Discussions By Condition: I cannot get a diagnosis.

Tingling/numbness with dizziness and swollen hands?????

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: Conanthebarbie
  • November 23, 2009
  • 05:56 AM

I've seen several doctors, but none of them can even seem to venture a guess on what might be causing these symptoms. I hope someone here might have an idea where I might start searching.

I have mild occurances of a strange "attack" several times a day. The best way to describe it is like I am being lightly electrocuted. My hands swell and turn bright red, my head and neck become numb and/or tingly, and I swoon a bit - mild dizziness. The event usually only lasts a couple of minutes, but it frightens me.

As I have been through a battle with breast cancer, this year, all my doctors attribute this to stress, but I'm just not buying it. This seems like it must be circulatory or spine related to me. I have recently had a complete hysterectomy and several operations on my kidneys. Last year I had a bi-lateral radical mastectomy and three lymphs removed.

Would early menopause contribute to something like this? Or could anything related to high bp or my kidneys cause it? An MRI of my brain and head shows no tumors, and my heart and lungs are healthy. I have taken the following chemotherapy drugs in the past: adriamycin and taxotere; and I am currently taking Herceptin.

I appreciate your help and suggestions.

- Conna

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13 Replies:

  • *bump post* No responses as yet. If you have any suggestions or similar symptoms please respond. My symptoms are getting worse, and my doctors are as confused as I am. I need to return to work to support my little girl. There has to be some clue as to what is causing this throbbing. Additional information: I have been weaned off of Zoloft in the past few months, as I am no longer in need of anxiety meds. Going off of Zoloft has given me my focus and energy back and seems to make the Herceptin side effects less marked. These episodes started around the time I began Herceptin (but may or may not be related in any way, as Herceptin has few side effects), and they were very rare. In the past two weeks they have just suddenly increased to every day several times a day. I cannot think of anything that has changed or could be causing them. I have not injured my neck, back, or head. I have not added any new medications (in fact, as my condition progresses, I'm taking fewer and fewer meds).
    Conanthebarbie 8 Replies
    • November 25, 2009
    • 00:32 AM
    • 0
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  • Could it be peripheral neuropathy from chemo? I hope you find your answers soon.
    chucksusanb 2 Replies
    • November 25, 2009
    • 03:36 AM
    • 0
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  • Could it be peripheral neuropathy from chemo? I hope you find your answers soon. Thank you for responding. I had never heard of peripheral neuropathy until you told me of it. With the limited information I can find on Google, it does sound similar to what I'm experiencing. I searched for my current chemo Herceptin and found one site that claims that it does indeed cause all of my symptoms "peripheral neuropathy" in about 9% of patients. It reccommends an EKG and and Echocardiogram of the heart to make sure the patient is not in danger. Both these tests are required of me every three months, however, so I have that covered. So far, my heart has been fine. I will bring this up with my Oncologist at chemo next week and see what he thinks we need to do next, if anything. If these episodes are temporary side effects of Herceptin and are not life threatening, I need to just find a way to cope with them until I'm done with the treatment. However, I want to be sure that's what this is and not something else more serious. Thanks again for your advice on this. I'll see what my doctor thinks of your suggestion. - Conna
    Conanthebarbie 8 Replies
    • November 25, 2009
    • 05:13 AM
    • 0
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  • Maybe MS? Though usually an MRI shows up the lesions but not always in everyone?
    Anonymous 42789 Replies
    • November 25, 2009
    • 09:14 AM
    • 0
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  • The electric shocks sound like symptoms of withdrawal off the zoloft. I take zoloft for a panic disorder and I get those "shocks" when I forget to take my medicine.I'm also going through similar weird attacks like the ones you describe. I'm 45 and had a hysterectomy at 38 but I still have my ovaries. I wake in the middle of the night with night sweats combined with tingling up my back and into back of my head. I had that combined w/ a panic attack the other night. I saw my Dr (menopause?) he ran blood tests and said no, not menopause. But I still feel tired, weak, sweating a lot, and just plain "wrong". He wasn't much help.
    Anonymous 42789 Replies
    • November 27, 2009
    • 05:22 AM
    • 0
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  • The electric shocks sound like symptoms of withdrawal off the zoloft. I take zoloft for a panic disorder and I get those "shocks" when I forget to take my medicine. I'm also going through similar weird attacks like the ones you describe. I'm 45 and had a hysterectomy at 38 but I still have my ovaries. I wake in the middle of the night with night sweats combined with tingling up my back and into back of my head. I had that combined w/ a panic attack the other night. I saw my Dr (menopause?) he ran blood tests and said no, not menopause. But I still feel tired, weak, sweating a lot, and just plain "wrong". He wasn't much help. They did begin shortly after stopping the zoloft. I hope that isn't the case because they've lasted about 3 months now, and that isn't a good sign if it is the zoloft. Also, based on what you've said, I wonder if what we're experiencing could have something to do with hormone withdrawal. The rest of your symptoms do sound exactly like menopause, and I'm betting they are hormonal, at any rate. If you're not attached to your doctor, I suggest getting a second opinion using his test results. He should not have stopped there, and there are good doctors out there who will keep researching for you. If you are attached to your doc, or if you cannot afford a second opinion, call and put the pressure on him to find out what's wrong. Hang in there.
    Conanthebarbie 8 Replies
    • November 29, 2009
    • 08:17 AM
    • 0
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  • UPDATE: The symptoms have stopped completely, and I have confirmed that it was Zoloft withdrawal. My doctor informed me that the regimen I was on to get off the anti-depressant was not gradual enough. I went from 100 ml to 50 ml, and then one every other day, and then I stopped. I should have done 25 ml each day for a week and then every other day for 2 weeks to avoid those symptoms. If you are having similar symptoms and are taking or being weaned off of any anti-depressant, see your doctor for a correction in your dosage. Note: After getting off Zoloft, I have found that my focus and ability to concentrate have increased dramatically. I have more energy, and I am already starting to eat less and lose weight. It was a good decision for me.
    Conanthebarbie 8 Replies
    • December 16, 2009
    • 04:32 AM
    • 0
    Flag this Response
  • Thank you for responding. I had never heard of peripheral neuropathy until you told me of it. With the limited information I can find on Google, it does sound similar to what I'm experiencing. I searched for my current chemo Herceptin and found one site that claims that it does indeed cause all of my symptoms "peripheral neuropathy" in about 9% of patients. It reccommends an EKG and and Echocardiogram of the heart to make sure the patient is not in danger. Both these tests are required of me every three months, however, so I have that covered. So far, my heart has been fine. I will bring this up with my Oncologist at chemo next week and see what he thinks we need to do next, if anything. If these episodes are temporary side effects of Herceptin and are not life threatening, I need to just find a way to cope with them until I'm done with the treatment. However, I want to be sure that's what this is and not something else more serious. Thanks again for your advice on this. I'll see what my doctor thinks of your suggestion. - ConnaHey there!!Call a home health company that does skilled care and aks to speak to a nurse. They treat peripheral neuropathy. A few companies specialize in the treatment and care. Not sure if I can mention the names here.
    Anonymous 42789 Replies
    • December 17, 2009
    • 03:39 AM
    • 0
    Flag this Response
  • Have you had your thyroid/adrenal gland levels checked? Regular doctor likely will not do the proper tests, but an endocrinologist/specialist will. I had a whole slew of symptoms...all the tests kept coming back "normal", but I knew better! Finally, went to a specialist and found out that my thyroid was all out of whack! I was suffering adrenal fatigue (where your body has been under so much prolonged stress, that basically you deplete your requisite levels of hormones/chemicals/etc). I had done a lot of research online and checked out my symptoms. Figured it was either perimenopause (I'm 32 and otherwise healthy), or something with my thyroid. I was SO glad to find out what it was and get some thyroid medicine for it. It's like I'm a new person now! :) As for the original poster's symptoms, sorry, but I have no idea. I'm currently experiencing severe/frequent hand/fingers numbness too. I am going to check with my thyroid specialist tomorrow, just to see what he might think.Good luckThe electric shocks sound like symptoms of withdrawal off the zoloft. I take zoloft for a panic disorder and I get those "shocks" when I forget to take my medicine.I'm also going through similar weird attacks like the ones you describe. I'm 45 and had a hysterectomy at 38 but I still have my ovaries. I wake in the middle of the night with night sweats combined with tingling up my back and into back of my head. I had that combined w/ a panic attack the other night. I saw my Dr (menopause?) he ran blood tests and said no, not menopause. But I still feel tired, weak, sweating a lot, and just plain "wrong". He wasn't much help.
    Anonymous 42789 Replies Flag this Response
  • *bump post* No responses as yet. If you have any suggestions or similar symptoms please respond. My symptoms are getting worse, and my doctors are as confused as I am. I need to return to work to support my little girl. There has to be some clue as to what is causing this throbbing. Additional information: I have been weaned off of Zoloft in the past few months, as I am no longer in need of anxiety meds. Going off of Zoloft has given me my focus and energy back and seems to make the Herceptin side effects less marked. These episodes started around the time I began Herceptin (but may or may not be related in any way, as Herceptin has few side effects), and they were very rare. In the past two weeks they have just suddenly increased to every day several times a day. I cannot think of anything that has changed or could be causing them. I have not injured my neck, back, or head. I have not added any new medications (in fact, as my condition progresses, I'm taking fewer and fewer meds).This is what kind of happens to me. My hands turn dark purple when they are down and swell to where i cant really control them....they twitch and are stiff. The doctors dont know what it is i had to get an MRI of my brain and spine. I have got really dizzy to the point to where I fall down. my hands tingle and I get shocks in certain fingers and in my arm if i touch my elbow. Maybe this helped.
    Anonymous 42789 Replies Flag this Response
  • UPDATE: The symptoms have stopped completely, and I have confirmed that it was Zoloft withdrawal. My doctor informed me that the regimen I was on to get off the anti-depressant was not gradual enough. I went from 100 ml to 50 ml, and then one every other day, and then I stopped. I should have done 25 ml each day for a week and then every other day for 2 weeks to avoid those symptoms. If you are having similar symptoms and are taking or being weaned off of any anti-depressant, see your doctor for a correction in your dosage. Note: After getting off Zoloft, I have found that my focus and ability to concentrate have increased dramatically. I have more energy, and I am already starting to eat less and lose weight. It was a good decision for me.Thank you for your post!! I just got on here to search for what might be causing my hands to feel that same way. I have stopped zoloft for about 1 week now and this explains it.
    Anonymous 42789 Replies
    • October 17, 2010
    • 02:19 AM
    • 0
    Flag this Response
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  • Have you had your thyroid/adrenal gland levels checked? Regular doctor likely will not do the proper tests, but an endocrinologist/specialist will. I had a whole slew of symptoms...all the tests kept coming back "normal", but I knew better! Finally, went to a specialist and found out that my thyroid was all out of whack! I was suffering adrenal fatigue (where your body has been under so much prolonged stress, that basically you deplete your requisite levels of hormones/chemicals/etc). I had done a lot of research online and checked out my symptoms. Figured it was either perimenopause (I'm 32 and otherwise healthy), or something with my thyroid. I was SO glad to find out what it was and get some thyroid medicine for it. It's like I'm a new person now! :) As for the original poster's symptoms, sorry, but I have no idea. I'm currently experiencing severe/frequent hand/fingers numbness too. I am going to check with my thyroid specialist tomorrow, just to see what he might think.Good luckHave your B12 levels checked.
    Anonymous 42789 Replies
    • October 19, 2010
    • 02:21 AM
    • 0
    Flag this Response
  • I have been experiencing symptoms since my 20's
    I found the answer to my problems with a dr who does cranial sacral work. He has basically brought me back to a healthy life ! No I don't take any herbs , I didn't buy anything to help other than going to see him he does hand adjustments to my spine and presses all over my body, at first these areas were so sensitive it hurt I almost cried. Now I feel great lost 19 lbs and no exercise I found myself .
    He suggested to me to stop eating chicken it didn't agree with. My body. And drink more water. And hug trees , which has actually helped in the weight loss, don't knock it till you tried it , no I'm not a hippie , hug a tree for 15 min tell me u don't feel and electrical connection , I think this has also helped in my healing and of course meditation . Check your eyeballs after meditation the color is more vibrant , self
    Anonymous 1 Replies
    • February 15, 2015
    • 10:11 PM
    • 0
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