Discussions By Condition: I cannot get a diagnosis.

The Ultimate Mystery Diagnosis that has most of UPenn Stumped

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Anonymous
  • January 8, 2007
  • 07:59 AM

Last January I had an unexplainable syncopal episode while at the pet store. I was out for about 30 seconds (so I've been told) and stopped breathing, but the EMTs checked me out and said I was fine. I had a headache for about 2 weeks after that, which seemed reasonable since I'd whacked my head on a hard-tiled floor, but then one morning I woke up really weak and really dizzy. Since then I've slowly accumulated more symptoms and have been sent from one specialist to the next. I've had umpteen blood tests, a brain and cspine MRI, 2 EMGs, and everything's come back negative. These are all of my symptoms:

1. Dizziness associated with quick movements of the head or eyes
- especially problematic on the train (unable to discern its lack of movement from movement; causes severe confusion upon looking out the window) also problematic in places like the grocery store where I have a lot of peripheral stimulation and when a passenger in a car
- experience at least 1x p/d; always worse as body tires

2. Weakness of bodily muscles, especially in the legs, arms, and back
- walking 2+ blocks causes severe sensation of lactic acid buildup along ventral side of lower leg and gastrocnemius

3. Sensation similar to that when pupil is dilated due to medication side-effect, in right eye
- causes severe dizziness and disorientation, especially in situations where there is much visual stimulation in the periphery

4. Extremely dry mouth and eyes

5. Excessive sweating amounting to more than 20 oz. p/d
- try and compensate with water intake
- causes a changing of clothes at least 3xs p/d

6. Tremor
- manifests mainly in hands and legs
- upon placing bent leg (mainly on toes) on the ground, leg begins to move up and down uncontrollably
- worsens upon attempts to stop it
- both worsen with muscle tension which causes difficulties with writing
- also wide tremor/spasm upon other muscle contraction (i.e. contraction of all in legs causes severe shaking)
- my legs also start to shake if I stand for too long and eventually give out (usually after less than 1 hr)

7. Low-grade fever
- high 99’s to low 100’s

8. Lacey rash covering entire body
- worsens as body temperature rises
- it's rarely itchy, just there, making my complexion seem very blotchy

9. Inability to balance (improved with balance therapy but still can't balance on 1 foot at all, when I could easily 1 yr ago)

So there's everything. I should mention that I'm only 20 yrs old and don't suffer from any major health problems. I am narcoleptic, asthmatic, and have GAD and GERD. But we've already ruled out all medication side-effects through trial and error.

Anyone have any ideas? They're much appreciated!

Reply Flag this Discussion

9 Replies:

  • tHIS MAY SOUND FOREIGN TO YOU- BUT HERE GOES: IN CHINESE MEDICINE YOU SHOW SYMPTOMS OF INTERNAL WIND. THIS IS CAUSED BY THE LIVER. THIS WON'T SHOW UP IN ANY WESTERN MEDICAL TEST OR FIT ANY TREATMENT THEY OFFER. IN CHINESE MED WE SAY THE LIVER OPENS UP TO THE EYES. SO, ANY LIVER DISHARMONY SHOWS ITSELF THROUGH EYE PROBLEMS. ALSO DIZZINESS, VERTIGO ETC. ARE INTERNAL WIND- CAUSE IS AGAIN= LIVER DISHARMONY. YOU MENTION OTHER MEDICAL PROBLEMS AND YOU ARE SEVERAL PHARMACEUTICALS? I GUARANTEE YOUR LIVER IS TAXED OUT FROM HAVING TO PROCESS EVERY CHEMICAL YOU PUT IN YOUR BODY!!!:eek: YOU MENTION GERD? IN CHINESE MEDICINE- LIVER CAUSING STOMACH FIRE TO RISE. (TEXTBOOK SYMPTOMS) LIVER IN ALL THESE SYMPTOMS. PLEASE, BEFORE YOU DESTROY YOUR ORGANS WITH TOXIC OVERLOAD- SEEK OUT A QUALIFIED ACUPUNCTURE PHYSICIAN. GO TO ACUFINDERS.COM. I THINK YOU WILL BE VERY GLAD YOU DID. THEY CAN STRENGHTEN LIVER CHANNEL AND BALANCE OTHER AREAS OF THE BODY. YOU MAY EVEN BE ABLE TO GET SOME HERBS TO SOOTH LIVER AND CALM WIND (DIZZINESS). BEST OF LUCK~~STUDENT OF ACUPUNCTURE AND CHINESE MEDICINE;)
    1111healer 106 Replies
    • January 8, 2007
    • 08:19 AM
    • 0
    Flag this Response
  • fifth's disease? I had similar problems.
    Anonymous 42789 Replies
    • January 8, 2007
    • 05:29 PM
    • 0
    Flag this Response
  • the blotchyness sounds like a liverod pattern.I would get tested for antiphospihlid antibody syndrome.I know it sounds wierd but i have that same red rash all over my body when my temperature rises as well and i have teh same blotchyness on my skin!! I would get tested for this!!!
    Anonymous 42789 Replies
    • January 9, 2007
    • 02:39 AM
    • 0
    Flag this Response
  • WOW! What to say to this...?First of all, you seem like an intelligent person, who has good support of professionals, and, I am hoping, family and friends. I agreed somewhat with the first reply to your post. That you are having liver problems was the first thing that popped into my head. Is this all the symptoms you have? Are you sleeping well? Eating well- keeping food down, eating whole foods, etc? Is your immune system good? Going to the bathroom fine? If all that is fine, I would say yeah, have your liver checked. I have a chiropractor that practices reflexology, and dispenses only whole, organic vitamins manufactured by Standard Process. You can visit their website. Sorry for not being able to offer up anything more, I really hope you get better- you ARE just too young to have to go through something like this. Please make sure you abstain from alcohol, drugs- especially synthetics- and all processed or sweetened foods( junk food), and pop/ coffee. Don't expose your liver to any more toxins, as you likely are overtaxing it, and this can cause more things to go wrong. Also, I hope you have not been exposed to chemicals, lead, asbestos, radon, toxic mold, etc. Consider your environment, and keep yourself & environment clean. Good luck.
    Anonymous 42789 Replies
    • January 9, 2007
    • 05:14 AM
    • 0
    Flag this Response
  • 1111Healer - nice to have another Oriental Medicine Practitioner on this site! I agree with your diagnosis and think acupuncture would be very effective for this. I would add that even though doctors ruled out your medications causing these symptoms you need to look each of these meds up and check for yourself. Please go to www.drugs.com and click on drug interactions and type in ALL the current meds you are on. Also please check them up individually and check side effects and/or overdose info... This is very important. I can't stress enough that most doctors MISS THE BOAT on most drug interactions and side effects. Dosages are important as well. Please do this and see if you find anything that fits. If not, then at least you will be better informed about the drugs you are taking! Please give acupuncture a try and best of luck to you.Doctor of Oriental Medicine
    acuann 3080 Replies
    • January 9, 2007
    • 03:44 PM
    • 0
    Flag this Response
  • Easy, easy, easy... geez- there is no mystery on this one.
    Anonymous 42789 Replies
    • January 9, 2007
    • 05:33 PM
    • 0
    Flag this Response
  • Hi There ! Just read your problems. There just like mine ! Ive got Asthma stress & anxiety problems just like you . I feel weak, nausea, blurred visionheadaches, irritabillity anger and all the other things you talk about.A month ago i stopped eating all refined Carbohydrates (bread, pasta , cakes etc ) and went on a an anti candida diet and started to takeextralac (see E Bay ) . I cant tell what part of what i have done has changed my head problems so much but i feel a ***l of a lot better.I am thinking Food intolerances especially carbs and possible Hypoglycemiaor syndrome X your symptoms sound like Candida as well.Im not a medical expert just a sufferer like you. Give it a try what have you got to loose ? Eat a lot more veggies but be carefull they are low on the Glycemic index. Greens are good. No more junk food ! No alcohol....Clean up your act.....its hard but could be worth it !!!!!Tell me how you get on. Hunkychunky1. Oh yes i forgot. I take omega fish oils , evening primrose oil and cod liver oil and my ecxma has gone and my Asthma is much improved !Learn and avoid your triggers. environmental pollution, combustion fumes household chemicals, mould spores, cats and dog hairs, grass, pollen, wheat. dairyresearch your asthma on the net !
    hunkychunky1 5 Replies
    • January 9, 2007
    • 08:28 PM
    • 0
    Flag this Response
  • For anyone who was wondering, I got a possible diagnosis of Mixed Connective Tissue Disease last week after finding high CCP and CRP levels in my blood.
    Anonymous 42789 Replies
    • February 6, 2007
    • 01:47 AM
    • 0
    Flag this Response
  • "pet store" may be the clue here.which animals are involved?what parasites,bacteria and viruses are they carrying?look into the obvious!by the way,oriental medicine is a road of cobras,a lotten old road of cobras,if you take my meaning.also ,i think we may be looking at two or more interacting conditions here.that would account for the confusing presentation.
    Anonymous 42789 Replies
    • February 6, 2007
    • 11:41 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.