Discussions By Condition: I cannot get a diagnosis.

Swollen Lymph Nodes, Fever, Night Sweats at 25-30 day interval for almost a year.

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: theomars1
  • July 6, 2007
  • 05:26 AM

:confused: I am a male 21 year old college student. For 10 months I have been getting sick 3-4 days out of every month at 25-30 day intervals. This has interrupted my college classes and work part time. I have swollen cervical lymph nodes, extreme fatigue, night sweats, insomnia, high fever, and severe scalp flaking. I am seeing my primary care doctor as well as an ENT and Infectious Disease Specialist. I have been tested constantly with no results. Everything has been negative except high liver functions which goes back to normal after I get through the 4 days of sickness. I have had a fine needle biopsy as well as an excisional cervical biopsy to rule out Lymphoma, Hodgkin's Disease and Kichuchi Disease. It came back and said I have reactive lymphoid hyperplasia.

I have had a Gallium Scan as well as CT scans of my neck, abdoman, and pelvis with/without contrast which were negative. I have had the usual HIV, Mono, TB, Hepatitis blood tests, urine tests and been cultured for fungus and bacteria. I was just given a full work up of blood tests to check my immune system (IgA,IgM,IgG, IgE Immunoglobin) and it came back negative. I am scheduled for a PET Scan next week.

Here are some of the names of my blood tests that were negative.
Immunofixation, herpes simplex, toxoplasma, anti nuclear, CMV 1GG Panel, Ehrlichia, EHR.Chaffeensis, Brucella antibody, Chlamydia, Q Fever, Epstein Barr.

Unfortunately my doctors do not think I might have Chronic Fatigue Syndrome even though I show them all kinds of research about the disease. I don't know where to turn next. I take a men's multivitamin and I am starting Enzymatic Therapy Energy Revitalization as well as a Enzymatic Sleep formula. What doctor do I see who will be willing to try something new?

I am getting very depressed as I keep getting sick and am not finding any results so I can be treated. I can't imagine what other tests are available. Is there anyone out there who can tell me what I should be doing or who I should see next? I am in the Orlando, Florida area. I am beginning to feel like my doctors are "grasping at straws".

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3 Replies:

  • Your doctors could be wwrong. You have classic symptoms of CFS.Research Mycoplasmas...CFS....ME.... Please read 'The Truth About CFS""The Truth About The Truth""CFS/ME/Morgellons/Alzheimers There are so many in this forum having similar symptoms. I am one of those people. You are not alone. Your illness is real. Hope this message finds you feeling better...regards, mommy cat:)
    mommy cat 1654 Replies Flag this Response
  • Find a local doctor who is already treating patients with CFS. Then at least you know he/she believes that it even exists...because it does.Be well...mommy cat
    mommy cat 1654 Replies Flag this Response
  • Have you been checked for leukemia?
    Anonymous 42789 Replies Flag this Response
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