Discussions By Condition: I cannot get a diagnosis.

Terrible BRAIN cramps, and sharp pains

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Aimee2121
  • July 6, 2008
  • 06:02 PM

I am a 21 year old female from Ireland and was diagnosed with epilepsy in December 07 after having a one sizure in August o7, a drop attack in October and another seizure in December. Have had 2 M.R.I's M.R.A and M.R.V and 2 E.E.G's (one which was abnormal) which were all normal however my c.t brain showed white patches on one side? I was taking Lamictal 25mg in the beginning and then reached 125mg aswell as been intriduced to Topamax in April this year for severe migraines. I have suffere typical migraine since I was 15 with aura but after my "drop attack" they took a significant change.I didnt bang my head so Im sure this is not the cause. I get squeezing, cramping,dart like pains that often interrupt my speech and movement for a brief few moments,sometimes my eye droops. I often get more than 20 a day. Sometimes i can get 3 of the 3 types of head aches and am ALWAYS left feeling exhausted, my eyes feel sandy and my left eye feel larger than the other. They began on the right side of the head and then were occuring on bothe sides but in the last month have benn constant on the left side only. I was taken off Lamictal last month as my neurologist thinks I was labeled Epileptic too soon and my seizures are A-Typical so I'm waiting for appointments for an echo-cardiogram, and sleep-deprived E.E.G and I wil also be sent home for 24 hours with a heart monitor to rule out any underlying heart problems?! Its taking forever to receieve these apps I am at a total loss. When I began taking Topamax the headaches stopped for one week before returning again, and on top of having horrible withdrawls from Lamictal Im feeling so exhausted mentally and physically. I'm now taking Lexitan for a few days that my G.P prescribed on Thursday to relax my the muscles in my brain to see to it help.(this has been the 3rd trial he has prescribed). I have had no other seizures but the lates event was Thursday where I experienced one of my headaches and I felt the pain on the left side of my head.throat,and chest and down the back of my left leg. Im not due to see my neurologist till the 29th of this month and feel I will literally go mad. Im sick of being told they are migraine-like headaches, and they are not sure whats going on.Apart from these I lead a very healthy lifestyle, but do suffer low-blod pressure. CAN ANYONE RELATE TO THIS IN ANY WAY PLEASE????????????????:(

Reply Flag this Discussion

2 Replies:

  • I started to get the exact same symptoms...I found your epilepsy statement very interesting.... I haven't gone to the doctor about my symptoms.... instead when I started to feel these symptoms I started to do breathing exercises.I would breathe in through my nose very slowly as deep as I could and then exhaled through my nose slowly as well though my nose.Then I started to do Yoga, and after feeling these symptoms every day, I stopped feling them completely!You'd be surprised how deep your lungs are until you try these breathing exercises. If you want more info email me. Ravichowbey@msn.com
    Anonymous 42789 Replies Flag this Response
  • I see that it's been over a year since your post. Just curious about your condition at this time. My sister was diagnosed with Epilepsy when she was about 25, while living in Florida. For about 15 years she suffered with a lot of pain in her head and continually took a lot of meds to control her massive seizures. She and her family then moved back to where we grew up in West Virginia. What a blessing in disguise. Instead of continually treating her symptoms, her new Neurologist ran a lot of tests and found that she in fact did NOT have Epilepsy, but had been born with Dysplasia of the Temporal Lobe. Since the dysplasia has been removed, she has been completely pain and seizure free. It was an extremely long recovery process, but well worth every minute of it. You are so young. I know what a difficult life you must be having. I hope for nothing but the best for you.Nancy Davisnannan313@aol.com
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.