Discussions By Condition: I cannot get a diagnosis.

Syncope misdiagnosis?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • January 26, 2010
  • 05:38 PM

I've been feeling bad for the past several years now with the same underlying symptoms, but I can't seem to find out whats wrong with me.

*Constant pain in my neck, shoulders, and right hip. I can feel little hard balls in my neck area where it feels the worst. I'm constantly "popping" my neck to get it to feel better. Lymph nodes?
*Feet/hands are always cold, like blood isn't circulating there.
*dizziness
*lightheaded
*shortness of breath
*60% of the time I feel like I'm in a "cloud". Concentration is poor.
*Memory is ok, but should be better at my age (22).
*Talking/interacting with people I don't know makes my heart feel like it's jumping out of my chest.
*I sometimes feel random flutters in the chest/heart
*My ears/head always feel pressure. I can hear inside my head/jaw sometimes. Also feels/sounds as if I can blow air through my ears.
*Lost hearing briefly during a really bad "attack" last year (which prompted me to finally go to the doctor), went to the hospital and had an EKG, which showed nothing. They told me it might be Heart Palpitations, but it was never confirmed.
*Before I started taking my beta-blockers I could hear my heart beat in my left ear all the time, its starting to come back.
*Tilt Table Test, after being given the tablet ?glycerine?, I fainted within seconds of being upright
*High heart rate in the 140-160's before I started taking my beta-blockers, I haven't measured it anytime recently though.

I've got confirmed Psoriasis, and my doctor assumes I have Psoriatic Arthritis that's causing my neck/shoulder pain, however all the tests came back negative for Rheumatoid Arthritis. Doctor said Psoriatic Arthritis has no real "test", that I have to rule out all the other possibilities like Rheumatoid Arthritis, so while Psoriatic Arthritis is a probable cause, its certainly not confirmed.

Since taking my beta-blocker I've felt better, but there are still many days where it feels like I haven't taken my medication at all. Before I started taking medication, the only way for the symptoms to show up was when I was being fairly active (playing with my kids, etc.). But now its even when I'm sitting down perfectly calm and still.

Once every year I get extreme back pain so debilitating that I cannot even get out of bed. Usually takes 3-4 days to recover from it.

Also once/twice every year I get into a cold chill state and I shake uncontrollably no matter what the temperature is. It goes away after 2-3 hours of shaking. Is this normal?

I wake up every morning with achy back/spine/neck. Feeling like I never got any sleep at all.

Doctor says its Vasovagal Syncope, and he's done a few tests to rule out possible Thyroid issues. I'm not sure what the underlying issue is that's causing the syncope. It's only been in the last 4-5 years I've been like this. I'm hopeful that someone has an idea of what might be the underlying cause of my Syncope.

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