Discussions By Condition: I cannot get a diagnosis.

Tingling in hands, feet and now face

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: amayameda
  • January 3, 2009
  • 09:04 PM

Hello all. I'm a 22 year old female. Sorry this is such a long post, but I wanted to be as detailed as possible.
For about six months now I've been having a recurring problem with this tingling/numbness feeling in my hands and feet that would last several hours. You know the stinging you feel when you touch something REALLY cold or run your hand under really hot water? It feels like that, but without any pain. Actually, there's no pain, temperature or color change, or loss of sensation. I would get it in my hand and feet, often starting in one small circle and then expanding to envelope my entire hand and sometimes even part of my arm. It was very strong and alarming. In the beginning, it always happened when I was taking a hot shower or moving around in a hot environment. It got to the point where I could set my watch by it.

Then I started having this problem with heat causing pain in my fingers, usually my thumb and pointer finger. If they came even CLOSE to anything hot, it would feel as though I had badly burned them, and would remain painful (just like a burn) for hours. These episodes would usually happen during or after the tingling. I wouldn't be able to operate a lighter or even put out a cigarette without pain.

Then the symptoms stopped. I didn't have any problems for about two months. The tingling has come back again, but its different now. The sensation isn't nearly as strong, and it will just fade in and out for most of a day. Sometimes I'll only notice it for five minutes at a time. I thought maybe it was going away, but now it's spreading. I've started getting it in my face. Once in my cheek, and once in my ear. There are other problems that I think might be related, but I don't know for sure: Extreme fatigue, lethargy, mild muscle weakness, heat intolerance, ofted debilitating pain in my mid and lower back, sciatica (I'm guessing on that one. They're sharp, pulsing pains that will shoot through a leg or an arm. Hah, there goes one as I type.)

I've had a number of tests, and have ruled out: Raynaud's phenomenon, pinched nerve, herniated disk, Thyroid conditions, most likely anything that can be ruled out by blood such as deficiancies. I also had a brain MRI, NO CONTRAST, and a spine MRI with contrast.

The brain MRI showed nothing conclusive, but I really don't know where or what my neurologist was looking for. It's very rare that he would tell me ANYTHING. He would spend about five minutes with me, and then shove me out the door before I could even ask questions. He wouldn't tell me what he thought, why he was doing tests, what he was looking for, details on the results, anything. The only helpful thing that I found out was that the spine MRI showed that the muscles around my spine are constantly spasming involuntarily, which at least explains my back pain. When he found the spasming, he told me to do some stretches and have a nice life. I asked him if I should come back if that didn't help, and he said to go see someone else. Needless to say, I'm not very happy with him, but at least he ruled out alot.

Does anyone have any ideas at all? I don't know what to think anymore. I don't want to be a worry wart, but I also don't want to be surprised with a brain tumor or something when I'm 35!

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3 Replies:

  • Please, anybody? I feel so alone on this. Also, there's something I forgot to mention. When the tingling started in my face, I started having problems with light. Sometimes when I'm looking at something or someone with a light source somewhere behind them, its like my eyes cant decide what to look at. The person or thing will get really dark, and then visible, then dark again. Its like my pupils are dilating and restricting constantly.
    amayameda 6 Replies
    • January 6, 2009
    • 02:23 AM
    • 0
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  • Just looking online for what I think is a blood clot and your post caught my attention. some of the sensations you have described remind me of some of mine that I have from another condition. You sound like you are not comfortble with your doctor sharing information with you. Have him/her take the time. that is why we go to them. sometimes I think doctor forget we are humans with real emoitons. (sp) and unless we gently push the questions out there we walk away from our appointments with more worry and not enough information. You would be suprised at the response you get. Make a list of questions before you arrive for your appointment. Maybe you will get all of them answered, but you defintly will get some answered. As for your symtoms that remind me of mine, it sounds like your neuro has checked you for alot of things. Depending the MRI they did , brain, spine etc... the contrast no contrast and your symptoms sound like he was testing you for Multiple Sclerosis. He could be looking for other things too... but some of your symptoms in regards to sensation, tingling and muscle weakness are similar. If you had the MRI and he sent you away without a DX then you can relax a bit about it being MS. However, sometimes the things they look for are not found by the MRI. I also get sensations of tingling on my face that go away along with a mulititude of other things. some of my tingling and pain sensations have NOTHING to do with the DX they gave me of MS, but are Nerve related from muscles tightning and rubbing and car accidents etc... None of this really gives you an answer to your question - but I hope it helps you think of other things. Talk to your Neuro, tellhim/ her you have questions and if you still are not getting answers that explain what he is testing for and why and what he - she is eliminating get a new doctor. Best of luck. I probably won't be back to respond this was just a fluke.
    Anonymous 42789 Replies
    • January 6, 2009
    • 05:21 AM
    • 0
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  • I have the same symptoms, plus a few more. I have Multiple Sclerosis. It's an auto-immune disease that causes a whole range of various symptoms. You may want to research it. Even though your MRI came out non-conslusive you may want to see a Neurologist that treats Multiple Sclerosis patients and is familiar with the wide range of symptoms. My MRI was with and without contrast . The ones with contrast showed lesions on my brain & spine which brought me my diagnosis.I wish you of luck !!Cara
    Anonymous 42789 Replies
    • January 7, 2009
    • 03:41 PM
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