This is a long and very frustrating process that I have been going through for the last five months. I was diagnosed with Sjogren's Syndrome in February 2007. In March 2007, I noticed swelling in the left temporal area. My rheumatologist prescribed a Medrol Dosepak to help reduce the swelling (This was done via the phone. He had not seen the swelling.) After completing the Medrol Dosepak, the swelling continued. As a matter of fact the swelling moved to the right temporal area. The rheumatologist had me follow up with my primary care physician (PCP). The PCP prescribed prednisone with a tapering dose over a week's time. Because the prednisone nor the Avelox helped, I was referred back to the rheumatologist. The pain can be extremely excruciating. My face feels like it is going to explode. I have seen an opthamologist, I have asked my pulmonologist for his opinion, I have seen a dermatologist (I was told it could be a possible allergic reaction.) None of the physicians that I have seen think that I need to see a neurologist.
I have been taking Prednisone 40mg since April. I am currently being tapered to 5mg until October when I see the rheumatologist again. The only thing the Prednisone has done for me is given me almost all of the possible side effects.
I am in desperate need of suggestions on what I can do for a proper diagnosis or if someone can tell me what the problem might be.:confused: