Discussions By Condition: I cannot get a diagnosis.

Swallowing difficulty and lost voice/Nobody seems to know or care

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Madmel
  • January 5, 2010
  • 11:34 PM

I'm writing on my mother's behalf, she is an 80 yr old woman who recently lost her voice and seems to slur the strained words she does get out, she also has difficulty swalling, water mainly, she tends to choke to the point where I think she might choke to death, it's quite scary to watch. Her GP dismisses it as 'old age' which I can't accept seeing as it's come on quite suddenly and even so, doesnt she need some sort of treatment? She's had a nose, throat and ear specialist look down her throat with a camera and found that she had some irritation/inflamation around her voicebox which he said was probably caused by reflux and ordered her to take antacids which she did take and was already taking, this didnt help at all. She had the barum swallow test done as well and that didnt come back with anything either.
We're at our witts end with no help from doctors and dont know what o who to turn to next. Has anyone been through this before and can shed some light? Any feedback would be great as we're desperate, Thanks.

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4 Replies:

  • I'm writing on my mother's behalf, she is an 80 yr old woman who recently lost her voice and seems to slur the strained words she does get out, she also has difficulty swalling, water mainly, she tends to choke to the point where I think she might choke to death, it's quite scary to watch. Her GP dismisses it as 'old age' which I can't accept seeing as it's come on quite suddenly and even so, doesnt she need some sort of treatment? She's had a nose, throat and ear specialist look down her throat with a camera and found that she had some irritation/inflamation around her voicebox which he said was probably caused by reflux and ordered her to take antacids which she did take and was already taking, this didnt help at all. She had the barum swallow test done as well and that didnt come back with anything either. We're at our witts end with no help from doctors and dont know what o who to turn to next. Has anyone been through this before and can shed some light? Any feedback would be great as we're desperate, Thanks.Not sure if this will help, but last January during a regular physical, my husband told dr that he was having difficulty swallowing. She put him on reflux med which didn't do anything. In April he told dr that he was still having problem and felt something was going on. An upper GI was done but showed only inflammed esophogus and suggested endoscopy. He then went to ear, nose and throat spec for light scope thru nose. Dr. called and got results from Upper GI and and spec suggested he have the scope done which he did May 1 and a tumor was found at the junction of esphogus and stomach. Long story short - it was cancerous and after six weeks of radiation and chemo, he had a partial esphogectomy on Nov 2 and is now in great shape. Please pursue every avenue. don't stop until you find out what the problem is. My husband gets all the credit for pursuing his medical questions. Hope all goes well and your mother gets better.
    Anonymous 42789 Replies
    • January 7, 2010
    • 02:53 AM
    • 0
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  • Not sure if this will help, but last January during a regular physical, my husband told dr that he was having difficulty swallowing. She put him on reflux med which didn't do anything. In April he told dr that he was still having problem and felt something was going on. An upper GI was done but showed only inflammed esophogus and suggested endoscopy. He then went to ear, nose and throat spec for light scope thru nose. Dr. called and got results from Upper GI and and spec suggested he have the scope done which he did May 1 and a tumor was found at the junction of esphogus and stomach. Long story short - it was cancerous and after six weeks of radiation and chemo, he had a partial esphogectomy on Nov 2 and is now in great shape. Please pursue every avenue. don't stop until you find out what the problem is. My husband gets all the credit for pursuing his medical questions. Hope all goes well and your mother gets better. Thanks for your reply. Just have one question, what do you mean by upper GI?
    Madmel 1 Replies
    • January 12, 2010
    • 03:35 AM
    • 0
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  • I hope she is OK it sounds like she might have had a stroke. It's very important that she gets proper medical assessment from a speech and language therapist or speech pathologist (if you are American). They can help her to speak and swallow again.(How dare your GP dismiss as just old age! )
    Anonymous 42789 Replies
    • January 18, 2011
    • 01:52 PM
    • 0
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  • I hope she is OK it sounds like she might have had a stroke. It's very important that she gets proper medical assessment from a speech and language therapist or speech pathologist (if you are American). They can help her to speak and swallow again.(How dare your GP dismiss as just old age! )Hi,Thanks for the reply but unfortunately my mother passed away in July last year. She was misdiagnosed by her useless GP. Dr. Kohn in Footscray for anyone from Melb, Australia reading this. She had Vascular Dementia (which we guessed after researching her symptoms ourselves) and eventually couldnt eat, speak or move anymore, basically her body shut down. Just a warning to others to find doctors that actually care and want to find out what is wrong and help, dont settle for dismissals like we got.
    Anonymous 42789 Replies Flag this Response
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