Discussions By Condition: I cannot get a diagnosis.

Ten Months, Tests not Helping!

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: Anonymous
  • February 25, 2007
  • 05:41 AM

Last summer I started to get this pain on the lower right side of my back that would sometimes shift to my left side, or radiate downwards to the point of making my leg go partially numb. I had MRIs, which were sent to one of the top chiropractors in the nation. No luck, and the pain got worse and more centered.

So I went to a gynecologist. I'm 20 years old, not sexually active, and have never had regular periods in my life. I'd get maybe 4 a year, and they'd last approximately eight days, very heavy. So I had an external and internal sonogram after four months of being on a birth control pill to try and regulate my periods. The ultrasounds showed nothing wrong. The pain at times was so bad, I'd stay awake all night sobbing, and if someone had offered me a hysterectomy to make the pain go away, I'd have taken it.

After 12 doctors visits in five months, I gave up. On the birth control pill, the pain has now gotten tolerable, and is focused on my lower right side, and radiates down to my vaginal area, where I sometimes get swollen lumps that wax and wane.

Currently the only thing I can really do is a laproscopy, but I thought I'd try posting here to see if anyone has any insights first. There were no visible cysts or abnormalities. Thank you guys so, so much in advance for taking the time to read this!

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15 Replies:

  • I have to say this sounds like a lower back problem. This would certainly make your leg feel numb.
    Anonymous 42789 Replies
    • February 25, 2007
    • 00:43 PM
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  • I have to say this sounds like a lower back problem. This would certainly make your leg feel numb.See, this is possible. Except the pain centralized so much, and is my lower right side, more pelvic than spinal at this point. I've hurt my lower back before, but this somehow doesn't feel quite the same. Thank you so much for your insights!
    Anonymous 42789 Replies
    • February 25, 2007
    • 11:08 PM
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  • solas muscle is deep and can cause pelvic and back pain, tingling sensation in labia or testes and numbness in thigh to knee...try lying close to edge of bed and allowing affected leg to drop over (not so close to edge that foot touches floor, mind you)..just let it hang...stay like this for about ten to twenty minutes a few times a day. This helps to 'loosen' knots or triggers in this very deep muscle.
    Anonymous 42789 Replies
    • February 25, 2007
    • 11:52 PM
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  • Good suggestion in the post above. Stretching the muscle (spelled psoas) may give a clue if it is involved. MTs or DCs may know how to work on the psoas muscles, so ask if they have done that before. It is a major muscle (actually 2, one on each side) that is attached to all the low back vertebrae and crosses over the pelvis to attach to the leg itself so it can cause the pain in the areas you describe. I have found in my patients with nasty low back pain that it is almost always involved. And the stretch suggested above is the same one I advise patients to use. It is a good one.
    Anonymous 42789 Replies
    • February 26, 2007
    • 02:02 AM
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  • Have you had complete blood tests? Is your weight normal? Have you been checked for thyroid problems? Do you have any other symptoms that you've been thinking weren't related? What meds and supplements do you take? What kind of exercise do you do?Symptoms like: hair or nail problems, weight gain or loss, headaches, nausea, light-headedness, coughing, or just anything?Right now, you are giving the same short list that your doctors are working with, so, it is pretty unlikely to get a different response! You might have something really rare. Or you might have more than one thing going on, but everyone is looking for only one explanation. Maybe with more info, something might spark a different way of looking at this.Best,Shula
    Anonymous 42789 Replies
    • February 26, 2007
    • 02:43 AM
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  • Shula:Hmm, I have brittle nails, I get headaches a lot, I'm more easily naueseated now than I used to be, dry mouth as well. Also, I figure it's just a weird quirk of mine, but it might be related...ever since I hit puberty, I started running low-grade fevers (99.5-99.9) about 4-5 nights a week. They're aggravated by high emotion, pain, or stress.I have had two complete blood tests this past year, as well as urinary tests, and everything comes back perfectly fine. The MRI showed a bone island, but I was assured that it was benign and not the cause of this. Sonogram of lower back showed fine, and ultrasound of ovarian area showed okay as well. I am overweight, but have always been. I walk on the treadmill for an hour about three times a week (yeah, I know, not enough). No thyroid problems. Meds...well, I was put on birth control pill to try and regulate my menstrual cycle, and this actually has helped the pain significantly and made it a tolerable amount. And on Novemberish I was put on Zoloft, which I assumed accounted for the queasiness since I felt that when I used to be on Effexor until I had a strange reaction to the medicine a little over a year ago. I was taking a strong painkiller over the summer for this, but only used it maybe a dozen times since it was prescribed. I take advil if it gets too bad, which is maybe once a week. Other than that, I don't take anything, not even aspirin.And I doubt it's related at all, but in May 2005, I got pretty sick. The doctors thought it was mono, but the tests came back negative. Strep tests came back negative. They finally just pumped me full of antibiotics and it went away after a month, but then came back a month later, then went away again. Deep cough, no voice, swollen throat, etc.The fact that the birth control pill is helping the pain, though, makes me wonder if it isn't something related to my menstrual cycle and whatnot, or maybe a hormone imbalance of some sort? I don't know.To Unregistered, and Ralph: Thank you very much! I'll try that exercise out when I get home today. If it doesn't work, at least I'll know it's not that that's wrong, right?
    Anonymous 42789 Replies
    • February 26, 2007
    • 03:31 PM
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  • THis sounds an awful lot like Polycystic Ovarian SYndrome. You may have some cysts or fibroids that are pressing on a certain nerve that is making your lower back hurt. This is what I am dealing with right now, but I am going to see a new doctor this month because the other one told me to just bear the pain because there was nothing he could do, but I can't even stand at the sink to wash dishes without horrible pain. Go to see a GYN specialist. I have an appointment with a great one in Pittsburgh, PA at Magee women's Hospital in Oakland.
    MrsKipilo 6 Replies
    • February 27, 2007
    • 03:54 PM
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  • THis sounds an awful lot like Polycystic Ovarian SYndrome. You may have some cysts or fibroids that are pressing on a certain nerve that is making your lower back hurt. This is what I am dealing with right now, but I am going to see a new doctor this month because the other one told me to just bear the pain because there was nothing he could do, but I can't even stand at the sink to wash dishes without horrible pain. Go to see a GYN specialist. I have an appointment with a great one in Pittsburgh, PA at Magee women's Hospital in Oakland.Thank you so much! I really hope you feel better soon. My gyn has told me there is nothing showing up on my sonogram, and to weather the pain or have that laprascopy. I'll ask about the Polycystic Ovarian Syndrome. I'm also going to ask about endometriosis. I hope you feel better soon!
    Anonymous 42789 Replies Flag this Response
  • Thought I'd give an update. I had a laparascopy, which returned no results in the gyn area. The gyn however did say that my intestines "look funny" to him, so I am now heading to a gastro specialist. Does IBS make your organs look weird?
    Anonymous 42789 Replies Flag this Response
  • they thought I had everything from IBS to Chron's to Carcinoid Syndrome and many others...am now being tested for ME/CFS which I know I have...it explains everything... PLEASE read last 6 pages of "It's a mystery until we solve it"-mommy cat there you will find countless with same/similar complaints...you are not alone good luck and I'm here...mommy cat
    mommy cat 1654 Replies Flag this Response
  • Apologies for the cross post, but this is what I am posting after some of the posts by "crazy cat": mommy cat, You respond to more than 90 percent of the posts, like you have the answer for everyone, showing that amongst your other troubles, suffering from narcissistic personality disorder. Your self-written comments (not the ones that you are copying and pasting) are repetitive, mixed up, unclear, and pushy. This is called mania. You keep saying you are getting checked for ME but you haven't said if you have it. Your discussion of cover-ups show that you have lapsed into paranoia. You have decided that your cause is more important than everyone elses needs, even to the point of believing that everyone without a diagnosis has ME. Considering that you claim a medical background, this shows a lack of connection with reality. I now dub thee, "crazy cat" instead of mommy cat. Get some psychiatric attention while you are working on getting a diagnosis. Are narcissism, mania, paranoia, and other psychiatric diagnoses part of ME? If not, you have no excuse. Anna
    Anna cat 13 Replies Flag this Response
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  • Thank you, Anna. I noticed the massive amounts of posting this morning and was wondering how to approach that. You have done a great job.
    Anonymous 42789 Replies Flag this Response
  • Thank you, Ralph. Crazy cat is driving away good responders like yourself. I can't stand it. Anna
    Anna cat 13 Replies Flag this Response
  • I'm probably just being really slow since I'm very sleep deprived, but...that post was a jab at mommy cat and not saying that I have narcissistic personality disorder, right? I don't get around much on these forums, so just checking.
    Anonymous 42789 Replies Flag this Response
  • THis sounds an awful lot like Polycystic Ovarian SYndrome. You may have some cysts or fibroids that are pressing on a certain nerve that is making your lower back hurt. This is what I am dealing with right now, but I am going to see a new doctor this month because the other one told me to just bear the pain because there was nothing he could do, but I can't even stand at the sink to wash dishes without horrible pain. Go to see a GYN specialist. I have an appointment with a great one in Pittsburgh, PA at Magee women's Hospital in Oakland.I had endometriosis and endometrioma "chocolate cyst" + my left ovary removed 2004.(open surgery not lap) Im 53 overweight and Ive had pain since then...only on left side. I had much more pain prior to surgery ... BCP didnt help ,but my insurance approved me for Lupron but I took depo provera and I had no more pain until i got too old for them to pay for it. No insurance and I now have high ANA results (lupus runs in my family) .I hurt so much left groin + left leg + left hip + left knee.Im thinking pelvic adhesions...
    Tornado06 1 Replies
    • November 19, 2013
    • 01:57 AM
    • 0
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