Discussions By Condition: I cannot get a diagnosis.

Throat/chest symptoms for a year and still no answers - Help!!!

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: nellienuts
  • June 22, 2008
  • 08:39 PM

Hi, I'll try and keep this short but like everybody on here would appreciate any advice or suggestions to what is going on as I am at my wits end!

July 07 - severe sore throat, got antibiotics as felt very poorly. kinda cleared up but was tired for a few weeks.
August 07 - minor cardiac ablation for a separate minor heart issue
Sept 07 - 1 week trip to Turkey to recover (maybe worthy of note but don't know)
Oct - tiredness, throat still annoying, glands swollen and just feel off. Realise had been probably since July. Doctors did series of the usual tests - all negative
End Oct - still the same, more tests. Test for Glandular Fever came back borderline, follow-up test 10 days later negative.
November/December - feel dreadful - sore throat, fatigue, weepy, glands swollen, chest cough, hoarse etc. 2-3 weeks off work and loads of rest. (Presumed this was the virus hitting peak? - if that's what it is)
End Dec - still fatigued and very swollen glands in neck and behind ears. Doc ordered more rest and a course of antibiotics to try and clear glands as thought just a viral thing lingering.
January 08 - still all symptoms as above (glands, cough, hoarse etc) but skin starts to get very itchy too, especially in the chest, neck and ear areas. Difficult to swallow although wouldn't say severe, more uncomfortable. Earache starts. Try anti-histamines for itchiness.
Feb - back to docs - referred to General Medicine consultant to check out as now concerned. Prob viral but docs want to be careful.
Apr - GM consultant did tests although said probably viral just lingering. Results came back with shortage white blood cells so referred to haemotologist.
End April - night sweats/chills start in addition to rest. Earache getting bad too. Nauseous also.
Start June - haemotologist - bloods normal, notes chronic hoarseness and is of concern when hears long list of symptoms so recommends to ENT (Ear Nose Throat specialist in UK)
Mid June - went to GP to try and get advice in interim - prescribed drops for ears as apparently very sore looking after examination, different anti-histamines for itchiness and anti-acid drugs for nausea.
Present - waiting on ENT appointment, earache, hoarseness, sore throat, no appetite, difficult to swallow, symptoms not easing, if anything progressively getting worse (but slowly).Points you may need to take into consideration -
I was bulimic for 10 years but it has been under control for the last 2. Only a minor episode about once a month if even. Has this abuse come back to bite me, but in what way? (Yes, I've done the research)
Average drinker but did like to party in my younger days. Past year about a bottle of red wine a week if even. Blow-out about once every few months.
Non-smoker (odd social one years ago)
Female - 33 years old, no children
Good diet, used to exercise regularly before this all happened.


Can anybody give me an idea as to what is going on? Infection in the larynx has been suggested, but why is my chest still got a raspy cough?

If viral why are symptoms getting worse? Can totally accept post viral fatigue but this is just so different as symtpoms plainly still there.

Of course, we all do the multiple symtom checker and to be honest all the diagnoses are pretty serious. If that's to be, cest la vie and all that but I also know not to read into those things too much as they can be simply confused with similar but less serious diseases.

Can anybody help? Or do I just need to start putting the pressure on to get my appointment with ENT as soon as? Apparently it is policy in the UK to see chronic cases of hoarseness within 6 weeks of being referred but I'll believe that when I see it!

Any suggestions for relief? The earache, hoarseness and throat symtpoms are the most depressing at the moment...

Sorry for the life story!


Many thanks xo.

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5 Replies:

  • If viral why are symptoms getting worse? Can totally accept post viral fatigue but this is just so different as symtpoms plainly still there. After a year of all this, obviously havent got in normal virus going on there unfortunately. I hate to say this but I do think it's likely that you have chronic fatigue immunity dysfunction syndrome (CFIDS) also called chronic fatigue syndrome. It's quite classical for CFIDS to be causing "flu like" or "virus like" symptoms. (It's how it started in myself with the sore throats and glands going up, I also had fever. It took over 5 mths of being told I kept on getting a virus (on and off) before I found out i had CFIDS). CFIDS can have either a rapid onset or a slow onset..so in your case if im correct, "slow onset" CFIDS. Sometimes it does clear up within 2-3 yrs if you are lucky. CFIDS can be progressive with more and more symptoms coming in over time. http://wwcoco.com/cfids/bernesx.html If you do have CFIDS.. the most important thing in early CFS (first year or two) is rest and not over doing things.
    taniaaust1 2267 Replies Flag this Response
  • I assume the heart arrhythmia was that there previously.. long before you started getting the flu like symptoms??? (Im just wondering as CFIDS can also cause arrhythmia in some).
    taniaaust1 2267 Replies Flag this Response
  • I assume the heart arrhythmia was that there previously.. long before you started getting the flu like symptoms??? (Im just wondering as CFIDS can also cause arrhythmia in some). Yes, I've had the heart arrythmia over 10 years so that's probably not connected. I had wondered if I'd picked up another viral infection while in hospital for it, or the body shock of the procedure jump started all these new symptoms (you never know how a body reacts they say!) My other wonderings include if I could have picked up something while in Turkey as my immune system was probably already low when I went. Research also shows chronic acid reflux can lead to a number of laryangeal problems which I seem to be exhibiting all the symptoms of too. My final wondering is that the virus that causes glandular fever can also develop into more serious things, could this be it as the symptoms are also very similar to the progressive issues. I did have a viral infection 10 years ago that took 3 years to get over so I know what CFS feels like but this time it feels totally different. Again I accept that symptoms could be different a second time round so I havent ruled it out, so appreciated advice. Many thanks for the link, I will go and have a nosey now. I have looked into CFS etc but will investigate it more now. Any other advice welcome
    nellienuts 2 Replies Flag this Response
  • Interestingly as well, I wouldn't say that I have persistent fatigue. Sure some days I'm tired but who isn't. Mainly its the throat, chest and ear symptoms that afflict more than anything. I have also cut down to a 3 day week for the past 3 months to try and get more rest but to be honest I'm bored as feel that I am rested. I definitely dont feel fatigued like the way I did with the viral infection I had 10 years ago. Not sure if that makes things clearer or more confusing lol?
    nellienuts 2 Replies Flag this Response
  • My final wondering is that the virus that causes glandular fever can also develop into more serious things, could this be it as the symptoms are also very similar to the progressive issues. yeah it can... the virus which causes glandular fever was the virus they thought originally was responsible for CFS. It was once thought that virus caused this illness. It is now known throu studies..that CFS can be triggered by quite a few different things.. and that about 10% of infectious mono cases (glandular fever) develop into CFS. (i had severe glandular fever as a teen) I did have a viral infection 10 years ago that took 3 years to get over so I know what CFS feels like but this time it feels totally different. Again I accept that symptoms could be different a second time round so I havent ruled it out, so appreciated advice. Some world known CFS specialists like Dr Cheney say that CFS often after an initial bout of it, will go into remission before flaring back up.(this is what happened in my own case.. i had a 4 yr remission..after i was bedridden the first time of getting this for 9 mths and taking 3-5 yrs before making full recovery, then the remission for many years). and Yes they can be different if one gets it back. In my own case.. when I got the illness again.. it was MUCH different.. had a wider degree of symptoms eg I didnt have gastro issues with my first eposide of having this illness but when i got it again.. it came back with neuro symptoms and gasto symptoms (IBS) and then after a while.. chemical and food sensitivities, heart issues etc etc... and less of the fevers and sore throats which i had in my first few years run in with this illness (before the remission). My young cousin (in her 20's) has CFS too.. and thou i dont get a raspy cough with mine.. she had bad cough. After a few years of this illness where she had to go onto disability.. she's now in remission.................... Interestingly as well, I wouldn't say that I have persistent fatigue. Sure some days I'm tired but who isn't. Mainly its the throat, chest and ear symptoms that afflict more than anything. I have also cut down to a 3 day week for the past 3 months to try and get more rest but to be honest I'm bored as feel that I am rested. It will be interesting to know if your symptoms are going to "flare up" when you are back to trying to do things full time... that's kind of a tell tale sign of CFS.. post exertional fatigue so something to watch out to see if you are getting. I myself dont get the fatigue unless im doing things.. in which i'll get more and more tired as time goes on.. the illness seems to progress over time for me with doing things. If i rest up.. i can actualy have no symptoms (not even fatigue.. till after i do things) It should be easy to work out if it's CFS or not.. by just observing the patterns of the illness over time. (I post here as im so darn bored! i can only be active for 1.5 hrs per day before i start CFS "crashing" and get symptoms.. to do things too much, (each CFS person has a different level of how much they can do before flare hits), is to flare up the illness and flare up so many symptoms. best luck
    taniaaust1 2267 Replies Flag this Response
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