I am 19 years old and i cannot stand or walk at all. I am a full time wheelchair user and i am unable to sit unaided. I started to notice something was wrong when i was 14, i used to be quite an active person, i loved walking, running and being outdoors. I started to notice i couldn't run as well as i used to, and began to struggle to walk at the same pace as my friends and even climb stairs, or jump. I developed a limp and started to walk with my foot turned inwards. I gradually got worse loosing more strength as time went on till i needed crutches to walk and then a wheelchair. I have weakness in my arms and loss of feeling in my forearms. I sometime suffer from bad muscle spasms, i am often really tired. I used to be able to crawl but i am no longer able to do this
At the onset when i had a limp i was told it was my new shoes, then juvenile arthritis and then i was diagnosed with M.E/CFS. I have had my reflex tested, blood tests, Nerve and EMG tests, MRI scans and they have all come back fine. I did question my diagnosis about 2 years ago now just in case it wasn't M.E and i had something that could be treated. I wondered if anyone knew of any other conditions which might have caused my disabilities?
I have realized now though that constantly searching for the right diagnosis isn't going to benefit me that much, unless there was a treatment somewhere. Otherwise having the right name for my condition isn't going to make much difference. I'm 19 and i've spent nearly all of my teenage years in a wheelchair, i just get on with it now, i'm tired of fighting for answers.
Thank you for your help