Discussions By Condition: I cannot get a diagnosis.

swollen glands and joint pain

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: achiasson
  • February 9, 2007
  • 06:47 PM

I have had swollen glands in my neck and behind my ears since the first week of Novemeber. I also have joint pain in my ribs, under the arms, and along my shoulder blades. So far I have been told it is a virus, costochondritis and possibly fibromyalgia. Please help.

Reply Flag this Discussion

15 Replies:

  • are lymph nodes tender?
    Anonymous 42789 Replies
    • February 10, 2007
    • 03:50 AM
    • 0
    Flag this Response
  • Yes, they are tender. They come and go. Some days I barely notice them. Other days they are very bothersome. I also notice that I get canker sores at the same time when the glands swell.
    Anonymous 42789 Replies
    • February 10, 2007
    • 01:31 PM
    • 0
    Flag this Response
  • I've also had swollen glands in my neck and muscle, but not joint, pain. I was diagnosed with costochondritis, which my doctor thinks set in due to the long-term virus, which started 9/06 and still continues till now 2/07. All blood work has been normal, except for a slightly elevated white blood count, which she says indicates the virus. I have been on MethylPrednisolone and am having a second course of Prednisone several weeks later. She told me if she can't get me better soon, she'll send me to a specialist. It all started in September with a two week bout of flu like symptoms that complicated. I was finally treated with antibiotics, got briefly better, and then relapsed into migrating muscle/ligament/cartilage like pain. The worst areas were my hands, feet, and fronts of thighs. I would get cramps in my foot arches occasionally also. The glands in my neck, particularly under my right chin area would sometimes feel like someone was trying to choke me. I also would feel like someone just would "turn on" my immune system, kind of like you feel when you first start to come down with the flu. I got through the days by taking Ibuprophen days, and Tylenol 8 hour at night. That's when my doctor decided to try the MethylPrednisolone, which made me feel normal for a few days. Some pain came back when I finished it, but this time it had settled in my rib area. I actually went to the emergency room because I couldn't get my breath, and thought I was either having heart trouble or asthma, neither of which are problems for me. It's been tough. I hope you get a solution too.
    Anonymous 42789 Replies
    • February 12, 2007
    • 00:48 AM
    • 0
    Flag this Response
  • Wow, this previous description fits me to a T! First off, I'd like to say that I have NEVER been chronically ill before this condition. I am a 36 year old female who is in good physical shape with no other aliments. I started with flu like symptoms, had every type of blood test (white cells were elevated), and still have joint pain and swollen glands several months later. I, too, did two rounds of prednislone. That helped somewhat, but I didn't like the side effects. I've been taking perscription strength alieve, which is helping, but I'm fearful of the long term affects of this drug, too. I've been on three different antibiotics (once for unrelated strep throat) and everytime the antibiotics seemed to make the symptoms go away. I've been tested for lyme disease twice and both tests came back negative. At this point I am trying the following therapies, as suggested from my doctor:physical therapy (I start this week), chiropractor, yoga for stretching, and a homeopathic remedy. I am trying to optimistic... my poor husband is tired of all these complaints. I am a mother of a 3 year old boy and a full time teacher. Its exhausted and frustrating not to feel myself and to have the energy I need to get through the day... Thanks for the reply. Its amazing to hear that someone else is having similar symptoms. I hope we can get to the bottom of this!
    Anonymous 42789 Replies
    • February 12, 2007
    • 11:56 PM
    • 0
    Flag this Response
  • Other than a 3 month bout with mononucleosis about ten years ago, this has been the only problem I have ever faced with anything that I could call a long-term health problem. I am very health concious, actually do everything one is supposed to do for health with diet, exercise and lifestyle, so I feel a little annoyed that I have to be dealing with this problem for so long. Fortunately, my younger son just graduated from college and joined his brother for his first job, so I have no young children at home now, but I am a teacher also, part-time, and some days think long and hard about whether or not I am up to working that day! The day I started feeling that way, I knew something was really wrong, because I love to teach. I was also tested for Lyme disease, as well as mononucleosis, and hyper and hypothyroidism. My doctor also did a CPK to test me for cartilage diseases among other things, and it came back fine. This is why she is holding to her virus diagnosis for now. I still wonder, however, as you do, why the antibiotics made me feel better for a short while after taking them.
    Anonymous 42789 Replies
    • February 13, 2007
    • 00:23 AM
    • 0
    Flag this Response
  • I read your posts with interest, especially where you noticed that antibiotics help you and that you tested negative for Lyme.If you read up on Lyme, most people test negative because the tests are very poor. So poor in fact that the CDC makes Lyme a clinical diagnoisis based on symptoms.My daughter has Lyme, we never saw a tick bite or the rash you can sometimes get. Eventually she developed about 30 symptoms of the disease and we finally found a doctor who could recognize it. Most doctors cannot recognize this disease. A good Lyme doctor is referred to as an LLMD (Lyme Literate MD) and they are very hard to find.The Infectious Disease Society of America (IDSA) has recently changed their diagnosic and treatment guidelines and they have made it harder for people to get treatment. There was such an uproar over this that the Connecticut DA office has launched an investigation and the IDSA doctors are being investigated for conflict of interest.Not only is Lyme a possibility but ticks also carry other bacterial infections such as Bartonella (cat scratch disease), Rocky Mountain Spotted Fever, Babesia and more.Take a look at www.canlyme.com and click on symptoms to start. You may recognize a few more things on that list. You can also use this site to find a doctor. Lots of great research information and there is a great support forum here.Don't rule out Lyme or any other bacterial infections based on blood tests. If your respond to antibiotics then you have bacteria. This is no coincidence. Good Luck!
    Anonymous 42789 Replies
    • February 13, 2007
    • 00:39 PM
    • 0
    Flag this Response
  • Thank you for your suggestion. The funny thing is that when this frist all started, I had just gotten back from a two day field trip with my sixth graders to do water testing in the salt marsh! It was the last week in Oct., and no one thought there would be ticks, but I was knee deep in the water all day. Like I said, I have already been tested twice for lyme. I was told that my insurance does not cover the test, and I'm afraid to get the medical bill. I'm not sure what do to about this, but I want to find out more and most importantly, I want to feel better!
    Anonymous 42789 Replies
    • February 14, 2007
    • 00:14 AM
    • 0
    Flag this Response
  • What test did you have for Lyme? Was it the western blot?Were you tested for co-infections?Start reading everything you can about Lyme - this is one disease that you definitely have to educate yourself about. Remember, it's the fastest growing infectious disease in North America - and it now outpaces AIDS so it is not rare at all.Could you get your doctor to prescribe more antibiotics as they have shown to help? The good thing about Lyme (if there is such a thing) is that it will not become resistant to antibiotics.Post your question at www.canlyme.com and see what opinions you get. These people know a lot about Lyme and similar diseases. It's a Canadian forum but lots of Americans are members.
    Anonymous 42789 Replies
    • February 14, 2007
    • 00:25 AM
    • 0
    Flag this Response
  • Thank you for this information. The link was helpful. I am making another appointment with my doctor next week. I will find out exactly which lyme tests I had done and will emphasize how I did respond to antibiotics. By the way, I live on costal MA. Deer ticks are common in these parts. Meanwhile, my first visit with a physical therapist is today (luckily this treatment is covered under insurance.)
    achiasson 4 Replies
    • February 15, 2007
    • 05:57 PM
    • 0
    Flag this Response
  • I had responded to your thread on 2/12/07, and read the follow up on Lyme with interest. If I were you, I think I definitely would have more Lyme tests after your description of the science field trip and living in Maine where ticks abound. As for me, personally, I received a call Wednesday from my doctor that my white blood cells are improving, which shows that I am winning against the virus that she feel I have had for five months. The main thing is that I HAVE started feeling better. The constant muscle aches and pains have subsided to only occasional sensations in my hands and feet. The lymph nodes are shrinking each day, and I have more energy. I want to do things again. I am HOPEFUL. I just wanted to give you this information, because I started this whole sojourn in September 2006 and have just this week February 14, 2007 gotten the good report on the white blood cells and have begun to feel better. That makes it over five months of illness. As I understand it, viruses have a life, and once they have lived it, they burn out. All I know is that with this virus, it may have had a life, but I sure didn't!Best wishes to you, and don't give up!
    Anonymous 42789 Replies
    • February 16, 2007
    • 01:36 PM
    • 0
    Flag this Response
  • I'm having similar symptoms - I just posted a long thread except I also have optic neuritis-I'm 29 and otherwise healthy-non smoker, not overweight, occasional social drink-check out cat scratch disease-I did a lot of reading on it and it can be passed through tics and fleas and not just a cat scratch. The bacteria is Bartonella henselae and can cause a variety of symptoms-it is also resistant to some antibiotics.
    mtrocine 2 Replies
    • February 16, 2007
    • 03:20 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • My doctor referred me to a lyme disease specialist and started me on an antibiotic. I'm worried about the long term side effects of antibiotics for lyme disease treatment. Can anyone offer some information on this? Thanks.
    achiasson 4 Replies
    • February 23, 2007
    • 08:22 PM
    • 0
    Flag this Response
  • I have had swollen glands in my neck and behind my ears since the first week of Novemeber. I also have joint pain in my ribs, under the arms, and along my shoulder blades. So far I have been told it is a virus, costochondritis and possibly fibromyalgia. Please help.I feel your pain I have had this pain for months now and this doesnt seem to go away at any rate it stops for a few day gets smaller than boom gets large ans hurts all over again...someone asked if i should be tested for lymphoma or hiv thoug the hiv would be a outta the ball parkbut none the less I am scared!!!
    Anonymous 42789 Replies
    • August 23, 2008
    • 02:41 PM
    • 0
    Flag this Response
  • I have had swollen glands in my neck and behind my ears since the first week of Novemeber. I also have joint pain in my ribs, under the arms, and along my shoulder blades. So far I have been told it is a virus, costochondritis and possibly fibromyalgia. Please help. IF you have fibromyalgia YOU DONT HAVE FIBROMYALGIA ALONE as it DONT cause swollen glands!! Please dont allow any doctor to fob you off with having just fibro with those symptoms you do have........................... To any here with long term swollen glands (over several months) and join or muscle pain (flu like symptoms) and who have post exertional fatigue.. if you have this combination (can include many other symptoms too including fibro and costochondritis) occuring .. try reseaching chronic fatigue syndrome as these symptoms are classical to this illness which is often very flu like (swollen glands etc). (Get all other things ruled out first including lyme). Antibiotics can sometimes help ones with CFS. CFS people thou often carry a lot of other things including staph infections and the antibiotics can seem to help some due to helping clear these other things. (there is currently CFS experimental treatments out involving antibotics etc eg Marshall Protocal which do help many with CFS). ** I dont at all recommend that treatment in CFS as thou it does cure some.. it has harmed others.
    taniaaust1 2267 Replies
    • August 25, 2008
    • 07:23 AM
    • 0
    Flag this Response
  • Hello,I don't know if you live in an error where deer ticks are prevalent, but you should have them test you for lymes disease. I usually starts as flu like systems for some people and usually is associated with some of the other things that are being mentioned. I have lymes and you are describing alot of what I am suffering from. The pattern is so familiar. Please get tested? Hope this helps a little. Oh, I have to say that ticks are not the only carriers now of the disease, and you can get false negative results so you should be diagnosed clinically. See a doctor that deals in Lymes all the time, other doctors don't know enough about it mistreat and misdiagnose. It is a nasty disease if left untreated.Good Luck!I've also had swollen glands in my neck and muscle, but not joint, pain. I was diagnosed with costochondritis, which my doctor thinks set in due to the long-term virus, which started 9/06 and still continues till now 2/07. All blood work has been normal, except for a slightly elevated white blood count, which she says indicates the virus. I have been on MethylPrednisolone and am having a second course of Prednisone several weeks later. She told me if she can't get me better soon, she'll send me to a specialist. It all started in September with a two week bout of flu like symptoms that complicated. I was finally treated with antibiotics, got briefly better, and then relapsed into migrating muscle/ligament/cartilage like pain. The worst areas were my hands, feet, and fronts of thighs. I would get cramps in my foot arches occasionally also. The glands in my neck, particularly under my right chin area would sometimes feel like someone was trying to choke me. I also would feel like someone just would "turn on" my immune system, kind of like you feel when you first start to come down with the flu. I got through the days by taking Ibuprophen days, and Tylenol 8 hour at night. That's when my doctor decided to try the MethylPrednisolone, which made me feel normal for a few days. Some pain came back when I finished it, but this time it had settled in my rib area. I actually went to the emergency room because I couldn't get my breath, and thought I was either having heart trouble or asthma, neither of which are problems for me. It's been tough. I hope you get a solution too.
    wallenjr1999 1 Replies
    • September 18, 2013
    • 05:37 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.