Discussions By Condition: I cannot get a diagnosis.

swollen lymph nodes and joint pain

Posted In: I cannot get a diagnosis. 30 Replies
  • Posted By: desperatelady
  • March 2, 2007
  • 08:21 PM

I am 28 yrs old. I've had headaches, I have swollen lymph nodes in my neck and a larger lymph node on the left side on the back of my head. I have had joint pain that was moving around. Now it has stopped moving around and the main pain is in my left knee. The lymph node on the back of my head wasn't painful until 2 days ago. This all started about 7 weeks ago...it came on suddenly also. (I woke up in pain) I've been to several doctors and have been diagnosed with a virus....but not sure what kind. The next doctor which I was reffered to by my GP says arthritis...Now I'm waiting to get into a rhumetologist (which the internal med dr reffered me to) I'm not able to get in for another month and I'm getting desperate.... Anyone heard of anything like this??????

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30 Replies:

  • could it be fibromyalgia or Chronic Fatigue Syndrome? I'm not sure what specialist you see for those illnesses, but a rheumatologist is probably the place to start. Has your doctor ever suggested these diagnoses?
    Anonymous 42789 Replies Flag this Response
  • sounds like you have gotten avian bird flu. have a doctor test you for it as soon as possible since this is a lethal virus.
    Anonymous 42789 Replies Flag this Response
  • sounds like you have gotten avian bird flu. have a doctor test you for it as soon as possible since this is a lethal virus.NO.. it is clearly cancer.
    Anonymous 42789 Replies Flag this Response
  • Lyme disease and its co-infections. The tests aren't always right, part of dx goes by symptoms. www.lymenet.org hope you feel better soon.
    Anonymous 42789 Replies Flag this Response
  • Check out Hodgkins disease....
    Anonymous 42789 Replies Flag this Response
  • They've given me a CT Scan and said everything looked ok other than the swollen lymph nodes in my neck... The latest they've said is that if they are still swollen when I see the rhumetologist they want to biopsy the lymph nodes (especially the one on the bottom left of the back of my head) However my appointment isn't for another month. I will research some of your suggestions though. Thanks and keep the suggestions coming!!!
    desperatelady 6 Replies Flag this Response
  • Also I'm not extremely tired and have no other physical symptoms.... (Cold, nasuea, etc....) Just headaches, joint pain and swollen lymph nodes...??????? I think that is what has the doctors so puzzled b/c other than that I feel ok..
    desperatelady 6 Replies Flag this Response
  • could it be fibromyalgia or Chronic Fatigue Syndrome? I'm not sure what specialist you see for those illnesses, but a rheumatologist is probably the place to start. Has your doctor ever suggested these diagnoses?I'm not very tired and don't have any muscle aching?? That is probably why they haven't suggested these...
    desperatelady 6 Replies Flag this Response
  • NO.. it is clearly cancer.According to my doctors I do not have lymphoma or anything serious because my CT Scan looked ok..... But I guess doctors have been know to misdiagnose too!
    desperatelady 6 Replies Flag this Response
  • Lyme disease and its co-infections. The tests aren't always right, part of dx goes by symptoms. www.lymenet.org hope you feel better soon.The doctors have asked several times if I've gotten bit by a tick. The last one I was aware of was July of 2006. They have done a LOT of blood work though but I don't know if they specifically looked at that... Thanks and I will definately check the website out!!
    desperatelady 6 Replies Flag this Response
  • Also I don't know if this has anything to do with it.... BUT....I had a baby 4 1/2 months ago and I did have an epidural.... Some people have suggested there may be a correlation, however my doctor didn't seem interested
    desperatelady 6 Replies Flag this Response
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  • Lupas is my best guess ...hard to diagnoseIts more painful...than serious...somdays you feel like your gonna die. its very painful. It comes in flare ups then it goes away making it hard to diagnose.
    Anonymous 42789 Replies Flag this Response
  • I'd be interested to understand what you've found out since March.
    Anonymous 42789 Replies
    • October 23, 2007
    • 02:38 AM
    • 0
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  • you poor thing. some of these answers are just bizarre. Hodgkins disease doesn't come on all of the sudden and many of the other replies are just as stupid! You don't have avian flu but maybe psittacosis, which is an infectious disease easily treated with antibiotics. Please calm down and think about this logically----- All the sudden you wake up sick and you have swollen glands that are painful.....yes! you have an infection. Do yourself a favor and go to an infectious disease doctor because it sounds like your gp is too stupid to run the necessary tests on you himself. Could be mono, epp-barr, cytomrgalovirus, psittacosis, brucellosis, lyme.Don't even go to a rheumatologist and get yourself pushed down the road of endless testing and bogus diagnoses such as fibro and cfs!!!
    Anonymous 42789 Replies
    • October 23, 2007
    • 02:50 AM
    • 0
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  • READ THIS URGENTLY AND PLEASE TAKE NOTE!!!!!!!!THIS IS LYMPHOMA You need a biopsy NOW especially a bone marrow one. My Husband 12 wks ago got sick and was diagnosed with stomach ulcers (wrongly). I took him to the hospital and after a few days was diagnosed with what i suspect you have "LYMPHOMA" (Cancer of the lymph nodes). They switched his life support off 21 days later. It is agressive and fatal and the fact your lymph nodes are swollen as were his (lit up like a christmas tree in the PET scan). Doctors, specialists etc all are in shock at his death and misdiagnosis but I beg you to bully your doctors to test you immediately. Chemotherapy is only effective if treated early enough. While len was being diagnosed the lymphoma took over his body and he was loaded with cancer. It came on suddenly with no symptoms. He ran three times a week and went to the gym three times a week for 37yrs, did not smoke, was not overweight but bang, the ******d disease just appeared, ravaged and killed him in 21 days. Allegedly he had lymphoma(non hodgkinsons low grade) hah! wrongHe had the most agressive form known and it is rare especially for someone who is so healthy. Only on the day of turning off his life support did the professor of Haematology come to me and show me the DNA of his bone marrow biopsy and said he probably had been dead for about 5days except the life support (breathing machine, and dialisis machine ) were keeping him alive. The dialisis machine show his blood clotting and all hope was lost. He took two minutes to die as opposed to two days etc they warned us. I IMPLORE YOU P-LEASE BULLY DOCTORS AND BE RELENTLESS GET TESTED AS THE SO CALLED PROFESSORS ETC MISDIAGNOSED HIM AND IT COST HIM HIS LIFE, ME A HUSBAND A HIS CHILDREN A FATHER, HIS GRANDSON IS DUE TO BE BORN IN DECEMBER (NOT FAIR). DOCTORS ARE NOT ALWAYS RIGHT AND PLEASE TRUST YOUR INTUITION BECAUSE TIME = DEATH IF UNDIAGNOSED.
    Anonymous 42789 Replies
    • October 23, 2007
    • 07:38 AM
    • 0
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  • Thank you for sharing you incredibly sad story. You are the exact reason this board exists...to share stories, self-experience, of possible diagnoses and mis-diagnosis. Yes we all have our pet theories about some symptoms, but often someone will come back to the board with a diagnosis that someone had mentioned earlier, or something totally unrecognized by any of us. But now it will be on a post, and can be referenced. By flinging out ideas, hopefully some bit of info will click and hopefully make a wrong diagnosis, correct. Thanks to the people who organized this board, and to the moderators who keep us on track.
    rad-skw 1605 Replies
    • October 24, 2007
    • 08:44 AM
    • 0
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  • Make sure your husband's siblings are tested.
    rad-skw 1605 Replies
    • October 24, 2007
    • 08:50 AM
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  • I would like to know what out come you had, you see I have the same symptoms but my swollen lymp node is on the back of the right side of my neck.
    Anonymous 42789 Replies
    • November 12, 2007
    • 00:38 PM
    • 0
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  • Very strange... I am 26 years old and having almost the exact same symptoms. :eek: Did you ever get a diagnosis? I'm dreading going through a million tests at the doctor's. I'm hoping you can help me avoid many of them. Here are my symptoms (which are nearly identical to yours): headaches, swollen lymph nodes in my neck and back of my head, joint pain that is moving around (but seems to be staying in my wrists/hands/knees the last couple days). Every once in awhile I feel a little dizzy/disoriented. However just like you, I'm not tired and don't have muscle aches either. And this is the wierdest thing... I too had a baby 4 1/2 months ago (7/9/07) and had an eipdural... I thought I was imagining most of these symptoms & then when I read your posts I actually couldn't believe how similar our symptoms are! Please respond ASAP as to whether you have received a diagnosis/treatment. I just want to reassure myself that it's nothing serious. I tend to worry too much!:confused:
    sshirk 1 Replies
    • November 29, 2007
    • 07:23 PM
    • 0
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  • One blood test can check for lupus, RA, lyme, ect. Can your GP do that while waiting for an appointment. Why go to an RA doc if you don't have RA. Research lyme disease for the most accurate tests. I started out the same way. Swollen lymph nodes and migrating joint pains. Fatique comes later....
    Anonymous 42789 Replies
    • November 30, 2007
    • 06:18 AM
    • 0
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