Discussions By Condition: I cannot get a diagnosis.

swollen groin lymp nodes

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: hearts97
  • September 8, 2008
  • 05:38 PM

my 15 yr old had a bump on his groin, no pain, thought to be a hernia, took to surgen, said infection. gave antibiotics, only got bigger. sent to oncologist, took all kinds of test including pet scan, said it lit up everywhere. said he had lymphoma. did a biopsy and was to insert a mediport, surgeon said freeze only showed infection. took two spots out said were so full of puss. waited 2 wks for biopsy report and said it is a granuloma. sarcoidosis. my son has no symptoms of this. will see infectious disease dr next week, could it be possible he had no cancer in the lymph they took out? why did the pet scan light up everywhere, neck, tonsils, chest. groin and pelvic. anyhelp? feel like i am getting the run around.

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9 Replies:

  • A medical history would be helpful, such as whether he was prone to infection as a child, does he have a fever? Any family history of anything? Was he sick before all this started?
    qwertyuiop123 453 Replies
    • September 8, 2008
    • 10:55 PM
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  • Granulomas are seen in a variety of diseases such as Crohn's disease, tuberculosis, leprosy, sarcoidosis, berylliosis and syphilis. It is also a feature of Wegener's granulomatosis and Churg-Strauss syndrome, two related autoimmune disorders.
    qwertyuiop123 453 Replies
    • September 8, 2008
    • 11:04 PM
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  • he has no history of illness, he runs no fever, only fatigue. i havent seen the full report but the dr said granuloma sarcoidosis, i think necrotizing, not the turberculosis one, its just that what i read on the computer about it he has no signs of that. no trouble breathing etc. he does always seem to have what i call sounds like a whooping cough. he had a pulminory test done and it all came back fine. his blood work was fine, showed no signs of infection, i am just concerned about the pet scan and the fact that i heard that where they did the biopsy may have just not had cancer cells in it, the dr had even put him at a stage three after the pet scan, and now says there is no sign of cancer? you hear so many stories. if he had infection i would think he would run fever exspecially with it being spread all over and also in the tissue. his uncle did have hodgkins, non, just recovered and in remission for a yr now, thanks for any help.:confused:
    hearts97 1 Replies
    • September 9, 2008
    • 02:04 PM
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  • As far as I understand the granulomas caused by sarcoidosis are called caseous granulomas, and sarcoidosis is not the only thing that can cause them, i am looking into other causes now.
    qwertyuiop123 453 Replies
    • September 9, 2008
    • 05:09 PM
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  • What is your ethnicity?
    qwertyuiop123 453 Replies
    • September 9, 2008
    • 05:20 PM
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  • I think I may have found something, though the articles are over my head http://www3.interscience.wiley.com/journal/120063149/abstract?CRETRY=1&SRETRY=0 http://www.ncbi.nlm.nih.gov/pubmed/6969210
    qwertyuiop123 453 Replies
    • September 9, 2008
    • 05:34 PM
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  • The conditions in both articles seem to be caused by conditions with quite a few symptoms he doesn't have. Hmmm.... its weird that they grew bigger when he was given antibiotics, kind of makes me think immunodiffeficiency Here's a link to a not very helpful abstract http://www3.interscience.wiley.com/journal/119249792/abstract
    qwertyuiop123 453 Replies
    • September 9, 2008
    • 05:46 PM
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  • Here's a link to an immune condition called chronic granulomatosis http://www.info4pi.org/patienttopatient/index.cfm?section=patienttopatient&content=syndromes&area=7
    qwertyuiop123 453 Replies
    • September 9, 2008
    • 05:49 PM
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  • I have swollen lymph nodes in my groin and legs---what is this
    Anonymous 42789 Replies
    • November 11, 2008
    • 03:16 AM
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