Discussions By Condition: I cannot get a diagnosis.

They won't remove my tumor

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: dramlady
  • January 14, 2009
  • 03:40 PM

I was diagnosed with an adrenal tumor which is 4.3 cm in diameter as of 11/08. I have menopausal symptoms, weight gain, water retention, pain and fatigue. All my blood work has come back so they say normal and so I have to wait for it to grow before they will remove it. I feel that I am being ignored by the doctors. I have been told by 3 surgeons in the St. Louis area that they will not remove it until it get 5 cm. I don't know where to turn or what to do. I have put on almost 40 lbs since June 08. I feel it is because of this tumor but I have been told that it is of my own doing. Any advice or encouragement would be greatly appreciated.

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4 Replies:

  • I don't think electromagnetism is your problem. You probably have Cushing syndrome caused by your tumor. Ask about meds you might use to help you cope with your symptoms. There is probably a medical guideline that states that surgery is only an option if a tumor grows over a certain size. That's why no one will operate-- they're afraid of a lawsuit should anything happen if they stray from the guideline.
    aquila 1,263 Replies
    • January 15, 2009
    • 05:46 PM
    • 0
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  • I agree with aquila on cushings. Cortisol Blockers should do the trick to control your symptoms. I'm not sure of their availability, but I know that some commercial companies sell them as weight loss tools. I would try to get something more prescription strength if you can.Usually the reason they won't operate yet is because of the current studies on tumor size and patient risk place surgery at a more dangerous level than your tumor. I'm surprised they didn't elaborate on this. I'm blanking on what tumors fall into this category, but I know they generally have good prognosis.
    nckmorris 53 Replies
    • January 16, 2009
    • 03:09 PM
    • 0
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  • Do you know any of your lab values?We could diagnose Cushing's if we had them.Too,if you've got a functioning adrenal tumor,that's why it should be removed,not because of an arbitrary size.I consider that malpractice if it's the case.
    richard wayne2b 1,232 Replies
    • January 16, 2009
    • 03:37 PM
    • 0
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  • Oh'I just noticed where you said the lab was normal but what lab?Ask them if you were checked for Cushing's Disease.
    richard wayne2b 1,232 Replies
    • January 16, 2009
    • 03:41 PM
    • 0
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