Discussions By Condition: I cannot get a diagnosis.

swollen lymph nodes (groin) + other symptoms

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: Anonymous
  • June 5, 2007
  • 05:54 AM

Hi, I have been searching for answers on line, visited many specialists and have had repeated visits to my family physician due to the fact that I have been experiencing, for about 5 years, periodic/reocurring (and very tender) swollen lymph nodes in the groin area accompanied by what appears to be a boil/abscess of some sort at the base of my tailbone (between the "cheeks") which is very itchy, tender/painful, red/swollen and there is always a pain/tenderness that seems to run from the swollen node, around the hip, to the spot on my back. This most recent 'outbreak' (as I've come to refer to it due to lack of better term) included pain that seemed to throb within my vein from the same area of the groin, wrapping around the back of the right leg and behind the knee, down the inside-side of the calf and down to my foot (top, side and underneath). Additionally, for a period of approximately 12 hours prior, I felt like I was developing a cold and had unusual cramping approximately 24 hours prior (I do not normally cramp and/or bloat during my menstrual cycle). It may also be noteworthy to mention that about 7 years ago, I inexplicably went from 120 pounds (which I weighed for the majority of my teen years until 21) to under 100 pounds and have never been able to gain back the weight (I am 5'6" and hover around 98-101 pounds). I've even tried weight-gain powders designed for weight lifters and so on. Also, when I eat, I feel incredibly tired/drained afterward and I either don't gain weight or I sometimes lose weight. Additionally, I feel almost constantly drained of energy. I have also noted that this 'outbreak' is sometimes following a very stressful time (such as an insanely busy work week). My doctor has 'diagnosed' and subsequently prescribed various medications, all the while assuring me that "this time got it", which needless to say, have been incorrect (his diagnosis range from glutten intolerance (initial(at onset of weight loss) to herpes zoster (this was the last diagnosis prior to this most recent experience closely related to the chicken pox virus) (but in reviewing the symptoms associated with the latter, mine neither 'match up' nor did the very expensive medication "cure" it as I was essentially promised by my physician...obviously or I wouldn't be pleading for help now)). I have grave concerns that he is missing something that could be signs of something more serious (he rarely provides any patient more than 10 to 15 minutes to discuss your concerns/symptoms and often shrugs any suggestions off unless you are very persistent - if there's adequate time to be) as this seems to be worsening, allbeit slowly, over time. By way of a bit of family history, my mother had 2 bouts of cervical cancer, ultimately undergoing a full hystorectomy - - but not until after 3 miscarriages....I was the lucky one. (My Mom's experience was under the care of the same physician. Some may ask why I haven't switched....and the answer to which is, the city in which I reside has an incredible shortage of physicians and none currently in practice are taking new patients - even on a 'second opinion' only basis). I am at a complete loss and have virtually nowhere to turn for answers/possible answers. As previously indicated, I've searched the web and I have encountered many possible 'matches' but at the same time, nothing seems to describe what I deal with and often leaves me more confused and ultimately, scared, than before I began attempting to sort this out on my own. I would be most appreciative of any suggestions/possible 'diagnosis' (which I would discuss with my physician, of course). Lastly, in an effort to keep this short, I did not include every symptom....only the most prevalent and each time I experience this, I am able to 'connect more dots', per se. Even in reading other peoples' submissions, I noted that I often have pain under the skin (normally in my legs) which I hadn't realized was a 'ligitimate' medical concern. To whomever has made it this far in my rambling, I graciously thank you for your time. And despite possibly sounding and my phsycian making me at times feel like one, I am not a hypochondriac!

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11 Replies:

  • Look up pilonidal cyst. Maybe it is infected and is playing havoc with your health.
    rad-skw 1605 Replies Flag this Response
  • swollen lymph nodesboil/abcessgroin/leg pain"developing a cold"cramping with cyclesymptoms increase with cycleunable to gain weightsymptoms increase with stressgluten intolerance(been tested for celiac disease?)possible herpes/chickem pox virus(been tested for HH6?)Mother's history3 miscarriages2 bouts of cervical cancerhysterectomyIt could just be a cyst playinf havoc with your health
    Anonymous 42789 Replies Flag this Response
  • Maybe herpes.Or tick fever,shingules.might go to webmd
    springhopes 5 Replies Flag this Response
  • A cyst would not cause all of that and doesn't explain your mothers symptoms. Look into Chronic Fatigue Syndrome. not the cyst.
    Anonymous 42789 Replies Flag this Response
  • try this, go to google. Enter "symptom checkers". Enter your symptoms. See where it takes you. Good Luck
    Anonymous 42789 Replies Flag this Response
  • Check for both HSV 1 and 2. The blood test
    dfrans 1 Replies Flag this Response
  • Wow, this is some list of family history and symptoms to contend with. Ok, let’s break this down: Cancers, Miscarriages, Cyclical Cramps, Gluten Intolerance/Celiac Disease, Weight Issues/Concerns, HHV-6, Swelling Lymph Nodes, Mother’s (and no doubt Family) History….I shall insist that this list of symptoms does not constitute displays of Hypochondria. Let’s take on the approach of observing the whole picture…the “never ending cascade of symptoms” in your case, leads me to believe that there is something more serious going on within your body. Something much more complex than a pilonidal cyst. Rad-skw suggested that you should check it out. The symptoms of pilonidal cyst includes: Pain at the bottom of the spine, Swelling at the bottom of the spine, Redness at the bottom of the spine, draining pus and fever. I do not see how this co-ordinates with the symptoms you are describing. What I do see however, is a scrambled chain of symptoms that appear to fulfil the criterion for an illness called “Chronic Fatigue Syndrome” or also known as CFS or ME. The symptoms you (and your family) display, illustrate a disquieting connection. Each symptom that I have derived from your post can be traced back to this illness. I suggest that you might look further in-depth into your family history, including a focus on: lifestyle, trauma and emotional well-being, previous highly significant illness and immunisation. All of these events play a huge part in the “development”, “severity” and “activity” of this illness. Immunisation has become a huge topic in relation to this particular illness in question. Pay particular attention to dates of immunisation (both yours and your family’s), onset or worsening of symptoms, and any other correlation you can draw from….the more information you are able to obtain, the better the clarity of understanding. It may also help to check out a trusted website to compile and make sense of your symptoms. Print out your researched findings and take them to your Dr, it really does help if you have documentation. Lastly, it may be beneficial if you browse this site for other posts. This will broaden your understanding, and maybe even give you a little comfort. You may be surprised that an alarming rate of individuals are complaining of the same if not similar symptoms, and subsequently are being diagnosed with this illness. Good Luck with your endeavour, consult your Dr, and keep us posted.
    EmilyMcN 67 Replies Flag this Response
  • Hi, I have been searching for answers on line, visited many specialists and have had repeated visits to my family physician due to the fact that I have been experiencing, for about 5 years, periodic/reocurring (and very tender) swollen lymph nodes in the groin area accompanied by what appears to be a boil/abscess of some sort at the base of my tailbone (between the "cheeks") which is very itchy, tender/painful, red/swollen and there is always a pain/tenderness that seems to run from the swollen node, around the hip, to the spot on my back. This most recent 'outbreak' (as I've come to refer to it due to lack of better term) included pain that seemed to throb within my vein from the same area of the groin, wrapping around the back of the right leg and behind the knee, down the inside-side of the calf and down to my foot (top, side and underneath). Additionally, for a period of approximately 12 hours prior, I felt like I was developing a cold and had unusual cramping approximately 24 hours prior (I do not normally cramp and/or bloat during my menstrual cycle). It may also be noteworthy to mention that about 7 years ago, I inexplicably went from 120 pounds (which I weighed for the majority of my teen years until 21) to under 100 pounds and have never been able to gain back the weight (I am 5'6" and hover around 98-101 pounds). I've even tried weight-gain powders designed for weight lifters and so on. Also, when I eat, I feel incredibly tired/drained afterward and I either don't gain weight or I sometimes lose weight. Additionally, I feel almost constantly drained of energy. I have also noted that this 'outbreak' is sometimes following a very stressful time (such as an insanely busy work week). My doctor has 'diagnosed' and subsequently prescribed various medications, all the while assuring me that "this time got it", which needless to say, have been incorrect (his diagnosis range from glutten intolerance (initial(at onset of weight loss) to herpes zoster (this was the last diagnosis prior to this most recent experience closely related to the chicken pox virus) (but in reviewing the symptoms associated with the latter, mine neither 'match up' nor did the very expensive medication "cure" it as I was essentially promised by my physician...obviously or I wouldn't be pleading for help now)). I have grave concerns that he is missing something that could be signs of something more serious (he rarely provides any patient more than 10 to 15 minutes to discuss your concerns/symptoms and often shrugs any suggestions off unless you are very persistent - if there's adequate time to be) as this seems to be worsening, allbeit slowly, over time. By way of a bit of family history, my mother had 2 bouts of cervical cancer, ultimately undergoing a full hystorectomy - - but not until after 3 miscarriages....I was the lucky one. (My Mom's experience was under the care of the same physician. Some may ask why I haven't switched....and the answer to which is, the city in which I reside has an incredible shortage of physicians and none currently in practice are taking new patients - even on a 'second opinion' only basis). I am at a complete loss and have virtually nowhere to turn for answers/possible answers. As previously indicated, I've searched the web and I have encountered many possible 'matches' but at the same time, nothing seems to describe what I deal with and often leaves me more confused and ultimately, scared, than before I began attempting to sort this out on my own. I would be most appreciative of any suggestions/possible 'diagnosis' (which I would discuss with my physician, of course). Lastly, in an effort to keep this short, I did not include every symptom....only the most prevalent and each time I experience this, I am able to 'connect more dots', per se. Even in reading other peoples' submissions, I noted that I often have pain under the skin (normally in my legs) which I hadn't realized was a 'ligitimate' medical concern. To whomever has made it this far in my rambling, I graciously thank you for your time. And despite possibly sounding and my phsycian making me at times feel like one, I am not a hypochondriac!have you been checked for STD's? If not get checked immediately if you have don't take no for an answer or get another MD who listens to you and doesn't patronize. Make a list of all your symptoms even if they seem insignificant and dont give upgood luck
    Anonymous 42789 Replies Flag this Response
  • Chronic Fatigue Syndrome often mimics STD's. Many have symptoms/positive results for Chlamydia, Syphillis and othersSome have no positive test for STD's but continue with symptoms related to these diseasesOne girl was tested for syphillis 4 times, each result negativeDoctor's were convinced she had SyphillisShe didn't. She had CFSjust to let you know
    Anonymous 42789 Replies Flag this Response
  • with groin swelling, don't overlook a skin cancer in the lower extremities.
    Anonymous 42789 Replies Flag this Response
  • I have some similar symptoms. I have two very swollen lymph nodes on the right side of my groin, an itchy red bump (looks like a mosquito byte) on the right side of my tailbone, and woke up this morning with severe cramping that lasted most of the day. I experienced this in May as well. My doctor told me that I must have gotten a bite and scratched it, leading to an infection which in turn would cause my lymph nodes to become swollen. He prescribed Mupriocin which did not help. It is odd to me however, that if it was infact a bite that I scratched, why would it return in the exact same place 7 months later? Have you had any luck as of your last post?
    Anonymous 42789 Replies
    • December 5, 2009
    • 05:01 AM
    • 0
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