Discussions By Condition: I cannot get a diagnosis.

This has bothered me for my entire life!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • January 6, 2008
  • 06:16 AM

I have an issue with sore joints that has gone undiagnosed for my entire life. I'm 18 right now, and this has held me back from doing a lot of things with my life that I could've been passionate about were my joints normal. At first I was convinced it was arthritis but we've seen multiple specialists and all the tests have turned out negative. No one we've seen has even had a clue as to what this might be, and I'm starting to lose hope.

On a normal day with no activity my joints don't bother me at all. However, whenever I do any activity that involves repeated motion of a joint (most noticeably in my fingers wrists, knees, and ankles) the joint becomes sore and tight. I maintain range of motion, but it's painful to move and I lose coordination. I first recognized this as a major problem when I found I had a hard time hand writing papers in junior high. In fact, I could barely write a paragraph before my wrists would become tight and I would have to rest my hands before I could continue. Now it's prohibiting in many areas of my life. Usually the pain will go away within 5 to 10 minutes of rest after the activity. However, I've noticed that whenever I'm stressed, depressed, tired, and on stormy days my joints tend are sore more often, even without activity. Along with this, most of my joints produce large crackling noises when moved in a certain way (for example extending my arm from a bent position to a fully straight position) that doesn't cause any pain, but seems to be connected. This does not appear to be a progressive problem, but it remains highly prohibitive.

I desperately hope that some one here might have some idea for how to go about fixing this... even if you're not sure but you just have some idea it would be greatly appreciated... if I could fix this it would change my life.

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1 Replies:

  • I would check into Ehlers Danlos Syndrome thats what i have and it sounds like the same thing i sufferd till i was twelve. There is no cure but the doctors found medications to help me.
    Anonymous 42,789 Replies
    • January 25, 2008
    • 02:17 AM
    • 0
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