Discussions By Condition: I cannot get a diagnosis.

Tired of being so tired... and in pain!

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: chachibobinks
  • October 16, 2009
  • 03:36 AM

We've been working on this issue since April and I'm to the point that I feel like i'm in some bad episode of House!

I originially went in to see a doctor in April due to severe pain in my wrists, plus issues with my anxiety (I wasn't taking my meds due to an expired prescription), short-term memory, and problems with my speech. The doctor stated that the issues with memory and talking were due to an increased level of anxiety and clinically diagnosed me with carpal tunnel. Perfectly fine, right? He told me to wear this splint for 90 days, take Naproxen, go back and see him later. Only problem was that I would wake up with extreme pain and stiffness in the affected wrist, then the pain started to occur in the other wrist, forearms of both arms, shoulders, and neck. Then my knees. My ankles. My hips. Freaking everywhere. Due to some things I had heard about this doctor and my own feelings at that point, I went to a different doctor. Around this time I also started to feel heavy and fatigued on a daily basis and without sleep having any sort of effect. I have since been treated for extreme anemia, diagnosed with Raynaud's disease, and have been tested for rheumatory arthritis, lupus, carpal tunnel, broken wrist bones, and osteoarthritis. I'm currently on heart medication for the Raynauds which does help with problems I have with intolerance to heat & cold (which I didn't even realize was a disorder when the doctor noticed my lifeless fingers in a particularly cold exam room), but the pain, fatigue, and dragging continues. I'm not looking for anyone to save my life here, I just would love to see what you guys think. In all honesty, I expected lupus. I researched it a lot and it sounded right. I was shocked when they said I didn't have it so.. if it isn't lupus, what the heck is it?

So here are all of my symptoms! I don't know if these are related but I would hate to leave something out if it might keep you guys from having any ideas:

Anxiety; pain in joints, muscles, back, and head; iron deficiency; fatigue starting about 4 hours after waking; issues pronoucing words I previously had no problem with; mental bogginess & problems concentrating, also issues with saying the wrong words or names for things; issues with short-term memory (on a daily basis); little oblong red dots that have started to appear all over my body.. when pressed on, they go pale?; constant slightly ill feeling.

EDIT: Oh, also! I have a constant tremor that happens all throughout my body. Might be important.

Thanks!

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9 Replies:

  • Have you been checked for B12 deficiency? Simple bloodtest. How about fibromyalgia? MS? I would have these checked. I have many of the same symptoms and learned over the years that I have thse conditions. However, symptoms that were diagnosed as MS may be the result of my B12 deficiency that was discovered years later. Good luck. It took me many Dr's and lots of testing to identify these conditions. The fibromyalgia has knocked me out!
    LindaS 3 Replies
    • October 16, 2009
    • 04:14 AM
    • 0
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  • We've been working on this issue since April and I'm to the point that I feel like i'm in some bad episode of House! I originially went in to see a doctor in April due to severe pain in my wrists, plus issues with my anxiety (I wasn't taking my meds due to an expired prescription), short-term memory, and problems with my speech. The doctor stated that the issues with memory and talking were due to an increased level of anxiety and clinically diagnosed me with carpal tunnel. Perfectly fine, right? He told me to wear this splint for 90 days, take Naproxen, go back and see him later. Only problem was that I would wake up with extreme pain and stiffness in the affected wrist, then the pain started to occur in the other wrist, forearms of both arms, shoulders, and neck. Then my knees. My ankles. My hips. Freaking everywhere. Due to some things I had heard about this doctor and my own feelings at that point, I went to a different doctor. Around this time I also started to feel heavy and fatigued on a daily basis and without sleep having any sort of effect. I have since been treated for extreme anemia, diagnosed with Raynaud's disease, and have been tested for rheumatory arthritis, lupus, carpal tunnel, broken wrist bones, and osteoarthritis. I'm currently on heart medication for the Raynauds which does help with problems I have with intolerance to heat & cold (which I didn't even realize was a disorder when the doctor noticed my lifeless fingers in a particularly cold exam room), but the pain, fatigue, and dragging continues. I'm not looking for anyone to save my life here, I just would love to see what you guys think. In all honesty, I expected lupus. I researched it a lot and it sounded right. I was shocked when they said I didn't have it so.. if it isn't lupus, what the heck is it? So here are all of my symptoms! I don't know if these are related but I would hate to leave something out if it might keep you guys from having any ideas: Anxiety; pain in joints, muscles, back, and head; iron deficiency; fatigue starting about 4 hours after waking; issues pronoucing words I previously had no problem with; mental bogginess & problems concentrating, also issues with saying the wrong words or names for things; issues with short-term memory (on a daily basis); little oblong red dots that have started to appear all over my body.. when pressed on, they go pale?; constant slightly ill feeling. EDIT: Oh, also! I have a constant tremor that happens all throughout my body. Might be important. Thanks!Ask them to check your vitamin D levels....
    Anonymous 42789 Replies
    • October 20, 2009
    • 06:34 PM
    • 0
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  • Ask them to check your vitamin D levels.... hi have you ever had your Gamma GT Level ----- ( liver test )---liver can cause all the symptoms you speak of /detox the liver may be a good start,do you have sleeping pills at night if so try not use them for for a night or so and see how you feel .as the other post B12 deficiency can be another problem you may have: all the best
    charmaine petzer 176 Replies
    • October 22, 2009
    • 02:08 PM
    • 0
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  • I have had testing on everything including liver. As my Dr. says, "I am the healthiest sick person..". iI also have a few brain lesions that might be from possible MS or the previously undiagnosed B12 defiency. 'hi have you ever had your Gamma GT Level ----- ( liver test )---liver can cause all the symptoms you speak of /detox the liver may be a good start,do you have sleeping pills at night if so try not use them for for a night or so and see how you feel .as the other post B12 deficiency can be another problem you may have: all the best
    LindaS 3 Replies
    • October 22, 2009
    • 04:26 PM
    • 0
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  • This may seem silly, but have you considered that you might be gluten intolerant? I had all the same symptoms. SOOOOOO tired, body hurt all the time, memory loss, "foggy" all the time. Always feeling slightly sick. All my joints always hurt. Some days were worse than others. Then I started skipping periods. Then I noticed my hair falling out. I was tested for Thyroid, anemia, ect ect, docs didnt know what to do. I read about celiacs, and gluten intolerance, it can give you all your symptoms. Read about it, it may work. Ive been of gluten for 2 weeks now and ive been feeling soooo much better. Its worth a shot!!!Let me know!!!
    Anonymous 42789 Replies
    • October 22, 2009
    • 04:56 PM
    • 0
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  • I have some of your symptoms too. My body tremors stopped the day I started taking folic acid. I am also looking into Wilson Thyroid Syndrome. If you have a lower than usual constant body temp. it might be worth looking into. Do a Goggle search about Wilson's, very interesting, but more on the natural than mainstream med. side. Oh, I also forgot to add, I am very allergic to gluten. I have had the test done, but it comes back negaitve. If I eat any gluten I break out in hives, servere constipation, terrible fatigue, can't think straight, irritated and agitated, can't sleep well at night, numbness of the mind, etc. I eat mostly plain meat, fruit, and veggies. I also use Milo flour, Quinoa, Millet, Tapioca, and Arrowroot flours instead of gluten (wheat, oats, barley, and rye). It is a huge lifestyle change, but worth it.
    cozynana 39 Replies
    • October 23, 2009
    • 01:32 PM
    • 0
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  • Hello there ! I am wondering what country you live in ? because knowledge and treatments can vary widely in different countries.I live in Canada. I began with symptoms very similar to yours in about 1985. I also had quite severe memory and cognitive problems for a long period of time. My illness began more or less with sore throat and flu-like aching and pains all over body, and exhaustion, swollen and painful glands in neck, under arms. It progressed to severe memory/cognitive problems.In the long run, after much time, I saw an article in a magazine that said.."are you tired all time time, have memory problems, ache all over..etc" and then stated that I might have Myalgic Encephalomyelitis ( M.E.) also sometimes called Chronic Fatigue Syndrome. It is properly called M.E. in Canada and Great Britain. The U.S. and some medical professionals in Canada call it Chronic Fatigue Syndrome. ( the reason for that being that the two Governments want to trivialize the disease by naming it something that sounds like the person is just lazy...not true ) In Canada, Doctors who really know this disease, and in Great Britain, it is called Myalgic Encephalomyelitis. It is NOT the same thing as Fibromyalgia, they are two different diseases. Do you have pain in your right armpit and down that side, that is pretty constant ? If I know what country you live in I might be able to direct you to a facility for proper diagnosis. There is one in Ottawa, Ontario. That is where I was diagnosed and tested in about 1990. And using a SPECT test it was found that I did have some scarring/lesions on my brain. It is very important that you get help asap from a Medical Facility or Physician ASAP so you can be treated properly if you do have M.E. Too much time had passed for me between the time I was diagnosed and information being available as to the correct treatment. For years Doctors in Ontario had no clue how to treat this. They would treat symptoms but not the disease. Now they do know how to treat it.I can give you further information if you want. I need to emphasize that all of what you are stating is happening to your body is likely ''symptoms'' of the actual disease you have. If that is so, treating symptoms only will not cure the disease. Only being treated by a knowledgeable physician for the correct Disease, which is likely M.E.- Myalgic Encephalomyelitis, will actually make you better. I wish you a swift path to a recovery solution. We've been working on this issue since April and I'm to the point that I feel like i'm in some bad episode of House! I originially went in to see a doctor in April due to severe pain in my wrists, plus issues with my anxiety (I wasn't taking my meds due to an expired prescription), short-term memory, and problems with my speech. The doctor stated that the issues with memory and talking were due to an increased level of anxiety and clinically diagnosed me with carpal tunnel. Perfectly fine, right? He told me to wear this splint for 90 days, take Naproxen, go back and see him later. Only problem was that I would wake up with extreme pain and stiffness in the affected wrist, then the pain started to occur in the other wrist, forearms of both arms, shoulders, and neck. Then my knees. My ankles. My hips. Freaking everywhere. Due to some things I had heard about this doctor and my own feelings at that point, I went to a different doctor. Around this time I also started to feel heavy and fatigued on a daily basis and without sleep having any sort of effect. I have since been treated for extreme anemia, diagnosed with Raynaud's disease, and have been tested for rheumatory arthritis, lupus, carpal tunnel, broken wrist bones, and osteoarthritis. I'm currently on heart medication for the Raynauds which does help with problems I have with intolerance to heat & cold (which I didn't even realize was a disorder when the doctor noticed my lifeless fingers in a particularly cold exam room), but the pain, fatigue, and dragging continues. I'm not looking for anyone to save my life here, I just would love to see what you guys think. In all honesty, I expected lupus. I researched it a lot and it sounded right. I was shocked when they said I didn't have it so.. if it isn't lupus, what the heck is it? So here are all of my symptoms! I don't know if these are related but I would hate to leave something out if it might keep you guys from having any ideas: Anxiety; pain in joints, muscles, back, and head; iron deficiency; fatigue starting about 4 hours after waking; issues pronoucing words I previously had no problem with; mental bogginess & problems concentrating, also issues with saying the wrong words or names for things; issues with short-term memory (on a daily basis); little oblong red dots that have started to appear all over my body.. when pressed on, they go pale?; constant slightly ill feeling. EDIT: Oh, also! I have a constant tremor that happens all throughout my body. Might be important. Thanks!
    Peechdove 1 Replies
    • October 23, 2009
    • 03:06 PM
    • 0
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  • Im not a Dr but have my own list of probs simular to yours. I dunno what part of the country you are from but if in the Northeast you should be checked for Lymes. If in Mid-west you should be checked for Spotted fever. Both resulting from deer tick bites. I had every test out there before being dx'd with MS, Lupus and RA. Be persistant and if you do not like what that Dr has to say and you have that gut feeling he is wrong then please do yourself a favor and get another opinion. If they say Fibromayalgia it means they dont know what you have and dont wanna figure it out. There is no blood test for Fibro, it just a group of common symptoms that could be anything and the docs dont wanna waste their time figuring it out. Best of Luck and hope you feel better soon.
    Rosebud430 4 Replies
    • October 23, 2009
    • 04:45 PM
    • 0
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  • I am sorry to hear all your symptoms, This is not much help, I have the exact symtom as you explained. one doctor said reynoids, another Lupus, one doctor said I have a chemical inbalance nobody is straightout with me if sucks. Plus sometime nobody believes me, good thing my hands get flair ups in sun, I have been on blood pressure meds. Predisone, antibiotics I have taken more meds then a sick 90yrs women if you here anything let me know, I am 22 and grew up in brick NJ however I currently live in ocean beach CA. talk soon I hope Peacepropessers@yahoo.com good luck and stay strong.We've been working on this issue since April and I'm to the point that I feel like i'm in some bad episode of House! I originially went in to see a doctor in April due to severe pain in my wrists, plus issues with my anxiety (I wasn't taking my meds due to an expired prescription), short-term memory, and problems with my speech. The doctor stated that the issues with memory and talking were due to an increased level of anxiety and clinically diagnosed me with carpal tunnel. Perfectly fine, right? He told me to wear this splint for 90 days, take Naproxen, go back and see him later. Only problem was that I would wake up with extreme pain and stiffness in the affected wrist, then the pain started to occur in the other wrist, forearms of both arms, shoulders, and neck. Then my knees. My ankles. My hips. Freaking everywhere. Due to some things I had heard about this doctor and my own feelings at that point, I went to a different doctor. Around this time I also started to feel heavy and fatigued on a daily basis and without sleep having any sort of effect. I have since been treated for extreme anemia, diagnosed with Raynaud's disease, and have been tested for rheumatory arthritis, lupus, carpal tunnel, broken wrist bones, and osteoarthritis. I'm currently on heart medication for the Raynauds which does help with problems I have with intolerance to heat & cold (which I didn't even realize was a disorder when the doctor noticed my lifeless fingers in a particularly cold exam room), but the pain, fatigue, and dragging continues. I'm not looking for anyone to save my life here, I just would love to see what you guys think. In all honesty, I expected lupus. I researched it a lot and it sounded right. I was shocked when they said I didn't have it so.. if it isn't lupus, what the heck is it? So here are all of my symptoms! I don't know if these are related but I would hate to leave something out if it might keep you guys from having any ideas: Anxiety; pain in joints, muscles, back, and head; iron deficiency; fatigue starting about 4 hours after waking; issues pronoucing words I previously had no problem with; mental bogginess & problems concentrating, also issues with saying the wrong words or names for things; issues with short-term memory (on a daily basis); little oblong red dots that have started to appear all over my body.. when pressed on, they go pale?; constant slightly ill feeling. EDIT: Oh, also! I have a constant tremor that happens all throughout my body. Might be important. Thanks!
    Anonymous 42789 Replies
    • October 24, 2009
    • 04:01 AM
    • 0
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