Discussions By Condition: I cannot get a diagnosis.

Symptoms of anemia plus WAY MORE. HELP!!!

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: ilovemusic
  • January 26, 2008
  • 09:53 PM

I'm very worried about the symptoms I've been having, and they've been getting progressively worse. They started to get worse About 2 months or so ago. Here's the list:

I'm a 16 yr old female with:
-Tiredness
-Progressive weakness throughout the day
-Sleeping difficulties (not stress or anxiety related)
-Sudden chest pains
-Sometimes heart palpitations
-Lack of energy for exercise
-Breathing difficulty while exercising
-Shortness of breath from minimal exertion (one flight of stairs, walking a bit)
-Headache after working out for not that long
-Petechia on my upper arms
-Inexplicable bruising (usually in arms and legs)
-Lethargy
-Skin bruises: no cause (Hemorrhagic skin spots)
-Pallor
-Difficulty concentrating
-Memory loss (will forget what I JUST remembered to do; forget where I am or what I was doing; forget what I was saying before finishing a sentence)
-Menstral abnormality (starts about 3 days late but ends on time about every other month and is heavy for about 2 days, but then is almost absent)

Current Conditions:
-Polycystic Ovarian Syndrome (painful cysts on ovaries mid-cycle; have not had one since starting the pill)
-RBC is 4.1

I'm not sure if this is significant, but my total bilirubin is .2; I was not sure if that is good or bad but thought I would add it in since I just had blood work done. Tests were inconclusive. Had CBC, Chemical panel?, and thyroid test.

I know there's a lot in this post but I really need some help because I can no longer exercise for any amount of time without breathing difficulties. My stamina has also gone way down.
PLEASE HELP SOMEONE!

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18 Replies:

  • When they checked your thyroid, did they also test your antibodies? Most doctors do not check thyroid antibodies unless your thyroid hormones are off first. I had my thyroid hormones checked multiple times over the years after complaining of a lot of symptoms like yours- primarily fatigue. It is frustrating to have been told that my thyroid was okay at least six times.I was ultimately diagnosed with Hashimoto's Encephalopathy- a rare complication of autoimmune thyroiditis, diagnosed by elevated thyroid antibodies. Subsequent ultrasound and CT scans or my thyroid revealed that it was full of tiny nodules from the autoimmune destruction.While you may not have the encephalopathy, my own situation helped me learn that thyroid hormone levels do not tell you everything. Testing for antibodies can be enlightening.I hope you get your answer soon. Other things it could be include celiac disease or other autoimmune things, such as Lupus.I am sorry you are going through this and hope you get answers soon.
    Anonymous 42789 Replies
    • January 27, 2008
    • 03:17 AM
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  • If I were you, I would not stop until I found out what was going on. I've seen too many doctors that do lab work, it all looks good, and they just assume that it's a virus or depression or anxiety or whatever. You not only have symptoms of something, you also have the signs to go along with it. Insist on going to another doctor. If you really feel like something is wrong, keep going until you find out what it is. Take copies of all your labwork, to save time on that. Get on the internet and study. Look at everything you can find and see what seems to go along with you. But the main thing is, you know that something is wrong so you're right!
    Anonymous 42789 Replies
    • January 27, 2008
    • 03:21 AM
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  • Hi again. I forgot to ask you if you have lost weight and if so how much, do you have fever or night sweats, pain anywhere, or swollen lymph nodes? Your RBC is a little low but not dangerously low. Do you know what your hemoglobin was? Was anything else out of range? Also, what range do they give you for normal values on the bilirubin?
    Anonymous 42789 Replies
    • January 27, 2008
    • 03:59 AM
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  • I haven't lost any weight, I've actually gained a couple of pounds, but it may be muscle cause I figure skate and do gymnastics. I do get night sweats once in a while, sometimes have sudden chest pain, and sometimes have pain in my upper left quadrant (not too often) and it's worse when I breathe in. My hemoglobin was 12.7 for a range of 12.0 - 16.0Range for bilirubin was .2 - 1.3 Not sure if these are important:Calc Osmo was low: 270 for a range of 275 - 295Chloride was high: 109 for a range of 98 - 107TSH was 1.34 for a range of .34 - 4.82 (personally I think it's low)WBC was 5.4 for a range of 4.8 - 10.8Urea Nitrogen was 7.0 for a range of 7.0 - 17.0CO 2 was 28 for a range of 22 - 30 (concerned even though it's not too high) I also have others if you need to see those as well. Thank you everyone for your help! You have no idea how much I appreciate it!!
    ilovemusic 6 Replies
    • January 27, 2008
    • 04:15 AM
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  • Hi. Thanks for your reply. Not losing weight and actually gaining is really good. All labs are better than you sound like you feel!! Did they test you for Epstein Barr? It's the virus that causes Mono. It's pretty common for your age. All of these symptoms would fit that along with the pain in your upper left abd. This virus can last for a while and really make you feel bad. The blood work you had probably wouldn't show it unless you were tested specifically for it. The good thing about it is that it is viral, so it will run its course but you really have to rest until you feel better and not do alot of strenuous activities just in case your spleen is affected. Just a thought. Just glad to hear that you have gained weight. Loss of weight with know known cause is usually associated with something more serious. Let me know how you are or if you get any more answers.
    Anonymous 42789 Replies
    • January 27, 2008
    • 04:43 AM
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  • Have you been checked for sarcoidosis?:)
    klschup 42 Replies
    • January 27, 2008
    • 07:23 AM
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  • I have PCOS too. Not losing weight and actually gaining is really good. No that actually probably isnt the case, she should keep an eye on her weight. Ones with PCOS as she's said she's got...are at high risk of obesity (obesity is one of the symptoms of having PCOS) as it alters the bodies metabolism... ones with PCOS run a higher risk of heart attacks, high BP etc. etc .. and there also is a 50% chance of her developing insulin resistance or diabetes due to it too.. and gaining weight can put one at more of a risk so hence weight gain may not be at all good. Ive heard of young ones with PCOS dying from heart complications due to it.. and only being in their early 20's (there was/is a memmorium site online set up for those ones). It really can be a serious disease and can affect many body systems............ This leads me to say that with your chest pains, heart palpitations, breathing problems while exercising and lethargy (all which can indicate a heart issue)... insist to be sent to a heart specialist for tests. I had similar issues and my doctor sent me to a heart specialist for tests (ECGs or it may of been EGG?, ultrasound, exercise stress test, 24 hr hoilter monitoring) without me even asking him to do so.
    taniaaust1 2267 Replies
    • January 27, 2008
    • 07:43 AM
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  • On another note.. i notice that you are tending to needlessly worry about some things, (it could indicate that you have an anxiety problem or be just cause teen girls often tend to do that.. completely normal). CO 2 was 28 for a range of 22 - 30 (concerned even though it's not too high) TSH was 1.34 for a range of .34 - 4.82 (personally I think it's low) If something is in a normal range.. that is what it is.. completely normal!! that's excellent..so dont stress. If you do have an anxiety problem thou.. that can really affect you and give you eg heart palpitations and make you notice things health wise which you just wouldnt even notice otherwise. "-Menstral abnormality (starts about 3 days late but ends on time about every other month and is heavy for about 2 days, but then is almost absent)" You say you are only 16 ..and it is quite normal for young girls, for their periods to be a bit over the place at times. Cause of your age and also the fact of you having the PCOS which will make your periods probably irregular anyway.. this isnt something to worry about at all. Be happy with the PCOS that you are getting periods at all.. many who have it dont have periods at all. ............................ I personally are very concerned by your symptoms by how you your described them, (sounds like more than just anxiety going on) and thinking if you dont have anything going on with your heart (which you probably dont but wont know without some tests).. im actually worried you could have chronic fatigue immunity dysfuction syndrome (CFIDS) also known as Chronic fatigue syndrome (CFS). CFS will give one the symptoms you say and a couple of things you said point directly to this illness "progressive weakness throu out the day".. this is exactly what happens to a CFS person.. the tiredness and weakness progress during the day due to us doing things. "shortness of breath from minimin exertion fits perfectly into the normal CFS picture too). Every one of your symptoms is the normal CFS symptoms and from your symptoms.. you fit EXACTLY into the canadian diagnostic critera for it (which is extremely strict diagnostic criteria for CFS) except that you havent had it long enough for that diagnoses yet.. thou it's been said that others with CFS can recognise another CFSer much earlier... im 60% sure you've got CFS and you are just at the start of the illness. If im correct.. you will find yourself getting even more symptoms then you have now.. probably the CFS pain in other body areas as this is so common, sore throats etc etc . ..or maybe you already do have these symptoms but missed them from your list. So if you arent found to have another illness... a doctor could easily diagnose you as having CFS if the illness has made you cut back a lot your activities and if one has had the illness for at least 6 mths. With CFS.. it will get to the stage where you cant do your normal life and will be doing far less. I strongly suggest after you've had some heart tests and whatever else anyone can suggest to you.. to find a CFS specialist in your area and go and see him. Otherwise you may not have a diagnoses for another 4 or more mths.. at least then you may have some idea what is wrong with you. (CFS specialist may give you a tentative diagnoses, months earlier than a non CFS specialist will cause they know exactly what is the norm in a CFS person and studies have shown that the earlier a CFS patient gets the correct diagnoses..the more chance of recovery they have) http://www.co-cure.org/Good-Doc.htm site which has a list of CFS patients recommendations of good doctors who deal with this condition. A great list of CFIDS symptoms with also the percentage of CFS people who have them is at http://wwcoco.com/cfids/bernesx.html . ps pallor isnt on that list but extreme pallor is one of the autonomic manifestations of CFS. If you decide to look into CFS more..www.immunesupport.com is one of the best sites (it also has busy forum for this issue)
    taniaaust1 2267 Replies
    • January 27, 2008
    • 08:30 AM
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  • On another note.. i notice that you are tending to needlessly worry about some things, (it could indicate that you have an anxiety problem or be just cause teen girls often tend to do that.. completely normal). Quote:CO 2 was 28 for a range of 22 - 30 (concerned even though it's not too high) Quote:TSH was 1.34 for a range of .34 - 4.82 (personally I think it's low) If something is in a normal range.. that is what it is.. completely normal!! that's excellent..so dont stress.If you do have an anxiety problem thou.. that can really affect you and give you eg heart palpitations and make you notice things health wise which you just wouldnt even notice otherwise."-Menstral abnormality (starts about 3 days late but ends on time about every other month and is heavy for about 2 days, but then is almost absent)"You say you are only 16 ..and it is quite normal for young girls, for their periods to be a bit over the place at times. Cause of your age and also the fact of you having the PCOS which will make your periods probably irregular anyway.. this isnt something to worry about at all. Be happy with the PCOS that you are getting periods at all.. many who have it dont have periods at all. I wasn't worrying about the things in range, I was just noting them for sb62's reference. The only thing on my test results that I was worried about was the anemia. So I'm not over thinking or worrying needlessly. I also put the menstral information up their too because my cycles have been normal but now they're even more irregular and I'm on the pill so they should be closer to normal than they are. (What the doctor said) Thank you for your help about the CFS!! I'm definitely going to look into that cause it does seem to fit pretty well.
    ilovemusic 6 Replies
    • January 27, 2008
    • 04:48 PM
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  • Hi again. Just reading the other posts so I thought I would explain my thoughts. The reason I was interested in your weight, is because cancer, such as types of leukemia, will make you have unexplained weight loss. Some of your symptoms could point that way. That was why I asked. Of course gaining too much weight can cause many other problems. The thought about seeing a cardiologist is also a good idea. There are types of cardiac problems that many people are born with and never know until they begin having significant symptoms. It's a good idea, if your symptoms persist to at least have this checked. Don't give up. Let us know how you are.
    Anonymous 42789 Replies
    • January 27, 2008
    • 05:32 PM
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  • Was you period closer together where you have bled more than the usual. That could explain the anemia. I have a 26 year old daughter that goes through that and the pill was not the thing that worked. Not even an IUD. She got a severe infection. Not everyone does. And you could have anxiety. With chest pain and no reason for it really could mean anxiety. Especially if you're constantly thinking that something is wrong and maybe not anything is. But teens do have a lot anxiety they just don't know it. Try asking your dr. for a low dose of meds for anxiety. If they work, horray. If they don't work, start over from square one. The low dose of anxiety meds can also help with chronic fatigue or fibromyalgia. a lot of stress with bring on pain.
    klschup 42 Replies
    • January 27, 2008
    • 07:13 PM
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  • The weight gain isn't a significant amount. It was a couple of pounds and my weight always fluctuates between 135-145 depending if it's around my period and right now it is. I exercise a lot so I have a lot of muscle weight, so I'm definitely a healthy weight right now. The palpitations and chest pain don't happen regularly, but when the chest pain happens, it makes me not breathe normally for about a minute or more because it hurts when I inhale.
    ilovemusic 6 Replies
    • January 27, 2008
    • 08:31 PM
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  • best luck with it all.. if you get an outcome.. please come back and let us know.
    taniaaust1 2267 Replies
    • January 28, 2008
    • 07:57 AM
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  • Within the last couple of days I've developed a new symptom. Painful swollen lymph nodes on the left side of my neck. They're very uncomfortable especially when I turn my head to the left. Would ibeuprophen decrease the pain from this? Or any other OTC medication?
    ilovemusic 6 Replies
    • January 29, 2008
    • 03:02 AM
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  • thou it's been said that others with CFS can recognise another CFSer much earlier... im 60% sure you've got CFS and you are just at the start of the illness. If im correct.. you will find yourself getting even more symptoms then you have now.. probably the CFS pain in other body areas as this is so common, sore throats etc etc . ..or maybe you already do have these symptoms but missed them from your list. (((hugs))) **if acceptable to you** im not at all surprised you've developed a new symptom, this may sound bad but i was expecting that. swollen glands (along with a sore throat) are VERY common in early CFS (during the first year of the illness) .. then often they settle down and start appearing for most only during CFS "crashes". I had swollen glands for first couple of years of the illness. Hopefully im wrong and the gland swelling is just a cold or something coming on, it could just be a normal virus causing gland swelling. Be aware thou that CFS can be very flu like!. If your doctors cant work out what is wrong with you and you are still sick in a mths time.. please insist for them to refer you to a CFS specialist. *by CFS specialist.. they aint called that as such, but by this I mean a doctor or a specialist of any variety, (CFS patients have so many different problems going that they often see specialists in many fields.. so anyone of these can be focusing on catering on CFS patients), but see a medical person, who has an interest in and sees many CFS patients.
    taniaaust1 2267 Replies
    • January 29, 2008
    • 03:29 AM
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  • I'm sorry about the new symptoms. Just one more opinion----Tell them to do a chest xray and if there is something on them they will do a biopsy or maybe just on your lymphnodes. It sounds a lot like sarcoidosis. It could be cfs as I was diagnosed with cfs first. But eventually they did a chest xray. The only thing with sarcoid normally most people lose weight. I see that taniaaust1 told you go to any physian(just don't go to my gp, he's a total idiot). Good Luck---It may be nothing.;)---------klschup
    klschup 42 Replies
    • January 29, 2008
    • 08:15 PM
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  • Just got tested for strep and mono this past Wednesday. Both were negative. I'm going to take a multivitamin and an iron pill once a day for a week and if I don't see an improvement, my mom is going to find a new doctor to help me. I'm starting to feel a little worse everyday. I'm not sure I've just got an infection right now, along with something else, but my headaches are worse and my lymph nodes are very swollen right now on the left side of my neck. Anyone have any other ideas?
    ilovemusic 6 Replies
    • February 2, 2008
    • 02:44 AM
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  • I haven't lost any weight, I've actually gained a couple of pounds, but it may be muscle cause I figure skate and do gymnastics. I do get night sweats once in a while, sometimes have sudden chest pain, and sometimes have pain in my upper left quadrant (not too often) and it's worse when I breathe in. My hemoglobin was 12.7 for a range of 12.0 - 16.0Range for bilirubin was .2 - 1.3 Not sure if these are important:TSH was 1.34 for a range of .34 - 4.82 (personally I think it's low) I also have others if you need to see those as well. Thank you everyone for your help! You have no idea how much I appreciate it!!According to the TSH, you're on the hyperthyroid side. You need a Free T4 and Free T3, antibodies, and other tests. If your doctor refuses to do them then try healthcheckusa.com to get the tests done yourself.If you're going toward hypothyroidism, your TSH can fluctuate between hyper and hypo. Here are some of the symptoms you can have:http://graves.medshelf.org/SymptomsThis page describes the symptoms of Graves' disease (autoimmune hyperthyroidism) as well as Hypothyroidism (which may result from treatment), Thyroid Eye Disease (aka Graves Ophthalmopathy) and Pretibial Myxedema. This symptom list differs from other lists which you may find on the internet as this list is intentionally more comprehensive and was developed by a group of fellow Graves' patients.Hyperthyroid SymptomsAgitationAmenorrhea (loss of menstrual cycle)Angina painAnkle edemaAnxietyAtrial fibrillationBladder problems - increased urination or polyuriaBlotchy itchy patches of skin without rash - Pretibial myxedema, hivesBrisk reflexesBruitCardiac arrhythmiasCardiomegaly (occasionally)Change in temperature preferenceChange in texture of skin and nailsCongestive heart failureDecreased sleep requirementDepressionDiaphoresisDifficulty breathing, rapid shallow breathing, shortness of breathDizzinessDyspnea (shortness of breath)Emotional disturbances, emotional labilityEye changes, proptosisFatigueFine, warm, moist skinGoiterGraying hair, premature grayingHair and nail changes, increased growthHair lossHeadachesHeartburnHeat intoleranceHigh systolic blood pressureHyper brain, trouble concentrating or comprehendingHyperdefecation - up to 8 bowel movements a day, steatorrhea (increased stool fat due to malabsorption)Hyperhidrosis (increased sweating)Hyper immune system and less of a susceptibility to other diseases, (except for other autoimmune diseases)Hyperpigmentation of skinInappropriate feelings of rageIncreased heart rate, palpitationsIncreased perspirationIncreased digestive motilityInfertility, impaired fertilityIncreased appetiteIncreased bone resporption, bone lossIncreased drug metabolismIncreased perspirationInsomnia, sleep disturbancesInterrupted sleepIrritabiltyIrritable leg syndrome due to nutrient deficiencies – patient may describe ‘bouncy legs’.Loss of muscle massLoss of curl in hairLow cholesterol level which rises with treatmentLowered stamina, weaknessMania and hypomaniaMenstrual cycle changes (Amenorrhea, Oligomenorrhea)Mood swingsMuscle weakness and fatigueNail margins uneven, nails split, nails weak, crackingNausea, vomitingNervousnessNutrient deficienciesOligomenorrhea (scanty menstrual cycle)Onycholysis (separation of nail from it’s bed)Overactive libido is more common in hyper, change in libidoPain or irritation of eyesPalpitations or pounding of heartPanicPeriodic paralysis (rarely)Plummer's nailsPretibial myxedemaProminence of eyes, lid lag, globe lagRestlessnessSwelling of outer surface of shin (pretibial myxedema)TachycardiaThinning of hair (overall shedding)ThrillTirednessTremors, increased movement (hyperkinesis)Tremors of hands, lips, tongueVitiligo (patchy loss of pigmentation in skin - is also an autoimmune disease)Weakness in muscles of shoulder girdle and large muscles of the thighsWeight loss or gain (rapid) (10% of people are reported to have weight gain, usually younger people)Hypothyroid Symptoms (may be due to overmedication with ATD's or the result of RAI or thyroidectomy)Abdominal pain and distentionAnemiaAnxietyAtrial fibrillation (cardiac arrhythmia)Aversion to cold (cold intolerance)Bradycardia (slow heart rate/pulse)Brain Function problems which include (confusion, disorientation, mental fog, memory loss)Carpal tunnel syndromeConstipation – the more hypo we become, the more severe this becomesDecreased body temperatureDepression which worsens if patient moves into myxedema comaDry coarse skin and hairEdemaEmotional lability (unable to control one’s emotions)Enlarged muscle fibers with muscle weakness (Hoffman's syndrome)Eyebrows (outer 1/3 of eyebrows either lose hair, stop growing or have limited growth)Fatigue (can be extreme)Feeling of being overwhelmedGoiterHeadacheHearing loss, deafnessHeavy menses (menorrhagia) & crampingHigh cholesterol and lipid levelsHoarse voiceImpaired blood clottingImpaired digestionImpaired skeletal growthIncreased capillary fragility (bruising)Increased creatine phosphokinase (CPK) levelIncreased diastolic blood pressureIncreased fertility problemsIncreased menstrual cycleInsomniaInterrupted sleepIrregular heart rate (bradycardia or atrial fibrillation)Joint painLack of motivationLoss of initiativeMenorrhagia (heavy menstrual period)Muscle painMyxedema (waterlogged appearance of skin) puffy eyes, face, hands, feetNails changes, nails split, break, get thickenedNasal stuffiness, dry throatNocturnal paresthesia (hands or legs falling asleep)Nutrient deficienciesPalpitationsPanicPolymenorrhea (occurrence of menstrual cycles at frequency that is higher than normal)Severe hair loss (overall shedding or breakage)Severe weight gain even when not eating muchSinus problems and or infectionsSleep apneaSleepiness, lethargy, insomnia, interupted sleepSlow speech (can be slurred at times)Thickened, dry tongue (dry mouth)Thyroid Eye Disease Symptoms (Graves Opthalmopathy)Bad night visionBlurring of visionBulging eyes (exophthalmos)Chemosis (edema/swelling of the mucous membrane of the eyeball and eyelid lining)Corneal abrasionDeteriorating vision (see a qualified Ophthalmologist immediately)Double visionDry eyesEye grittiness (feeling of sand in the eye)Eye strainExtraocular muscle weaknessExophthalmos (protrussion of the eyeball from the socket - bulging eyes)Globe lagHeadacheInability to close eyelids completely to sleepInflammation of eye tissuesLid lagMalabsorption of vitamin A resulting in orange tinted palmsPainful eyesProminence of eyesProptosis (forward displacement of the eyeball)Puffiness of tissues around the eye - often worse in the morningsRed eyesRestricted eye muscle movementSensitive to light, even indoorsStaring appearance to eyes or startled lookSwelling of tissues surrounding the eyesTearing (excessive watering of the eyes or eye)Ulceration of the corneaPretibial Myxedema Symptoms (PTM)Localized thickening of the skin, usually on the lower leg above the ankle but may occur anywhereItching of the affected areaAffected area may be shiny pink to reddish or purple/brown in colorNon-pitting plaques on the affected areaHair follicles are sometimes prominent, giving an orange peel textureElephantitis (in severe form)
    Anonymous 42789 Replies
    • February 2, 2008
    • 04:59 AM
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