can start to think that yet.. you have other things which need to be found out and treated first before coming to that conclusion). With treatment of the IBS (fibre supplements, probotics) , the hormonal issue and vitamin B problem you may find you are better.
    taniaaust1 2267 Replies Flag this Response
  • If the bowel issue is caused by you being sensitive to certain foods.. be aware that food sensitivities may also cause headaches and tiredness. It is unfortunate that many doctors will blame a persons weight when they cant work it out. They dont like to think of failing as far as diagnoses goes.
    taniaaust1 2267 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.