Discussions By Condition: I cannot get a diagnosis.

temporary paralysis

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • August 20, 2011
  • 03:48 AM

When my wife was in her early teens, she had an episode of total paralysis with no reflexes. It went away in about 2 weeks. She was tested (negative) for Guillain-Barré.
She had no physical control at all and was found on the floor. One doctor allowed her to fall off of the gurney to prove she was faking it for attention. Another tried to write it off as a conversion problem (all in her head). That is what MDs do when they fail to understand a thing...they blame the patient.

She had to learn to walk again. It was written off as "Weakness of Unknown etiology".

Now she has been diagnosed with Ehlers Danlos Syndrome (she has all but 4 of the known symptoms) and I have to wonder if she had a temporary event related to the blockage of spinal fluid in that syndrome (Arnold-Chiari malformation or some variant of it). Any ideas?

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