Discussions By Condition: I cannot get a diagnosis.

Tingling, Can't speak, Can't Move

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Karlipants
  • December 6, 2010
  • 11:38 PM

Hi Everyone,

I would love to either find someone who knows something about what happened to me, or had the same experience.

I am 24 years, and have had what happened to me occur two times in my life exactly 10 years apart.

I was 9 the first time it happened. I was sick for about 2 weeks with the flu and just as I thought I was getting better something terrible happened. I was sitting in my living room and noticed that I was starting to feel very weak and unable to move properly. I stood up to go tell my older brother what I was feeling and walked/fell right into a table that was on the side of the couch I was sitting on. So I sat down and immediately started crying due to being very afraid. My brother came running in and told me to stop crying, but the crying was uncontrollable... I really wanted to stop, but I couldn't. Not because I was afraid anymore, it was just impossible to stop the tears. So I used all of my strength to stand up and go into my kitchen, I grabbed a paper towel and a pen, but I couldn't write anything down.. and I couldn't talk. At the same time, my body was tingling everywhere... It was so strange. It had passed that day, but the next morning came back.. and my mom rushed me to the hospital. At the hospital, I had catscans and every test you could think of. The doctors came up with nothing.

I was very afraid of this happening again later in my life, but everyone was convinced that it was a one time deal.

A few years ago, when I was 19 the same thing happened. Couldn't talk, couldn't move, couldn't walk. My room mate had to call an ambulance to come pick me up and take me to the hospital... Where they proceeded to do a lot of other tests that I hadn't received when I was 9.. Including a spinal tap. Again I received a catscan, MRI, and all the bloodwork a hospital can do. The doctors came up with nothing.

I'm so scared. I live with this every day.. I don't know if it's ever going to happen again, because it always happens at strange times...

Again the symptoms are

Complete numbness of the entire body with a tingling sensation... Like when your feet fall asleep

No speech.. Can't move my mouth or tongue to talk or express what i'm thinking or feeling.

Can't walk... My body is so numb that I can't feel anything I do and I don't have the strength to pick myself up and move

I can think clearly, which is the scariest part... Because my body is doing something that I can't express.

It has hospitalized me twice, and i've come out diagnose free.

Does anyone have any clue what this is, or has it ever happened to you?

I need some support.



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3 Replies:

  • It sounds like a "mini stroke" or Transient ischemic attack. They usually effect only one side of the body, but they can definitely effect both sides. They basically are strokes that cause no permanent damage and won't show up on MRI or CT scans, but can sometimes serve as a warning for an actual stroke. Here's a good link about them if you want to read up- http://www.mayoclinic.com/print/transient-ischemic-attack/DS00220/DSECTION=all&METHOD=print Mitral stenosis is one of the things that young people can have that causes strokes in them. I've recently had two young acquaintances of mine, 21 and 28 have actual strokes due to Mitral stenosis. Both recovered well.
    Anonymous 42,789 Replies
    • December 7, 2010
    • 05:10 AM
    • 0
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  • I'm no doctor, but these episodes sound very much like migraines to me. (Note: migraine does NOT have to involve a headache.) Difficulty speaking, difficulty walking, clumsiness, brain fog, and mood swings are some of the possible symptoms of the first stage of a migraine. Tingling / numbness is one possible symptom of the second stage of a migraine. There are also two other stages, but not all migraineurs experiences all four stages. Come to think of it, I think one book I read even described a patient whose migraines involved being unable to stop crying even though they weren't really feeling sad - let me know whether you want me to try to search for where (and if) I read that. The fact that your episodes happen "at strange times" is also consistent with migraine. Migraine can be triggered by hormones, certain foods, exercise, certain sensory inputs, etc. However, typically one or two triggers acting alone can't set it off; it usually takes quite an abundance of them. This is a good thing, but the lack of correlation between a SINGLE trigger and the occurence of the migraine means it's kind of tricky for the sufferer to figure out why it sometimes happens and sometimes does not. Unfortunately there are far too few doctors who know a lot about migraine, and far too many who have been taught inaccurate information about the condition. So if you want to learn more about it you should probably either find a doctor who specializes in migraine or else read some books written by such people. I would be interested to hear whether you think this is a possiblity.
    Walker12 30 Replies
    • December 7, 2010
    • 09:59 PM
    • 0
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  • Its true that it could be a migraine, seriously they can do that to you. But, you need the doctor to diagnose that for sure. the ER can diagnos acute things and handle injuries and such, but for a problem like this you need to see a specialist. try to write down every detail you remember no matter if you think it is related or not. once you have that all written down see the best neurologist you can find. i went through 3 before i found a good one, and he is amazing! he is a freaky genius!
    safyreshel 8 Replies
    • December 8, 2010
    • 08:49 AM
    • 0
    Flag this Response
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