I am a 40 year old male with a condition that has caused swelling around eys, bridge of nose and forehead area. I have seen 7 different doctors including imunology and currently dermatologist. I have had every known test, MRI, cat scan, blood work. The only drug that has worked is high tapers of prednisone over a months time. My current doctor tells me he may only see a case like mine oce in a lifetime. Common thoughts initaly were lupus but tests or other associated symptoms dont match. all alergy testing have come back negative. I still dont have a name of what I have. He constantly brings up my condition at his conferences at a well known teaching hospital in boston but nothing in 2 years. Hoping someone has heard of something similar.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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