Discussions By Condition: I cannot get a diagnosis.

swollen & desperate

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: mouth012
  • December 19, 2007
  • 07:31 PM

It started after the birth of my now 1 yr old. Swelling in neck, legs, and abdomen. Prickly sensations in face and weight gain plus chills. Became pregnant again... all symptoms cleared. 1 month after baby is born, swelling in abdomen, face, and legs are back!! There is also pain in the upper right/mid abdomen. Have had numerous tests.. CT Scan, colonoscopy, upper escopy, ultrasounds, hide-a-scan, EKG ruled out angioedema, allergies, most anything organ related.. although the latest ct scan revealed right kidney isn't draining properly, but they say my uterus was pushing on it.

Please.... if anyone has any ideas... please let me know.

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4 Replies:

  • did you get thyroid tests?
    Monsterlove 2921 Replies
    • December 19, 2007
    • 07:46 PM
    • 0
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  • Sounds like a rare condition called hereditary angioedema. Talk to an allergist. It may be a very rare type, Type III, which is affected by estrogen.
    aquila 1263 Replies
    • December 19, 2007
    • 08:44 PM
    • 0
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  • Also, I see that you were evaluated for angioedema, but if your doctors only tested your C1 and C4 proteins, and they were normal, this *does not* rule out Hereditary Angioedema Type III. Most doctors miss this.
    aquila 1263 Replies
    • December 19, 2007
    • 08:46 PM
    • 0
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  • did you get thyroid tests?3 different times.. all were normal thank you
    Anonymous 42789 Replies
    • December 22, 2007
    • 01:05 AM
    • 0
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