Discussions By Condition: I cannot get a diagnosis.

Swollen Spleen among other things... undiagnosed.

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Sekkusu
  • April 25, 2007
  • 06:18 PM

My girlfriend's spleen became swollen one day, which we didn't know until she went to the doctor and was diagnosed with such (of course it was also visible by her ribs sticking out more on one side than the other.) This is so far undiagnosed.

Notes:

Swollen Spleen (has been swollen for 3 weeks)
Test results indicating anemia (she also tested positively for anemia a year ago before any of these other symptoms.)
Fatigue (Sleeping 16 hours a day isn't uncommon.)
Doctor thought it was Mono, but no sore throat and the EBV test came back positive.
She was given corticosteroids (Prednisone) for three days but it didn't do anything for the swelling (usually the results are very quick) so she was taken off.
She experienced muscle aches and pains after stopping the Prednisone and through the course of those few days she gained around 5 pounds (she's light to begin with) although she also had her period at the same time.
She's had constant headaches for a long time (a couple a week isn't uncommon.)
Two of her nieces have alpha hetero thalassemia, but their mother (her sister) didn't test positive. Don't know if they did a DNA test though.
Her lymph nodes were swollen for a couple of days after she stopped taking Prednisone, but they weren't swollen an abnormal size.
One day she had a headache that she said was centered around her eye, and she also had blurred vision that lasted an hour or so. She could read what was right in front of her but not the board across the room.So, if you have any ideas, or if you have any questions about her, let me know. She's scheduled to get a contrast CT scan after May 1 when her insurance changes kick in, and I think she's getting another blood test this week. She had a full chemical blood test when it all started that I have access to.

Thank you for your time reading and replying. :)

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7 Replies:

  • if the EBV test came back positive, why don't you think it's mono? It sure sounds like it.
    Anonymous 42789 Replies Flag this Response
  • if the EBV test came back positive, why don't you think it's mono? It sure sounds like it.I'm a total idiot. I meant to say it came back negative. Whoops.Also I don't know how these forums work, but if a moderator reads this could you change my original post to say it came back negative? :(
    Sekkusu 3 Replies Flag this Response
  • When did this problem start? It can take weeks after infection with EBV before antibodies are produced. Many times people can have fale-negative tests so it's recommended the test be ran again shortly after the symptoms resolve. She can also be tested for Cytomegalovirus (CMV) which can cause mono-like symptons as well.
    Anonymous 42789 Replies Flag this Response
  • When did this problem start? It can take weeks after infection with EBV before antibodies are produced. Many times people can have fale-negative tests so it's recommended the test be ran again shortly after the symptoms resolve. She can also be tested for Cytomegalovirus (CMV) which can cause mono-like symptons as well.Probably 2-3 weeks ago.
    Sekkusu 3 Replies Flag this Response
  • check out this site ahummingbirdsguide.com see how many sx pertain to you. there are so many people on this site with so many similar sx that it's getting reaaly scary...good luck and let me know how things turn out...mommy cat
    mommy cat 1654 Replies Flag this Response
  • check out this site ahummingbirdsguide.com see how many sx pertain to you. there are so many people on this site with so many similar sx that it's getting reaaly scary...good luck and let me know how things turn out...mommy catIs that supposed to be a joke website? They list pretty much every symptom anyone could possibly have.Anyways, thanks for the help so far, and as soon as her primary provider signs off on it she'll probably get a CMV test and a CT scan.
    Sekkusu 3 Replies Flag this Response
  • the website is not a joke and if someone you love is having several sx of this disease, it is in their best interest to be checked out. Read the list to her and heave her write down yes or no for the sx, it is viral and affects several different systems of the body. Just trying to help...Good luck...mommy cat
    mommy cat 1654 Replies Flag this Response
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