Discussions By Condition: I cannot get a diagnosis.

Thrombocytosis and Endometriosis

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • December 28, 2006
  • 02:11 AM

Hello. I am a 25 year old female with multiple issues. I have recently been diagnosed with Thrombocytosis (elevated platelet count). My doctors don't know if it is Primary or Secondary. They suspect it is secondary, due to an inflammatory disease, auto-immune disease, or cancer. I have a variety of symptoms such as chronic muscle spasms, dizziness, numbness in my hands, cold feet and hands, slightly low blood pressure, and a fast heart rate. I have been tested for Rheumatoid arthritis which was neg. However I was diagnosed with Endometriosis years ago. Does anyone know if any of these symptoms could be connected? Is Endometriosis considered an inflammatory disease?
:confused:
Thank you for reading.

Sincerely,
scared and frustrated

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8 Replies:

  • I'm so sorry you are experiencing so many problems. I had similar problems and found out it was due to an infected cyst on on my cervix. This caused my immune system to be "on alert" 24/7 for so long that I, too, experienced auto-immune problems.Make sure you are getting adequate vitamins/minerals in your diet. Potassium and magnesium in particular.Also, don't rule out allergies: Allergies to food can cause problems, as well as chemical allergies. It may sound crazy, but try drinking purified bottled water to see if any of the chemicals in the local water are causing your problems.Don't rule out depression, as this can cause aches and pains also. I hope you are doing better. I will pray for you to be healed.
    Anonymous 42789 Replies
    • December 28, 2006
    • 09:31 PM
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  • I just had excision surgery for Endometriosis. I thought that the surgery would cure all my problems, but apparently not. I myself am having alot of problems too. Everything such as: dizziness, horrible fatigue, headaches, nausea, muscle cramps, sensitivity to cold, hot flushes (they have already ruled out menopause---I am only 33 years old), & several other problems. I do not know if they are all related or not. I know that from what I have read on the internet they think that Endometriosis might be Autoimmune related. So, you might have some sort of Autoimmune problem. Of course, it could be very hard to find out. I have done quite a bit of research & there are so many (Lupus, Rheumatoid Arthritis, Thyroid problems (such as Addison's disease), Celiac disease. And, from what I have read (it is horrible to say) women that have had Endometriosis are more succeptable to these problems. Not trying to scare you. Just trying to inform you.
    Anonymous 42789 Replies
    • January 6, 2007
    • 01:20 AM
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  • On the endo - it is too much estrogen compared to progesterone. The ratio is what counts, not the amounts. If the ratio can be corrected, or balanced, and it can in MANY cases then lots if not all of the problem will go away.If you repost and want to tell you location, perhaps I can refer you to a good local natural health pro in your area who can help you deal effectively with this. Also can help platelet counts, too.
    Anonymous 42789 Replies
    • January 6, 2007
    • 05:12 AM
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  • wow, i am having some of the same symptoms. i have been tested for thyroid issues and lupus and it was all normal. don't know what it it. i do have PCOS so i do have problems with my cysts. even though i haven't been diagnosed with an auto immune disease, i really feel that is what is going on. sometimes i think doctors just go with whatever cause they just don't know themselves, or don't care to dig deeper for the problem. i wish you all the best. and if you know of a cure for hot flashes, please post it on this site, cause they are horrible. and i am 32 and not in menopause either. thanks.
    Anonymous 42789 Replies
    • January 6, 2007
    • 06:10 AM
    • 0
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  • PCOS is a malfunction of the hypothalamus gland, which is in the brain. An article in the British Medical Journal reported this about 18 months ago. The hypothalamus, pituitary, thyroid, adrenals and ovaries all interact with each other. Typical PCOS treatment involved treating the ovaries, which is where the symptoms are, not the true cause. Thyroid test is often the TSH test, which is measuring hormones from the pituitary, not the thyroid. There are more ways to test - T3, T4, and more that can give a more accurate picture. Also, there are some very effective ways to help the hypothalamus function better. Natural health pros with experience treating hormone disorders with Standard Process or Systemic Formulas could be of great help.
    Anonymous 42789 Replies
    • January 6, 2007
    • 02:42 PM
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  • Well I had endo for many years I finally had the last ovary removed. But I am having other issues now. headaces, numbness in hand arms and now face. I been tested for lyme,ms,thyroids, and a bunch of other stuff
    Anonymous 42789 Replies
    • January 11, 2007
    • 08:01 AM
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  • On the endo - it is too much estrogen compared to progesterone. The ratio is what counts, not the amounts. If the ratio can be corrected, or balanced, and it can in MANY cases then lots if not all of the problem will go away.If you repost and want to tell you location, perhaps I can refer you to a good local natural health pro in your area who can help you deal effectively with this. Also can help platelet counts, too.Perhaps that's true. I've tried that without any luck though. (Hormones levels were tested and RX issued) I'm not sure if I even have endo anymore (after hysterectomy) but the damage has already been done. I have/had endo so bad that it has cause so much damage which has resulted in radiating pain...lower back, hips, entire pelvic area, and entire legs as well as a numb area on upper outside of my leg. I continue to take hormones due to menapausal side-effects. Good luck to all!
    Anonymous 42789 Replies
    • January 13, 2007
    • 07:22 AM
    • 0
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  • I, too, have endometriosis as does my mother. My father was diagnosed with essential thrombocytosis almost 20 years ago. I've been on oral contraceptives since age 15 due to fainting spells and extraordinary pain during my cycles and I've had laparoscopy, as well. Thankfully my fertility was not affected, which my previous OBGYN noted was likely due to the early intervention (I have two beautiful kids). My mother's condition wasn't discovered until after she had me--during routine gall bladder removal surgery they noticed endometrial lesions throughout her abdominal cavity (btw: I am the product of her only pregnancy after years of fertility meds and 6 abdominal surgeries). My point? I don't think the medical community really has a handle on how the two conditions are related--if they're related. It would be interesting if someone did a study of confirmed patients of both conditions. So far, my blood tests and my children's have shown normal platelet counts and my daughter is too young to demonstrate symptoms of endometriosis. At this point, my concern is for their health and determining if there's any way to intervene early and reduce the severity of the symptoms of either disease. Both of my OBGYN's have noted hormonal imbalance as a likely cause for endometriosis, though. From my treatment experiences hormone-altering meds like the bc pill do not guarantee relief. Pregnancy helps for a while (as long as you go right back on the pill), but it seems like the only potential cure is a hysterectomy. Wouldn't it be nice if there was someway to treat both illnesses with the same methods for those of us who have or are at risk for both?
    Anonymous 42789 Replies Flag this Response
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