Discussions By Condition: I cannot get a diagnosis.

tick borne problem

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: horsinaround1234
  • February 12, 2007
  • 02:45 PM

:( I'm having problems with a tick bite I received in April 06, I was bit in the head and a friend whose a nurse removed the tick, which was believed to be a deer... That day my lower skull bone and nyodes in my neck on the right side hurt and were aching. I went into the doctor that day and they said it had abcesed. They gave me the megadose of Doxy, one pill to ward off lyme if I had it. Anyway a few weeks later and still my head hurt, my neck and shoulder were stiff, and the nyodes were swollen, they kept checking my white count but nothing. They gave me a four week supply of Doxy.Months later and I still have stiffness in my shoulders and arms, everyday I have aching in my head, and headaches, which don't feel the same and an occasional migraine. When I had my first migraine it was very painful on the left top side of my head and now I have a warp or wave in the skull bone that was not there before. I've also been getting little bumps on my head and one that keeps recurring on my back that itch and break open and come and go in the exact same spot.
Again we do blood tests; no rise in the white count but possive in the RA and OA you should be 1-20 and I'm 80. I've looked up different tick borne diseases and keep coming up with Tularemia, but everyone says the Doxy, would take care of that, or I would be dead by now. Last night both arm pits had a marble size bump in the center that was very sore and hurt when I put my arms against my sides. I can't get referred to a infectious disease doctor because they won't see you unless your white count is elevated. HELP!!!!!

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6 Replies:

  • http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/31360.htmlCheck that out, it may have your answer. Honestly, the correct treatment (as far as I know) for Lyme disease is a month? long dosage. It may have changed. I am not a doctor, but live in a state that's bad for lyme disease and rabies!If you don't think your doctor is 100%, make sure you get a second opinion. Remember, it's your body and health.. and always treat doctors like auto mechanics.
    Anonymous 42789 Replies
    • February 12, 2007
    • 03:14 PM
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  • The bumps under your arms are your swollen lymph nodes... Question--did you have someone at the hospital shave the spot on your head where the tick was, and make sure the head was completely gone? If your friend didn't use a credit card (or a firm card of some sort) then the head and all the gross stuff that's on/in a tick could still be embedded in your scalp. And you should probably be treated FOR Lyme, not to prevent it. These long term symptoms scream Lyme Disease.
    deadlysauce 67 Replies
    • February 12, 2007
    • 08:22 PM
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  • Hi thanks for answering.....I did get the month long treatment, written as four weeks of Doxy. but it still didn't help that's why I think it's something else from the tick.
    horsinaround1234 3 Replies
    • February 12, 2007
    • 10:34 PM
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  • We looked the tick over and all parts were there also it hurt in the nyodes before we even got the tick out so it already spit its poison in me.
    horsinaround1234 3 Replies
    • February 12, 2007
    • 10:47 PM
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  • There are lots of co-infections to be considered with a tick bite and they all need different meds.Most common are Bartonella, Rocky Mountain Spotted Fever, Babesia, Ehrlichia. All tests for these infections including Lyme are very very poor. The CDC states that Lyme is a clinical diagnosis based on symptoms because testing is so unreliable.Lyme disease is the fastest growing infectious disease in North America and it now outpaces AIDS.My daughter has been on antibiotics for 8 months and is still struggling with the disease. The Lyme bacteria is able to evade the abx by turning into cyst form in the blood and this is why it can take so long to treat.Do not go by the guidelines put out by the IDSA (Infectious Disease Society of America) as they have changed the guidelines for diagnosis and treatment and have made it very hard to get treated properly. The Connecticut DA's office has launched an investigation into the guidelines and are investigating the doctors for a conflict of interest.Proper diagnosic and treatment guidelines can be found at www.ilads.org.These 2 websites will help you: www.canlyme.com or www.lymenet.org. They both have up to date research, forums, lists of symptoms and will help you to find a Lyme Literate doctor (LLMD).Don't give up on Lyme or a related bacterial infection. It will only get worse. My daughter went 3 years undiagnosed and with 30 symptoms. Even then no one could recognize the disease. Some days she can barely walk because of the joint pain and sometimes she can't remember what she had for breakfast an hour earlier.Good luck!
    Anonymous 42789 Replies
    • February 13, 2007
    • 00:54 PM
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  • Thanks for the information and sites...the more I read the more depressed I get, I might have to take a drive to MN. to get better help.Good luck on your end, where did you go to get good help? I'm from WI. and there isn't anyone here that I can find so far. Thanks again.
    horsinaround1234 3 Replies
    • February 15, 2007
    • 00:08 AM
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