I'm hoping that someone here can give me some ideas and direction for when I talk to my new doctor.
I am an otherwise healthy woman, 39 years old, exercise twice a week (new regimen). 5'2" and 200lbs. Three years ago I weighed around 120lbs and had maintained that weight my whole life.
I have been hypothyroid for years, fairly well controlled by medication until recently (TSH between 2 and 5 on levothroid), and relatively asymptomatic. I was also recently diagnosed with PCOS (polycystic ovarian syndrome) - something the doctor says I would have had my whole adult life. She prescribed progesterone pills, which help my symptoms somewhat. However, my testosterone is still very high, plus my thyroid is no longer well-controlled, so I am being sent for an endocrinologist consult.
In the spring I had terrible stomach pains and I "knew" it was related to the levothroid. I was also feeling very weak - it's hard to describe, but I'd go to move, or pick up something light, and suddenly I felt like my muscles weren't capable of doing the work.
At the time, my TSH also dropped to nearly 0.0 - something it's never done. I felt so bad I asked the doc to hospitalize me until On a whim, I stopped taking my levothroid. Within two weeks I had no stomach pains and - interestingly - I felt great for the first time in years.
I wasn't tired. I wasn't sluggish. I wasn't slightly depressed. Tons of energy. And I started losing weight.
My TSH promptly went up to 91!! But with it "outrageously high" (my doctor's words) I felt wonderful.
The doc put me on synthroid 125mcg - slightly different from levothroid and a little less (I had been on 150mcg). He said that no matter how bad I feel taking it, I NEED to take it. So I humored him - and within two weeks all symptoms returned. Exhausted, run down, gaining weight, dry itchy skin, and just generally feeling ill... PLUS my stomach was hurting so badly that I just couldn't take any more. Knowing that I'll see the endocrinologist in a few weeks, I stopped taking it again.
BANG! I feel wonderful. No stomach pain, no lethargy, and I've effortlessly lost nearly 7 pounds. In fact some days I feel like I've got a little bit too much energy.
The only troubling symptoms I'm having are extremely dry eyes (which I know is a hypothyroid symptom) and extreme sensitivity to sunlight (I got a bad burn in 30 minutes with SPF45 sunscreen yesterday). I've never been photosensitive before... in fact, I used to go all summer without getting a significant tan, let alone a sunburn, and that with being outside every day!
I'm not currently taking any meds or supplements except a daily multivitamin, and I take the progesterone for the first twelve days of each month.
So my two questions are this:
Has anyone ever heard of this weird "opposite" effect with TSH levels before? The levels show extreme hypothyroidism but my body feels like it might be a bit hyperthyroid!
Could the sudden sun sensitivity be connected to either the TSH or testosterone levels? If not, any idea what could be causing it?
Thanks for any help, suggestions, or direction!
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