Discussions By Condition: I cannot get a diagnosis.

Suffering, I'm desperate. Please help me

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: pleasehelpmeplease
  • August 17, 2011
  • 00:40 AM

Hi please let me know if anyone has heard of what I have. I cannot find what I am experiencing anywhere. Ok it's very hard to describe but I will do my best. Ok whenever I talk, (and really only talk,sing,yell,whisper) I get this horrific headache, and my vision changes I loose my balance, i get weak, I cant think i become SEVERELY CONFUSED and my throat starts to swell up if I continue talking. also my heart pounds I sweat and become close to fainting. also my eye muscles get weak and I cant move them easily and I enter a painful euphroric state, the pressure is there without talking. In which case sometimes, and I repeat sometimes, I can get a slight amount of relief by trying to tie something GENTLY around my throat to relieve the pressure going to my head. The pressure is so intense it feels like my heads going to explode and the pressure also then starts to build into my chest and my chest gets tight. This is so terrible. and its not only when I talk its all the time. 24/7. just talking exasberates it to the point where I am rendered completely disabled, and I only recover after shutting my eyes and not moving or talking and just lying still in a state of complete rest for about an hour and a half, and during this time I am in excrutiating pain in a daze and wondering if Ill live through it. It happens very often. I am perplexed and so are the doctors. I have had many many tests done and they all come back and say I am fine. But there is a serious problem. I almost feel like my lungs and body are getting to much oxygen my body just keeps breathing to much and its hard to stop it my body fights me violently if I try to hold my breath it wants another breath but if I dont breath and try to hold my breath this also alleviates the pressure a little bit....WHAT IS GOING ON WITH ME???? ITS BEEN LIKE THIS FOR MANY YEARS I NEED HELP I AM DESPERATE. MY WIFE JUST LEFT ME BC SHE COULDNT TAKE ME COMPLAINING ANYMORE THAT I DONT FEEL GOOD. Please any suggestions would be greatly greatly appreciated. THank you for taking the time to read this and for any help be blessed ALSO I AM A 31 YEAR OLD MALE.

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  • Hi please let me know if anyone has heard of what I have. I cannot find what I am experiencing anywhere. Ok it's very hard to describe but I will do my best. Ok whenever I talk, (and really only talk,sing,yell,whisper) I get this horrific headache, and my vision changes I loose my balance, i get weak, I cant think i become SEVERELY CONFUSED and my throat starts to swell up if I continue talking. also my heart pounds I sweat and become close to fainting. also my eye muscles get weak and I cant move them easily and I enter a painful euphroric state, the pressure is there without talking. In which case sometimes, and I repeat sometimes, I can get a slight amount of relief by trying to tie something GENTLY around my throat to relieve the pressure going to my head. The pressure is so intense it feels like my heads going to explode and the pressure also then starts to build into my chest and my chest gets tight. This is so terrible. and its not only when I talk its all the time. 24/7. just talking exasberates it to the point where I am rendered completely disabled, and I only recover after shutting my eyes and not moving or talking and just lying still in a state of complete rest for about an hour and a half, and during this time I am in excrutiating pain in a daze and wondering if Ill live through it. It happens very often. I am perplexed and so are the doctors. I have had many many tests done and they all come back and say I am fine. But there is a serious problem. I almost feel like my lungs and body are getting to much oxygen my body just keeps breathing to much and its hard to stop it my body fights me violently if I try to hold my breath it wants another breath but if I dont breath and try to hold my breath this also alleviates the pressure a little bit....WHAT IS GOING ON WITH ME???? ITS BEEN LIKE THIS FOR MANY YEARS I NEED HELP I AM DESPERATE. MY WIFE JUST LEFT ME BC SHE COULDNT TAKE ME COMPLAINING ANYMORE THAT I DONT FEEL GOOD. Please any suggestions would be greatly greatly appreciated. THank you for taking the time to read this and for any help be blessed ALSO I AM A 31 YEAR OLD MALE.Okay, I am suffering from something similar, and it recently started only a few days ago. I have hyperventilation disorder, as a result of the anxiety, and panic attacks I have in my life. This honestly could be nothing more than a anxiety disorder. For a year or so, when I first got my anxiety disorder, I always felt like I was in a dazed, or dreamy state. I stressed about everything, and had (And still have) a horrific fear of thunderstorms. Well recently, I started to hyperventilate. My body can't take all of the stress that I am under. Now this really sounds like a hyperventilation disorder. May I ask, have you ever gotten numbness in your hands and feet, or even in your limbs? That is what I get whenever I hyperventilate, and the funny thing is that you feel like you need to breathe, but really you are getting too much oxygen when you are hyperventilating. You pointed that out, so I'm guessing that's probably what you have. I had to go to the emergency room because I thought I was dying, but the doctors found nothing wrong with me. It was simply a hyperventilation attack. You also mentioned that it alleviates some of the pressure when you hold your breath; That sounds about right, because breathing too much easily causes the CO2 in your blood to drop. I would suggest breathing into a paper bag (Paper, not plastic!) about 8-12 times (Take breaks, and if you feel that you need to do it again, then go ahead). This will help your body use up the oxygen that you've been breathing in, as well as breathe in some of the CO2 that you breathe out, so you can restore that in your blood. I've been doing a lot of research on this since I got it, so I will give you some sites and resources that might help you. http://www.youtube.com/user/buteykocenterUSAhttp://www.youtube.com/user/jinithompson - This gal knows a lot about chronic disorders, go ahead and ask her some questions about this, she really can help you out a lothttp://www.buteykocenterusa.com/ - This is a drug-free way to help with anxiety and hyperventilation, and even asthma. You should try calling them too. Watch some of the videos on there as well, I found them helpfulI am really happy that I get to help someone that has this problem, because I have this too. I will answer any further questions, heck I'll even give you my email. Remember that hyperventilation is nothing you should worry about. I'm working to get rid of mine, and it's not as hard as you think.
    Anonymous 42789 Replies
    • August 17, 2011
    • 01:27 AM
    • 0
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  • Hi please let me know if anyone has heard of what I have. I cannot find what I am experiencing anywhere. Ok it's very hard to describe but I will do my best. Ok whenever I talk, (and really only talk,sing,yell,whisper) I get this horrific headache, and my vision changes I loose my balance, i get weak, I cant think i become SEVERELY CONFUSED and my throat starts to swell up if I continue talking. also my heart pounds I sweat and become close to fainting. also my eye muscles get weak and I cant move them easily and I enter a painful euphroric state, the pressure is there without talking. In which case sometimes, and I repeat sometimes, I can get a slight amount of relief by trying to tie something GENTLY around my throat to relieve the pressure going to my head. The pressure is so intense it feels like my heads going to explode and the pressure also then starts to build into my chest and my chest gets tight. This is so terrible. and its not only when I talk its all the time. 24/7. just talking exasberates it to the point where I am rendered completely disabled, and I only recover after shutting my eyes and not moving or talking and just lying still in a state of complete rest for about an hour and a half, and during this time I am in excrutiating pain in a daze and wondering if Ill live through it. It happens very often. I am perplexed and so are the doctors. I have had many many tests done and they all come back and say I am fine. But there is a serious problem. I almost feel like my lungs and body are getting to much oxygen my body just keeps breathing to much and its hard to stop it my body fights me violently if I try to hold my breath it wants another breath but if I dont breath and try to hold my breath this also alleviates the pressure a little bit....WHAT IS GOING ON WITH ME???? ITS BEEN LIKE THIS FOR MANY YEARS I NEED HELP I AM DESPERATE. MY WIFE JUST LEFT ME BC SHE COULDNT TAKE ME COMPLAINING ANYMORE THAT I DONT FEEL GOOD. Please any suggestions would be greatly greatly appreciated. THank you for taking the time to read this and for any help be blessed ALSO I AM A 31 YEAR OLD MALE.Have you been checked for brain cancer/bleeding? or even a brain infection...? Hows your blood pressure?
    Anonymous 42789 Replies
    • August 17, 2011
    • 04:43 AM
    • 0
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  • Actually it's necessary to see the whole your health state, including all your diseases and symptoms during your life. Separated current symptoms without full health history can not deliver overall estimation of the health status.Did you experience any lungs or bowels disorder before?Sounds like some dysfunction in your central nervous system (CNS). Maybe something wrong with your respiratory system controlled by nervous system. Did you get your brain examined thoroughly? Did you visit neurologist and pulmonologist?
    alltimatehelp 128 Replies
    • August 17, 2011
    • 11:12 AM
    • 0
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  • thank you for your response. I never experienced any lung or bowel disorder before. Although I did smoke ciggerettes from 16 until 30 years old. I have been told I have asthma due to smoking which is why I quit 14 months ago. I also drank and binge drank for many years. But also have not drank in 14 months. also on top of these symptoms I listed I was diagnosed with lyme disease 4 years ago. I had a stroke like episode which the ER concluded was not a stroke 3 days after it happened. I have not been the same since. balance off coordiantion off cant think brain fog, weakness intolerance to exercise, confusion, inability to read or concentrate , difficulties with mobility and walking. I have severe fatigue all day long and a strange feeling in my head all day long things and life are just not the same anymore. I have been treated for lyme many times with anitbiotics which never worked. the symptoms werent so bad but up until a year ago thats when the extreme unbearable head pressure began. not to mention a strange sick feeling in my heart and stomach all the time feeling weak and and brittle. there is a strange feeling in my throat that I somehow know is connceted to my heart. I am now on the buhner protocol all natural herb thereapy. Nothing works. Sometimes I doubt if I have even have lyme disease anymore. My main symptom is that head pressure thing and not being able to talk...i dont hear anyone else with lyme complaining about this. hope this helps
    pleasehelpmeplease 5 Replies
    • August 17, 2011
    • 03:07 PM
    • 0
    Flag this Response
  • Okay, I am suffering from something similar, and it recently started only a few days ago. I have hyperventilation disorder, as a result of the anxiety, and panic attacks I have in my life. This honestly could be nothing more than a anxiety disorder. For a year or so, when I first got my anxiety disorder, I always felt like I was in a dazed, or dreamy state. I stressed about everything, and had (And still have) a horrific fear of thunderstorms. Well recently, I started to hyperventilate. My body can't take all of the stress that I am under. Now this really sounds like a hyperventilation disorder. May I ask, have you ever gotten numbness in your hands and feet, or even in your limbs? That is what I get whenever I hyperventilate, and the funny thing is that you feel like you need to breathe, but really you are getting too much oxygen when you are hyperventilating. You pointed that out, so I'm guessing that's probably what you have. I had to go to the emergency room because I thought I was dying, but the doctors found nothing wrong with me. It was simply a hyperventilation attack. You also mentioned that it alleviates some of the pressure when you hold your breath; That sounds about right, because breathing too much easily causes the CO2 in your blood to drop. I would suggest breathing into a paper bag (Paper, not plastic!) about 8-12 times (Take breaks, and if you feel that you need to do it again, then go ahead). This will help your body use up the oxygen that you've been breathing in, as well as breathe in some of the CO2 that you breathe out, so you can restore that in your blood. I've been doing a lot of research on this since I got it, so I will give you some sites and resources that might help you. http://www.youtube.com/user/buteykocenterUSAhttp://www.youtube.com/user/jinithompson - This gal knows a lot about chronic disorders, go ahead and ask her some questions about this, she really can help you out a lothttp://www.buteykocenterusa.com/ - This is a drug-free way to help with anxiety and hyperventilation, and even asthma. You should try calling them too. Watch some of the videos on there as well, I found them helpfulI am really happy that I get to help someone that has this problem, because I have this too. I will answer any further questions, heck I'll even give you my email. Remember that hyperventilation is nothing you should worry about. I'm working to get rid of mine, and it's not as hard as you think.Hey there! thank you so much for your concern and your response. I am sorry that you are suffering from this...Well for starters I am like a google freak looking constantly at different disorders both common and rare trying to find anything that matches my symptoms...And yes I have come across hyperventialation disorder before and YES i have suspected this could be a part of what I am experiencing. When I breath into the bag though it sometimes has an effect but most of the time it does not. No matter how much I try to relax and or meditate or try breathing exercises it has very little noticable effect except for the effect these tools bring anyhow. but nothing major that would take these symptoms away. ONE thing I have noticed is that IF I AM ABLE TO PUSH MYSELF TO EXERCISE, even though I feel like im going to die and end up in the ER, (and I mean very light exercies just shooting the basketball around myself and doing layups) sometimes a few hours later I will feel a def improvement. Very Confusing. please keep me updated on your condition and if you find out anymore info. thank you for the links as well. very much appreciated! :)
    pleasehelpmeplease 5 Replies
    • August 17, 2011
    • 05:58 PM
    • 0
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  • Have you been checked for brain cancer/bleeding? or even a brain infection...? Hows your blood pressure?Hi Lady Stardrifter, Well I have had a few MRI's done and my brain they tell me looks fine...and the neurologist says the same. All of my blood work is good although I do have a high hemoglobin count. other than that I dont know what needs to be done to check for brain cancer or bleeding? My blood pressure is always normally a bit on the high side for my age. hope this helps thanks for your concern much
    pleasehelpmeplease 5 Replies
    • August 17, 2011
    • 06:02 PM
    • 0
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  • I suppose you really have some kind of serious brain injury, may be due to the "stroke"-like episode you described.I don't think you have brain cancer or cerebral hemorrhage or something like that.At first look it seems to me that your case is opposite - maybe some centers in your brain have cerebral ischemia which can lead to cerebral hypoxia and cerebral infarction. This condition could be caused by reduced blood circulation due to the blood vessels narrowing (cerebral vasoconstriction, stenosis) in some parts of the brain. Actually regular MRI can not show noticeable pathologic changes in 10-20% of cases (and even more). In some cases the angiography method could be helpful (MRA or CTA with contrast agent), but it is possible to check mainly large blood vessels by cerebral angiography/arteriography. There are many other methods of cerebral examination, for example, microangiography, Transcranial Doppler (TCD) method, diffusion MRI, MR-spectroscopy (MRS), functional MRI (fMRI), etc., but I'm not sure about their availability for you.Anyway it's only my preliminary assumption but not final diagnosis, I can say more definitely only after my diagnostics & analysis.
    alltimatehelp 128 Replies
    • August 18, 2011
    • 09:51 PM
    • 0
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  • Alltimatehelp:thank you for your response. Now based on what you wrote I am a little worried. Is this correctable? Is it lethal? Can I get better and have a quality life again? What can improve this...if it were actually this....getting these kinds of tests would be near impossible bc I have no insurance or money at the time. please note this though. Exercise helps my symptoms...in some cases big time. If I can force my way through some light cardio for 20-30 minutes later in the day I feel a difference but while Im doing it its horrific how I feeel but I fight through with all my might. it gives relief. I dont know if this helps in your diagnossis. thank you again!
    pleasehelpmeplease 5 Replies
    • August 19, 2011
    • 00:28 AM
    • 0
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  • Based on what you said helps these symptoms (exercise and laying in bed for an hr or so resting) , could point to your issue being anxiety related. Exercise can help anxiety and so does relaxation. Some people can get all kinds of symptoms with anxiety.
    taniaaust1 2267 Replies
    • August 19, 2011
    • 08:24 AM
    • 0
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  • - "I don't think you have brain cancer or cerebral hemorrhage or something like that." =Usually these two disorders can be noticed easily at MRI/CT scans, I mean that tumor and spacious intracerebral hemorrhage (bleeding) could be detected by ordinary MRI/CT imaging you did, so I except these diagnoses. Besides, the symptoms of them are slightly different.- "Is this correctable? Is it lethal? Can I get better and have a quality life again?" =I think it can be fixed. Usually nervous tissue dystrophy (brain ischemia) caused by cerebral vasoconstriction can be treated well (depends mainly on current state/condition and how long this disorder lasts), but it requires much time and patience for treatment and recovery. Sorry, I don't use medications for the treatment of such kind of pathology, so I can not say how it is treated by drugs and what are results. But my practice shows that my methods are very effective, in many cases the treatment was successful, even for very complicated and seriuos conditions. Usually it's not a problem to stop and reverse the dystrophy/ischemia process in the brain and make the patients feel good.- "getting these kinds of tests would be near impossible" =I don't think that it's necessary to perform many complicated tests and examinations, in most cases I can define for sure what's going on without any device diagnostics.- "Exercise helps my symptoms" "it gives relief" =I suppose when you do your exercises, the volume of oxygen coming into body through lungs is increasing, blood pressure & blood stream speed are changed and blood vessels are dilated, and the brain centers affected by dystrophy (ischemia) have the ingreased oxygen supply feeded by blood, symptoms of focal cerebral hypoxia are reducing and you feel better.
    alltimatehelp 128 Replies
    • August 19, 2011
    • 01:53 PM
    • 0
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  • First thing is to not panic because someone who has never seen you tells you you have something wrong in your brain. I agree that sometimes the tests don't always show everything. Having recently had brain surgery and brain cancer, I'm a fan of testing.You could always have several health issues going on. You have Lyme, which will give you that ultimate fatigue, muscle ache, exhaustion, etc. Migraines may give the light and sound sensitivity,eye and head pain, etc. An anxiety disordeer may give the breathing, swallowing, and other associated problems. I realize you have no insurance. You obviously are still here after all this time. Have faith that this is not a mortal problem. See about getting individual insurance. They are fairly affordable these days. Or get diagnosed as disabled due to this and get Medicare. These are only opinions. But I don't suggest having more anxiety over something you have no way of proving right now. Good luck.
    Anonymous 42789 Replies
    • August 19, 2011
    • 09:56 PM
    • 0
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    • August 21, 2011
    • 08:46 AM
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  • Ïðèâåò ïàðíè. Î÷åíü õî÷åòñÿ ïîäèñêóòèðîâàòü íà òåìó ñîôòà. Êòî êàêèå çíàåò ñàéòû ñ áåñïëàòíûì ñîôòîì: ïðîãðàììàìè, âàðåçíèêîì?
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    • August 21, 2011
    • 09:11 AM
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  • Ïðèâåò ïàðíè. Î÷åíü õî÷åòñÿ ïîäèñêóòèðîâàòü íà òåìó ñîôòà. Êòî êàêèå çíàåò ñàéòû ñ áåñïëàòíûì ñîôòîì: ïðîãðàììàìè, âàðåçíèêîì?
    kneexulfike 62 Replies
    • August 21, 2011
    • 09:27 AM
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  • Hello altimatehelp again thank you very much for your very educated and thoughtful help.You mentioned that this type of thing does not neccesarily need a clinacal diagnoses proven by tests but rather just from symtpoms alone. you also said that I could regain a normal life again with correct treatment. You also mentioned the treratment with western meds you were not sure of. but you said you knew of other ways and techniques to address the problem. I would really like to know any information that I could possibly try and see if I get any types of results. I really would like to stop or reverse the dystrophy/ischemia if possible so I can start feeling better. Your answer above all I have ever heard over the last four years is the most plausible and makes sense the most. also the fact that I can make a full recovery and have a normal life again makes me very hopefull and happy. I just want to feel ok again. Any information would help and be appreciated so greatly! Thank you again!!!
    pleasehelpmeplease 5 Replies
    • August 23, 2011
    • 09:02 PM
    • 0
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