Discussions By Condition: I cannot get a diagnosis.

Suprapubic Catheter

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Denver
  • March 21, 2008
  • 06:47 AM

Hi, because I ignored BPH for too long, a recent ultrasound found my bladder to be very much distended and for 3 months now I have had an indwelling catheter. (Because at that time I had just had an angioplasty and stent fitted and the cardiologist judged it necessary for me to wait 2-3 months before having the TURP procedure done) My urologist now tells me that no matter what treatment I seek for the enlarged prostate, my over-inflated/deflated bladder will always retain an amount of urine and consequently there will be a continued necessity for a permanent indwelling catheter. This - as the urologist agrees - makes TURP or any other procedure to reduce the size of the prostate quite useless and I seem to have just these three options: the permanent catheter, a suprapubic catheter or self catherization. I have suffered enough now with the indwelling catheter and (for me) the best option seems the suprapubic catheter, preferably WITHOUT the leg & night bag. (No, I can not bear the thought of self catherization and this for various reasons) My question: has anyone out there experience with the suprapubic catheter? Does anyone believe that there is the slightest chance that in the 3 months of bladder "inactivity" the muscle tone and/or size may have sufficiently improved so that there will be no residual urine, so that I can have the TURP procedure done after all? My urologist says "no way, he's seen it all before" but could he be wrong? Thanks for reading this and thanks for any reply, most welcome!!

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7 Replies:

  • Personally have had the suprapubic cath in for about 6 yrs now.Just so you know...you will need a leg bag AND an overnite bag...lol (lots of laughs) ...this is where the urine goes when it leaves your body....lol It's really not so bad. All my surgeons, and, Doctors are in Houston, Texas. Dr. Stephen Lapin,((urologist) on Fannin Street, ( "THE MIRACLE MILE") is excellent. He may be able to answer your question. The Baylor School of Medicine is on the cutting edge of all the latest medical technologies:) BAYLOR RULES in HOUSTON. You can find people from all over the world in Houston to find the cutting edge, the best of the best, to help put their lives back together; if at all possible. If you have the ability to fly to Houston - do so. Get a second opinion there. Just remember, sometimes the cards we are delt in life are the only cards we have to play. I'll leave you with a saying my personal physican gave me when he retired. Do you know what they call the person who graduates last in his medical class? DOCTOR
    zulene 1 Replies
    • November 17, 2008
    • 06:34 PM
    • 0
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  • Hi- I am a female so my opinion will probably be different. I was born with a degenerative bladder (it doesn't work). I had to wear a bag on my stomach for 14 years until they developed the technology to reverse the surgery. Even then, I have had to self-catherize for 26 years now. As I age I find it becomes more frequent-every 2-2/12 hours, and there ARE times when I wish I could sleep all night (Haven't had ONE full night sleep in 26 years!). There is of course, sometimes a little leakage. But I would never go back to wearing a bag for urination unless I had to. If YOUR situation is going to be a temporary one, I would also go for the bag. Maybe I would feel differently if I were a man, logistically speaking. The best thing to do is look at how it will affect your daily life, and make your decision based on that. Good Luck!
    Kimba47 1 Replies
    • November 20, 2008
    • 07:28 PM
    • 0
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  • Hi, because I ignored BPH for too long, a recent ultrasound found my bladder to be very much distended and for 3 months now I have had an indwelling catheter. (Because at that time I had just had an angioplasty and stent fitted and the cardiologist judged it necessary for me to wait 2-3 months before having the TURP procedure done) My urologist now tells me that no matter what treatment I seek for the enlarged prostate, my over-inflated/deflated bladder will always retain an amount of urine and consequently there will be a continued necessity for a permanent indwelling catheter. This - as the urologist agrees - makes TURP or any other procedure to reduce the size of the prostate quite useless and I seem to have just these three options: the permanent catheter, a suprapubic catheter or self catherization. I have suffered enough now with the indwelling catheter and (for me) the best option seems the suprapubic catheter, preferably WITHOUT the leg & night bag. (No, I can not bear the thought of self catherization and this for various reasons) My question: has anyone out there experience with the suprapubic catheter? Does anyone believe that there is the slightest chance that in the 3 months of bladder "inactivity" the muscle tone and/or size may have sufficiently improved so that there will be no residual urine, so that I can have the TURP procedure done after all? My urologist says "no way, he's seen it all before" but could he be wrong? Thanks for reading this and thanks for any reply, most welcome!!Has your Urologist performed Complex Urodynamic Studies on you? Urodynamics would document your bladder for function, capacity and pressures (this is an important number also). It may be possible to "deflate" your bladder, so to speak, for a period of time allowing it to regain some of the elasticity it lost. 3 months most likely is not long enough to do this though. You would HAVE to either self-catheterize to keep your bladder volumes (and capacity) to less than 400mL or keep the indwelling catheter in place longer.
    Anonymous 42789 Replies
    • December 26, 2008
    • 08:32 PM
    • 0
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  • I strongly agree with the above entry.:)
    richard wayne2b 1232 Replies
    • December 27, 2008
    • 02:51 PM
    • 0
    Flag this Response
  • Hi, because I ignored BPH for too long, a recent ultrasound found my bladder to be very much distended and for 3 months now I have had an indwelling catheter. (Because at that time I had just had an angioplasty and stent fitted and the cardiologist judged it necessary for me to wait 2-3 months before having the TURP procedure done) My urologist now tells me that no matter what treatment I seek for the enlarged prostate, my over-inflated/deflated bladder will always retain an amount of urine and consequently there will be a continued necessity for a permanent indwelling catheter. This - as the urologist agrees - makes TURP or any other procedure to reduce the size of the prostate quite useless and I seem to have just these three options: the permanent catheter, a suprapubic catheter or self catherization. I have suffered enough now with the indwelling catheter and (for me) the best option seems the suprapubic catheter, preferably WITHOUT the leg & night bag. (No, I can not bear the thought of self catherization and this for various reasons) My question: has anyone out there experience with the suprapubic catheter? Does anyone believe that there is the slightest chance that in the 3 months of bladder "inactivity" the muscle tone and/or size may have sufficiently improved so that there will be no residual urine, so that I can have the TURP procedure done after all? My urologist says "no way, he's seen it all before" but could he be wrong? Thanks for reading this and thanks for any reply, most welcome!!Our situation seems similar except that my Urololgist did the TURP when he put the surpapubic catheter in. (I had gone to emergency with lots of pain when they figured out my bladder was enlarged.) The surapubic as I understood it was the backup just incase the TURP in the end does not fully allow me to void the bladder. It also avoids having to back in to have the surpapubic catherter inserted. Judging from the pictures of my prostrate it really needed the TURP procedure. This was all done just this week so I will have to wait an see how all works out. I hope to do away with the catheter at some point.
    Anonymous 42789 Replies
    • October 10, 2009
    • 11:20 PM
    • 0
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  • Dear God, I hope I am not out of turn.Doctors only practise medicine beleive me, they are not professionals they may call themselves this but I call myself this all the time.lolWhen you agree to do something as extreme to your body as a super pubic catheta you must remember time and technology can fix things so you may be able to use your own organs ie, bladder and so on please dont think what they have done is permanment there is a way unless cancer I suspect your bladder can work again on it's own...God Bless you :)Personally have had the suprapubic cath in for about 6 yrs now.Just so you know...you will need a leg bag AND an overnite bag...lol (lots of laughs) ...this is where the urine goes when it leaves your body....lol It's really not so bad. All my surgeons, and, Doctors are in Houston, Texas. Dr. Stephen Lapin,((urologist) on Fannin Street, ( "THE MIRACLE MILE") is excellent. He may be able to answer your question. The Baylor School of Medicine is on the cutting edge of all the latest medical technologies:) BAYLOR RULES in HOUSTON. You can find people from all over the world in Houston to find the cutting edge, the best of the best, to help put their lives back together; if at all possible. If you have the ability to fly to Houston - do so. Get a second opinion there. Just remember, sometimes the cards we are delt in life are the only cards we have to play. I'll leave you with a saying my personal physican gave me when he retired. Do you know what they call the person who graduates last in his medical class? DOCTOR
    Anonymous 42789 Replies
    • November 26, 2009
    • 09:04 AM
    • 0
    Flag this Response
  • Hi, because I ignored BPH for too long, a recent ultrasound found my bladder to be very much distended and for 3 months now I have had an indwelling catheter. (Because at that time I had just had an angioplasty and stent fitted and the cardiologist judged it necessary for me to wait 2-3 months before having the TURP procedure done) My urologist now tells me that no matter what treatment I seek for the enlarged prostate, my over-inflated/deflated bladder will always retain an amount of urine and consequently there will be a continued necessity for a permanent indwelling catheter. This - as the urologist agrees - makes TURP or any other procedure to reduce the size of the prostate quite useless and I seem to have just these three options: the permanent catheter, a suprapubic catheter or self catherization. I have suffered enough now with the indwelling catheter and (for me) the best option seems the suprapubic catheter, preferably WITHOUT the leg & night bag. (No, I can not bear the thought of self catherization and this for various reasons) My question: has anyone out there experience with the suprapubic catheter? Does anyone believe that there is the slightest chance that in the 3 months of bladder "inactivity" the muscle tone and/or size may have sufficiently improved so that there will be no residual urine, so that I can have the TURP procedure done after all? My urologist says "no way, he's seen it all before" but could he be wrong? Thanks for reading this and thanks for any reply, most welcome!!You need a different doctor! My husband just went through a prostectomy because it was so large. The urologist said he needed it out because of the stress on his bladder..which had the same description as yours. The suprapubic cath is put in during surgery and kept there for awhile until everything is stable... personally, You need a doctor that will deal with your prostate...which may save your bladder. My husband's doctor said if the prostate was not dealt with, the bladder would develop cancer.. you don't need that.. you will wind up losing both organs.
    Anonymous 42789 Replies Flag this Response
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