Discussions By Condition: I cannot get a diagnosis.

Symptoms of Lupus

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • July 24, 2010
  • 00:46 PM

Hard to know where to begin, im a 34 year old male. I have had pain in my feet (mainly balls) for the past 2.5years, butterfly like rash on my face (nose and cheeks)on and off for the past 6 years - which gets worse from being in the sun. Both my hands now have pain in joints (knuckles and some of my finger joints) for about the past 3 months. I am having pain through out my body which can last for a quick minute or so or last alot longer. Different areas of body feel different pain (some feel like joint pain, others feel like muscle pain, aches) This is happenning everyday! I feel the cold bad and sometime 1/2 of my middle finger turns "white". For the past 2 months I have been getting alot worse with fatigue, having trouble staying awake early afternoon regardless of my nights sleep or daily activitys. (Even sleeping in and having a easy day I still get very tired) I also feel like im getting weaker and having little energy. There is also a pain in my chest (left side) mainly when breathing deeply but not all the time.

My ANA and ds-DNA test are negitive. I have been retested 3 times now (only 1 time the ds-DNA result was borderline)
I have also been tested for RA which was negitive aswell
I have had xrays on my feet, hands and chest and they were all clear.
My GP believes I have Lupus and sent me to a rheumatologist which said after more blood tests im clear and dont have lupus.
Originally my GP put me on Solone which within 3 days cleared my face rash and took the pains away or drop them to a minimal level. My rheumatologist took me off Solone and put me on Mobic as a safer option. I stopped Solone and had no tablets for 1 week, within that time all pains returned aswell as my "butterfly" rash...(very bad this time) I started Mobic and after 3 days I had a allergic reaction to it (hives, rash ,itchy...both legs, arms, spots on chest and back) so have now been given Celebrex to help with pain and also using a steroid cream on my face rash (within 3 days it cleared up) Over the past 6 years I have tried afew anti fungal creams from different GP's for my face rash but nothing worked on it until now with the steroid cream.

My GP still thinks I have Lupus as all symptoms point to it but my blood results are clear. There is a family history of auto immune diseases and my cousin has had lupus for now 20 years.
I have read that you can have all the symptoms of Lupus and the blood test changing positive later, although how common is this or how long until this happens?
I really dont know whats wrong with me and know my future will be ongoing appointments, blood tests, etc until the rheumatologist can make a decision.
Can anybody relate to my confused state and give me any information, advise or personal experience which may help me or point me in another direction. I have another rheumatologist appoinment again in 5 weeks time and told not to worry to much...yeah right!

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1 Replies:

  • I feel the cold bad and sometime 1/2 of my middle finger turns "white". I used to get that a lot too, its Raynauds syndrome.http://en.wikipedia.org/wiki/Raynaud's_phenomenon Raynauds syndrome can be the first sign of many diseases including lupus. (wikipedia says it can happen up till 20 years before some diseases occur).
    taniaaust1 2267 Replies Flag this Response
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