Discussions By Condition: I cannot get a diagnosis.

Swelling around joints and pain

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Cindy Brehmer
  • May 18, 2011
  • 07:35 AM

I have been to several different doctors in the last four years for the same symptoms
I just had a second visit to yet another doctor which was a told waste of time and money.
The last four years I have had bone pain in both my elbows. It then started swelling in my left elbow branching out to the upper arm and now to the low arm. The last year the right arm has done the same but not as bad. In the mean time my fingers have started swelling off and on. They get so bad I cannot even wear my rings that were large on me before. I have pain in the bone of the elbows. I have had several cortizone shots which helped for a few months. In the last 9 months I have developed reflux. I have also carried a low grade temp since the swelling came on. I have had MRIs on the left elbow. The last one in December 2010. It stated the nerve was enlarged (which was not mentioned in the previous MRI about 9 months before) and that there was fluid in the elbow. I was on an antibiotic in March which made the pain go away while on it. I went to the Rheumatologist and she said there was certainly something going on besides the Fibromyalgia and took a bunch of blood tests which turned out fine. In the mean time I was on Prednisone for about 10 days and it took down the swelling and the pain went away. I went back to the Rheumy doctor and now it is just Fibromyalgia. I have never heard of Fibro causing swelling and bone pain.
Could anyone give me any suggestions as to what this may be? I am so frustrated and just ready to give up

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5 Replies:

  • did they test your blood for inflammation factors and rheumatoid factor, etc? What blood tests did they do? How old are you?
    k333ly 59 Replies Flag this Response
  • If you live/have recently traveled to the East coast, Northeast, or in the Upper Midwest you should suspect Lyme disease. It is a very insidious tick-borne bacterial infection that can cause long-term illness and especially chronic arthritis. Most people diagnosed with Lyme report never remembering seeing a tick or developing the familiar "bulls-eye" rash but develop many odd chronic problems with arthritis topping the list of the more common ones. People have been sick for years with it and get wrongly diagnosed with rheumatoid arthritis, Fibromyalgia, MS, Chronic Fatigue Syndrome, Lupus, as well as others. Its treatable with anti-biotics (particularly Doxycycline) although difficult to completely irradicate in chronic cases. If you choose to get tested I would opt to use the Western blot test because the ELISA blood test is commonly produces false negative results. Hang in there and good luck!
    Anonymous 42789 Replies Flag this Response
  • If you live/have recently traveled to the East coast, Northeast, or in the Upper Midwest you should suspect Lyme disease. It is a very insidious tick-borne bacterial infection that can cause long-term illness and especially chronic arthritis. Most people diagnosed with Lyme report never remembering seeing a tick or developing the familiar "bulls-eye" rash but develop many odd chronic problems with arthritis topping the list of the more common ones. People have been sick for years with it and get wrongly diagnosed with rheumatoid arthritis, Fibromyalgia, MS, Chronic Fatigue Syndrome, Lupus, as well as others. Its treatable with anti-biotics (particularly Doxycycline) although difficult to completely irradicate in chronic cases. If you choose to get tested I would opt to use the Western blot test because the ELISA blood test is commonly produces false negative results. Hang in there and good luck!
    Catfish_Tim 2 Replies Flag this Response
  • If you live/have recently traveled to the East coast, Northeast, or in the Upper Midwest you should suspect Lyme disease. It is a very insidious tick-borne bacterial infection that can cause long-term illness and especially chronic arthritis. Most people diagnosed with Lyme report never remembering seeing a tick or developing the familiar "bulls-eye" rash but develop many odd chronic problems with arthritis topping the list of the more common ones. People have been sick for years with it and get wrongly diagnosed with rheumatoid arthritis, Fibromyalgia, MS, Chronic Fatigue Syndrome, Lupus, as well as others. Its treatable with anti-biotics (particularly Doxycycline) although difficult to completely irradicate in chronic cases. If you choose to get tested I would opt to use the Western blot test because the ELISA blood test is commonly produces false negative results. Hang in there and good luck! I do not know it any of the million tests included this but I will find out. This came on sundenly over night and have been growing worse over the last 4 years.I ran across this forum looking for what could cause this swelling and fluid and I am hoping for something. I did go to my chiropractor today and he read the MRIs and said there is diffinently fluid on the elbow of which there was not in the previous MRI. Yhe Medial (?) nerve is also enlarged in the later MRI.Thanks
    Cindy Brehmer 2 Replies Flag this Response
  • Hello , i have 5 things : 1) swelling joints elbows , knees , pelvic - 2) sticky mucus - 3) E.coli in UTI - 4) calcification pelvic phelobli - 5 ) ferritin level is 5 first it started from 2 years ago , i had a pus cells going to 20 in my urine and kidney having e.coli got my antibiotic, finsihed still had the swelling but the pus cells went down to normal ... i kept doing alot of tests for immune system , liver function, kidney function all of it came negative even for lupus and romatoid negative.. i had urine culture in march said i have Pathegenic bactiueria over 100.000 and didn;t treated back then ... now i am taking cipromax antibaiotic 250 mg. is this help so my question is could a bacteria like E.coli if not been treated good can do such things through years ???? or there is something else ? and if a bacteria do this how can i treated ? by alternative medcine will be good ? or should take antibiotics ? and if not a bacteria how causing this what it can be ?? thanks a lot for yr assistance in advance
    Anonymous 42789 Replies Flag this Response
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