Discussions By Condition: I cannot get a diagnosis.

Ten months, one surgery, one tumor, no diagnosis.

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: terrymac
  • October 23, 2007
  • 10:27 PM

In the beginning of this year I had an episode that I though might be associated with a change in medication. For about a four day period I developed a queasy stomach, weak, light-headed, shaky, continuous belching...just all over lousy feeling head to foot. Just like that it was gone. A few weeks later, same thing. I went to the doctor, had bloodwork but no problems.

Eventually had an endoscopy that revealed hiatal hernia, H-pylori and something else like gastritis. Had PrevPack treatment for H-Pylori.

I then had an ultrasound for my abdomen because I was on Vytorin and had elevated liver function. Unrelated to the stomach thing. Found a potential polyp on my gallbladder and ordered a HIDA scan. Found out gall bladder was only borderline functional. Thought that this might be related to ongoing stomach problem so I went ahead and had gall bladder removed.

Two weeks later had the worst attack ever. Could barely get out of bed I felt so bad. Plus the pain from the surgery.

Things settled down for a while. Then had a couple of flare ups, one pretty serious that had me just going through the motions for a few days. Then...gone!

I started losing weight and since just prior to the surgery (in May) I have lost 20 pounds.

Tested for Celiac. Negative.

I finally went back to the GP and she ordered a CT scan of abdomen to make sure there were no issues from the surgery or anything else unusual.
They didn't find anything in my abdomen but the scan did pick up a fairly large tissue mass in my right lower lung (4cm).

Since then I have had another CT scan, and MRI, met with a pulmonologist and had the CT scans reviewed unofficially by a radiologist and pulmonologist from a very prestigious cancer hospital. None of them is quite sure what they are looking at and have labeled the mass as "very interesting" and "confusing."

I have since been referred to a thoracic surgeon at a renowned east coast hospital to determine the best way to approach biopsing this thing in my lung. I'm waiting for his feedback.

A couple days ago the stomach thing showed up again. Queasy stomach, weak, shaky, dizzy when standing up, light-headed, belching, etc.

I assume I am dealing with two different things here but the stomach thing is actually the one that is making me miserable and I am almost hoping that the lung and stomach thing are related just so I know what I'm dealing with.

Thoughts? Opinions? Advice?

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