Discussions By Condition: I cannot get a diagnosis.

syncope/seizures

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: dannij
  • August 2, 2007
  • 05:08 AM

HELP..ok a little background..when I was 12 I started passing out and occasionally would hve a full blown seizure I am now 34 and while I still have this problem occasionally the drs have never figured it out so here is the new problem 6 years ago my son had his first seizure tonight he had another and was brought to the er but nobody can figure out what this is from please help someone any advice as to where to look for answers

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8 Replies:

  • When you were younger, did you go to a neurologist? Did you get an EEG done? Did they confirm you were having true seizures, or did they say it was syncope? Sometimes you can have what completely looks like a seizure, but it not actually be one. Again, this would have to be looked at by the neurologist.What about your child? Was an EEG performed? What were the findings?I ask these questions as I began passing out/fainting when I was 13 years old, and I am told they look like seizures, but after going through EEG's found out they weren't. I won't bore you with all of the findings with my problem if you all have seizures, as that is an area I am not familiar with, but I do have some options if they are stating it isn't seizures.Hope you get help soon!
    Anonymous 42789 Replies Flag this Response
  • Do what he says: get an eeg, and consult a neurologist. -tests for seizureAlso, get a tilt-table test. - tests for syncope
    Anonymous 42789 Replies Flag this Response
  • I am 37 years old and have been told for years now that I have syncope. However, my seizures have now been witnesses by a few doctors. All of those doctors say it's NOT syncope. My EEG was good, I've had every test in the book performed on me several times. I've had a tilt table test, stress test, diabetes test, you name it, I've had the test done. The doctors still cannot explain why I have seizures. My most recent was, unforunately, in a car. I was told that would never happen but it did. I ended up crashing into a home and losing my license. I feel the diagnosis of seizures is very frustrating since I've seen many, many doctors and nobody seems to know what is going on. So I feel for you. I made the unfortunate decision to not have children as I was terrified of what would happen during childbirth. It's been a rough 35 years (had first seizure at age 2). I've had about 12 seizures in my lifetime and they appear to get getting progressively worse. When I was young I could tell people when it was going to happen, but not anymore.
    colleeni 4 Replies
    • October 30, 2008
    • 00:45 PM
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  • I do not remember wireless around in the early 70's when this started with me. I really don't believe it's that.
    colleeni 4 Replies
    • October 30, 2008
    • 05:01 PM
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  • It's a long shot, but have you been looked at for celiac disease? Seizures are one symptom. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1263 Replies
    • October 30, 2008
    • 05:20 PM
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  • Hey at this point I 'll look into anything, including long shots. Thank you for sending that. After reading it I don't believe that is what I have. I know my blood has been tested over and over and every single test I have comes out normal. I basically have the doctors stumped as well.
    colleeni 4 Replies
    • October 30, 2008
    • 05:31 PM
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  • Information too vague,have the doctors ruled out epilepsy?
    Anonymous 42789 Replies
    • October 30, 2008
    • 09:22 PM
    • 0
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  • All the doctors have definitely outruled epilepsy.
    colleeni 4 Replies
    • October 31, 2008
    • 09:56 PM
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