Discussions By Condition: I cannot get a diagnosis.

Symptoms and medications for *Ange*

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: *Ange*
  • February 11, 2009
  • 04:59 PM

Here is the list of symptoms for *Ange* from my previous post!



This is a list of my symptoms:
Most of my symptoms affect my left side much more than my right side
Seizures...both petite mal and grand mal
Severe sensitivity to light, motion and loud sounds (causes slurred/stuttered speech, instability, coordination issues and vision problems (double vision, blurry vision, etc. and rapid eye movement)
Tingling of my head (not scalp...deeper)..mostly occurs on the left side
Severe headaches (lasting a day or more with nausea)
Pain throughout my body (extreme episodes lasting 2-3 days, or more)...pain is more of a gnawing/achy/crampy pain
Feeling of eyes twitching/moving uncontrollably
Metallic taste in my mouth (made worse as symptoms increase)
Lower back pain/cramping
Shoulder pain
Tightness of chest and stomach (feels like something is wrapped around me) (stomach pain is not affected by diet and is mainly present upon waking...lets up within 20-30 minutes of walking/moving)
Sore spots (outside of wrists, elboes, shoulders and top of feet)
Lack of feeling in one finger and one toe (both on the right side)
Severe Fatigue
Muscle weakness (feels like I'm going to tear my muscles when using them for simple tasks)
Knee pain and severe stiffness
Numbness in feet, legs, hand and arms
Occasional heart palpatations (while doing nothing physical)
Eyes feeling very tired and heavy, with quick onset
Feeling of vibration moving through me
Extremely cold hands and feet while resting (while the rest of my body is warm)
When startled of subject to fast moving objects I see lighted shapes when my eyes are closed
Involuntary jerking/tremor of muscles
Intention tremors (picking up small objects)
Incontinence (coming out of no where)
Taste and smell not right (both over sensitive and under sensitive)
Sores that develop in the mouth (both on the tongue and inside cheeks/lips...feel as though it has a head on it...last about 1-2 days and happens very infrequently)
Stumbling/balance issues (made much worse when subject to the light, movement and loud sounds)
Feeling tongue tied (know what I want to say but can't seem to get my brain to work with my mouth to get it out)
Difficulty grasping things (ex.---cups)
Constipation and IBS like symptoms (vary)
Excess saliva (drooling...both in my sleep and during ordinary activities)
Memory issues (short term and some long term)
Severe heart burn (acid reflux)
Akathesia (internal tremor) (feeling as though I'm shaking from the inside out)
Brain fog (just not being able to get my head above the clouds type feeling)
Difficulty projecting voice, very soft voice
Hoarseness of voice
Difficult writting....either due to tremor, pain/inability to grasp pencil or lack of concentration to do so)
Dizziness (varies in severity)
Dry mouth (feeling as though I can't get enough to drink to quench it)
Hair loss (developing a small bald spot on upper right side)
Hand/arm/leg/foot swelling
Head tremor (bobbing as we call it)
Heavy feeling of extremities
Hip pain and weakness
Startle easily (and have after effects as well...similar to those listed under light sensitivity)
Numbness and Tingling of extremities (worse during sleep or periods of rest)
Jaw and face pain/tightness
Mood swings
Knee pain/stiffness
Increased symptoms due to stress!!!!!!!
Lack of coordination/balance
Slowness of thoughts/speech
Taking smaller steps than usual (shuffling of feet)
Slight limp
Episodes of fear with no real cause (one episode to date)

Things I've found that seem to help.....
Shaking one of my hands when my head is bobbing seems to keep it from bobbing as much (some of the time)
Sleeping it off (as I call it) helps with the problems I have following the light, sound and movement sensitivity. It's almost like it resets me
Massage helps with the pain, sometimes
Heat seems to help my pain more than cold
Wearing dark sunglasses and a hat when out in bright light does help reduce the after effects (along with avoid blinking lights or bright colors)
A cold rag on the base of my neck or on my forehead does sometimes help with the headaches (caffiene seems to make it worse and brings on nausea)
Resting my voice seems to temporarily help, but it doesn't last long

Current Medications:
Dilantin--360mg per day (all taken at bed)
Low-Ogestrel 28 Day Tab (taken once per day)
Mirapex--.125mg
(.125mg in the morning)
(.125mg early afternoon)
(.25mg at bed)
(increased from .125mg to .25mg at bed on 2/4)
Tums extra strength--2-6 tablets daily...as needed for heartburn (from 1/30-2/3, taken as needed from then on)

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  • Here is the list of symptoms for *Ange* from my previous post! This is a list of my symptoms:Most of my symptoms affect my left side much more than my right side Seizures...both petite mal and grand malSevere sensitivity to light, motion and loud sounds (causes slurred/stuttered speech, instability, coordination issues and vision problems (double vision, blurry vision, etc. and rapid eye movement)Tingling of my head (not scalp...deeper)..mostly occurs on the left sideSevere headaches (lasting a day or more with nausea)Pain throughout my body (extreme episodes lasting 2-3 days, or more)...pain is more of a gnawing/achy/crampy painFeeling of eyes twitching/moving uncontrollablyMetallic taste in my mouth (made worse as symptoms increase)Lower back pain/cramping Shoulder painTightness of chest and stomach (feels like something is wrapped around me) (stomach pain is not affected by diet and is mainly present upon waking...lets up within 20-30 minutes of walking/moving)Sore spots (outside of wrists, elboes, shoulders and top of feet)Lack of feeling in one finger and one toe (both on the right side)Severe FatigueMuscle weakness (feels like I'm going to tear my muscles when using them for simple tasks)Knee pain and severe stiffnessNumbness in feet, legs, hand and armsOccasional heart palpatations (while doing nothing physical)Eyes feeling very tired and heavy, with quick onsetFeeling of vibration moving through meExtremely cold hands and feet while resting (while the rest of my body is warm)When startled of subject to fast moving objects I see lighted shapes when my eyes are closedInvoluntary jerking/tremor of musclesIntention tremors (picking up small objects)Incontinence (coming out of no where)Taste and smell not right (both over sensitive and under sensitive)Sores that develop in the mouth (both on the tongue and inside cheeks/lips...feel as though it has a head on it...last about 1-2 days and happens very infrequently)Stumbling/balance issues (made much worse when subject to the light, movement and loud sounds)Feeling tongue tied (know what I want to say but can't seem to get my brain to work with my mouth to get it out)Difficulty grasping things (ex.---cups)Constipation and IBS like symptoms (vary)Excess saliva (drooling...both in my sleep and during ordinary activities)Memory issues (short term and some long term)Severe heart burn (acid reflux)Akathesia (internal tremor) (feeling as though I'm shaking from the inside out)Brain fog (just not being able to get my head above the clouds type feeling)Difficulty projecting voice, very soft voiceHoarseness of voiceDifficult writting....either due to tremor, pain/inability to grasp pencil or lack of concentration to do so)Dizziness (varies in severity)Dry mouth (feeling as though I can't get enough to drink to quench it)Hair loss (developing a small bald spot on upper right side)Hand/arm/leg/foot swellingHead tremor (bobbing as we call it)Heavy feeling of extremitiesHip pain and weaknessStartle easily (and have after effects as well...similar to those listed under light sensitivity)Numbness and Tingling of extremities (worse during sleep or periods of rest)Jaw and face pain/tightnessMood swingsKnee pain/stiffnessIncreased symptoms due to stress!!!!!!!Lack of coordination/balanceSlowness of thoughts/speechTaking smaller steps than usual (shuffling of feet)Slight limpEpisodes of fear with no real cause (one episode to date) Things I've found that seem to help.....Shaking one of my hands when my head is bobbing seems to keep it from bobbing as much (some of the time)Sleeping it off (as I call it) helps with the problems I have following the light, sound and movement sensitivity. It's almost like it resets meMassage helps with the pain, sometimesHeat seems to help my pain more than coldWearing dark sunglasses and a hat when out in bright light does help reduce the after effects (along with avoid blinking lights or bright colors)A cold rag on the base of my neck or on my forehead does sometimes help with the headaches (caffiene seems to make it worse and brings on nausea)Resting my voice seems to temporarily help, but it doesn't last long Current Medications:Dilantin--360mg per day (all taken at bed)Low-Ogestrel 28 Day Tab (taken once per day)Mirapex--.125mg (.125mg in the morning)(.125mg early afternoon)(.25mg at bed)(increased from .125mg to .25mg at bed on 2/4)Tums extra strength--2-6 tablets daily...as needed for heartburn (from 1/30-2/3, taken as needed from then on)Have you had a 24 hour provoked heavy metals urines screen for heavy metal toxicity?Alot of the symptoms you mentioned can be caused by chronic mercury poisoning.Its important to get this tested by using a provoking agent like dmsa and then collecting all urine passed for 24 hours which is then tested.You might need to do this with a specialised or private lab as i dont think all labs do it.Getting a blood test for mercury,lead etc at the doctors isn't any use in this situation as it only shows recent exposure.It would be worth doing if you feel you could have had some recent exposure to metals but if not its much more beneficial to do the 24 provoked test.Regarding your stiffness and pains-have you had ana test,rheumatoid factor,esr etc?Also have you been tested for candida?I dont know how they do this or if theres tests for it though.A vagina swab that was clear wouldnt completely rule it out as a person can have overgrowth in the stomach and not the genitals.Do you have any signs of mucus congestion such as clearing your throat alot,sniffling alot,coughing up phlegm,or mucus in stools or anything else?
    Anonymous 42789 Replies
    • October 29, 2009
    • 06:21 PM
    • 0
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