Discussions By Condition: I cannot get a diagnosis.

Suffering from brain fog and other symptoms? Me too; let's figure it out.

Posted In: I cannot get a diagnosis. 16 Replies
  • Posted By: Aaron-o
  • April 21, 2013
  • 03:32 PM

Hello

My name's Aaron; I'm a student in my 20s who has been going through some creepy stuff for the past three weeks now. The collection of symptoms I have is so vague and non-specific, that it's been a real struggle to even just list the pertinent ones, much less come up with a diagnosis >_< Nonetheless, I've found a lot of other people online who have similar symptoms, and like me, they all seem to be in the dark about what's causing them.

So I have sort of a novel idea with this post. Not only do I get people with similar symptoms together and share their stories/solutions, but I'd also like continue keeping in contact with any people who are interested, so that we can support each other more easily by sharing updates/research as they come. My hope is to get together a small group of people on Skype to act sort of like a support group of sorts - maybe if we can pool our info, we can help each other get through this and eventually share relevant findings with everyone else on this thread/site.

So without further adieu I guess I should share my actually story now; I'll try and keep it concise.

The first thing that I noticed was a tingling sensation in the back of my head. It seemed like nothing for a while, but it was so importunate that I ended up feeling the back of my head reflexively (I guess I was subconsciously checking for something abnormal), and came across a small but noticeable dip in my skull. I started getting very anxious about this, and it bothered me throughout the rest of Easter weekend.

Later the next week, I started experiencing what I'd come to know as 'brain fog' - inability to concentrate, impaired memory, emotional detachment, and just a general 'fogginess' as if I were not completely awake. This is the most annoying symptom by far for me and most others who have similar complaints. Eventually, I got so nervous about it that I made a doctor's appointment, and visited a medexpress before that was even up.

The MedExpress guys, needless to say, were not very much help in retrospect. The guy who say me took some blood for testing (CBC, Lyme disease, and some STDs like syphilis), and after a short neurological exam, dismissed me with anti-anxiety pills, explaining that my problems were most likely in my head. At the time, I was considering that seriously as a possibility, just because the brain fog was so weird and I had nothing else to go on.

Several days later though, new symptoms popped up - weird aches and pains, fatigue, and muscle weakness. I was actually quite glad when physical symptoms appeared, because I sort of felt like I was losing it earlier. Anyway, I got through this stuff until the doctors appointment (with my childhood DO) and she was very nice and listened while I related my problems. She took yet more blood, scheduled an MRI, and told me we'd get to the bottom of this, so I feel lucky to have such a good doctor since I know a lot of you have had less pleasant experiences.

So! This was all about a week ago. Since then, I've had the blood work and the MRI come back negative/normal, with only a few exceptions: first of all, my TSH (thyroid stimulating hormone) was in the low range, and secondly, I have a huge deficiency of vitamin D. Other than that, all of my testing is okay, including CBC, WBC, other vitamins, Lyme, etc. and the MRI has ruled out (for the time being) anything like an aneurysm, stroke, or Multiple Slcerosis, which I feared at the beginning.

I'm still waiting on the results of a couple blood tests, including one that measures vitamin B12 and HIV/AIDS test. I am gay and have taken some risks in the past so I can't rule it out, but I feel like it's unlikely.

That's basically where I'm at now. To recap, here's all of my symptoms:

-brain fog (impaired memory, concentration)
-mood swings/emotional detachment (not sure if related to the brain fog or not)
-muscle and joint aches
-muscle weakness/twitching
-fatigue
-chest pains
-feeling of food stuck in throat, neck stiffness and tightness
-tingling in fingertips

In addition, here are some other symptoms whose clinical significance I'm unsure of:

-crazy itchy/dry eyes, seems different than normal allergies
-inability to sneeze (seems to be resolved now?)
-capricious appetite

Okay, that's about all I can think of :3 I realize that's a lot of seemingly random symptoms, but the list of possible causes I have found to explain them is also quite large. Here's a sample of the most compelling reasons I have right now:

1.vitamin deficiencies
2.lyme disease
3.pineal cyst? (this turned up on the MRI, but apparently they are benign and normal)
4.thyroid problems

Those are just the things that I have in my mind at the moment as being the most likely. For those of you out there who have been repeatedly tested negative for this, there are maaaany other possible explanations, and I'd be glad to share them with you if you ask. For simplicity's sake though, I'm going to leave it here.

The path forward for me right now is waiting for my follow-up with my PCP, and on the results of the other blood tests. When I see my doctor next, I plan on asking her about the 4 things mentioned above - I'll be asking for a thyroid panel, and another Lyme test since they are often inaccurate. Beyond that, Idk really :s

Thanks for reading through all of this if you did, and please post your replies whatever they may be. I will check this thread regularly and reply back. I'm especially interested in people in my age group with similar symptoms, but if ANY one is interested in contacting me on skype so that we can help each other out, please don't hesitate. My sn is aarontastic13 and I'll be on there lots too. I sympathize with all the students and adults who have had their lives interrupted by this, and I really think keeping in touch with each other online will help in a lot of ways. Thanks!

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16 Replies:

  • Hey!So I basically have the same thing and I know like 99 percent it IS vitamin deficiency. Im low on Iron as well as Vitamin D. Did you check for iron levels as well? Symptom for iron deficiency is brain fog and dizzy ness. What were your numbers on the Vit D? My thyroid as well is a bit on the lower range of normal as well so hypo i believe. I suffered from joint pains (terrible) throbbing sensations in my arms and legs. BAD back pains on the left side. After taking vitamin D, the joint pains and the leg throbs went away. I take 1,000 IU everyday. Itll take a while for it to go back. i thought I was just stupid in classes where I had to concentrate (math) but now that my levels are slowwly going back up, AMAZING. I CAN DO THE WORK. Its amazing. being low on vitamins are very effective. It WILL cause painful and bothersome symptoms. If youw ant, you can look up Abram Hoffer, MD, PhD and Andrew W. Saul, Phd documentary about vitamins and their important role. if you lack nutrients, your body will start to lose what it needs to save you from getting sick. Try the vitamins. :) Good luck.
    Anonymous 42789 Replies Flag this Response
  • I'd get a Lyme test with Igenex or NeuroScience. Go out-of-pocket for it. The tradition Lyme tests the doctors do are very unreliable and are often wrong.
    Anonymous 42789 Replies Flag this Response
  • Hello My name's Aaron; I'm a student in my 20s who has been going through some creepy stuff for the past three weeks now. The collection of symptoms I have is so vague and non-specific, that it's been a real struggle to even just list the pertinent ones, much less come up with a diagnosis >_So I have sort of a novel idea with this post. Not only do I get people with similar symptoms together and share their stories/solutions, but I'd also like continue keeping in contact with any people who are interested, so that we can support each other more easily by sharing updates/research as they come. My hope is to get together a small group of people on Skype to act sort of like a support group of sorts - maybe if we can pool our info, we can help each other get through this and eventually share relevant findings with everyone else on this thread/site.So without further adieu I guess I should share my actually story now; I'll try and keep it concise. The first thing that I noticed was a tingling sensation in the back of my head. It seemed like nothing for a while, but it was so importunate that I ended up feeling the back of my head reflexively (I guess I was subconsciously checking for something abnormal), and came across a small but noticeable dip in my skull. I started getting very anxious about this, and it bothered me throughout the rest of Easter weekend. Later the next week, I started experiencing what I'd come to know as 'brain fog' - inability to concentrate, impaired memory, emotional detachment, and just a general 'fogginess' as if I were not completely awake. This is the most annoying symptom by far for me and most others who have similar complaints. Eventually, I got so nervous about it that I made a doctor's appointment, and visited a medexpress before that was even up. The MedExpress guys, needless to say, were not very much help in retrospect. The guy who say me took some blood for testing (CBC, Lyme disease, and some STDs like syphilis), and after a short neurological exam, dismissed me with anti-anxiety pills, explaining that my problems were most likely in my head. At the time, I was considering that seriously as a possibility, just because the brain fog was so weird and I had nothing else to go on. Several days later though, new symptoms popped up - weird aches and pains, fatigue, and muscle weakness. I was actually quite glad when physical symptoms appeared, because I sort of felt like I was losing it earlier. Anyway, I got through this stuff until the doctors appointment (with my childhood DO) and she was very nice and listened while I related my problems. She took yet more blood, scheduled an MRI, and told me we'd get to the bottom of this, so I feel lucky to have such a good doctor since I know a lot of you have had less pleasant experiences.So! This was all about a week ago. Since then, I've had the blood work and the MRI come back negative/normal, with only a few exceptions: first of all, my TSH (thyroid stimulating hormone) was in the low range, and secondly, I have a huge deficiency of vitamin D. Other than that, all of my testing is okay, including CBC, WBC, other vitamins, Lyme, etc. and the MRI has ruled out (for the time being) anything like an aneurysm, stroke, or Multiple Slcerosis, which I feared at the beginning. I'm still waiting on the results of a couple blood tests, including one that measures vitamin B12 and HIV/AIDS test. I am gay and have taken some risks in the past so I can't rule it out, but I feel like it's unlikely.That's basically where I'm at now. To recap, here's all of my symptoms: -brain fog (impaired memory, concentration)-mood swings/emotional detachment (not sure if related to the brain fog or not)-muscle and joint aches-muscle weakness/twitching-fatigue -chest pains -feeling of food stuck in throat, neck stiffness and tightness-tingling in fingertipsIn addition, here are some other symptoms whose clinical significance I'm unsure of:-crazy itchy/dry eyes, seems different than normal allergies-inability to sneeze (seems to be resolved now?) -capricious appetite Okay, that's about all I can think of :3 I realize that's a lot of seemingly random symptoms, but the list of possible causes I have found to explain them is also quite large. Here's a sample of the most compelling reasons I have right now:1.vitamin deficiencies2.lyme disease3.pineal cyst? (this turned up on the MRI, but apparently they are benign and normal)4.thyroid problems Those are just the things that I have in my mind at the moment as being the most likely. For those of you out there who have been repeatedly tested negative for this, there are maaaany other possible explanations, and I'd be glad to share them with you if you ask. For simplicity's sake though, I'm going to leave it here.The path forward for me right now is waiting for my follow-up with my PCP, and on the results of the other blood tests. When I see my doctor next, I plan on asking her about the 4 things mentioned above - I'll be asking for a thyroid panel, and another Lyme test since they are often inaccurate. Beyond that, Idk really :sThanks for reading through all of this if you did, and please post your replies whatever they may be. I will check this thread regularly and reply back. I'm especially interested in people in my age group with similar symptoms, but if ANY one is interested in contacting me on skype so that we can help each other out, please don't hesitate. My sn is aarontastic13 and I'll be on there lots too. I sympathize with all the students and adults who have had their lives interrupted by this, and I really think keeping in touch with each other online will help in a lot of ways. Thanks!I can tell you EXACTLY what you have...You have depression. I know it is hard for some to accept that they have depression or try to convince themselves otherwise because people think depression is based off ones negative outlook on life or that it's their "Own ability to control their emotions" which isn't true...Depression can effect ANYONE and ANYTIME in their life, it does not discriminate. You can be a hard worker, have everything going for you, and a good out look on life and you can still fall prey to depression...It has NOTHING to do with how you perceive life, it should be treated just as a knee scrap should be treated...It isn't the persons fault, it is just genetics and has a TRUE physical impact on your brain activity...Believe me, you have depression 100%...EVERY SINGLE symptom you mentioned is a symptom of depression....Depression doesn't last forever...But the first step is understanding that is what you have...Then you can treat it and move on..Good luck...Now I know you're probably saying, "I don't have depression"...No one ever wants to think or admit they have it...And MAJORITY of the time it comes with a lot of anxiety...You freaking out that you have a physical ailment or that you're going to die from some disease is part of your anxiety that comes with your depression....People me, it runs in my family and everything you said is to the T of depression....Again, don't try to fight against it because you don't want to admit it because you won't be able to treat it....Depression doesn't last forever, it can be treated....So I would set up an appointment with a psychologist/physiatrist and start treating your depression...Good Luck
    Anonymous 42789 Replies Flag this Response
  • Hello My name's Aaron; I'm a student in my 20s who has been going through some creepy stuff for the past three weeks now. The collection of symptoms I have is so vague and non-specific, that it's been a real struggle to even just list the pertinent ones, much less come up with a diagnosis >_So I have sort of a novel idea with this post. Not only do I get people with similar symptoms together and share their stories/solutions, but I'd also like continue keeping in contact with any people who are interested, so that we can support each other more easily by sharing updates/research as they come. My hope is to get together a small group of people on Skype to act sort of like a support group of sorts - maybe if we can pool our info, we can help each other get through this and eventually share relevant findings with everyone else on this thread/site.So without further adieu I guess I should share my actually story now; I'll try and keep it concise. The first thing that I noticed was a tingling sensation in the back of my head. It seemed like nothing for a while, but it was so importunate that I ended up feeling the back of my head reflexively (I guess I was subconsciously checking for something abnormal), and came across a small but noticeable dip in my skull. I started getting very anxious about this, and it bothered me throughout the rest of Easter weekend. Later the next week, I started experiencing what I'd come to know as 'brain fog' - inability to concentrate, impaired memory, emotional detachment, and just a general 'fogginess' as if I were not completely awake. This is the most annoying symptom by far for me and most others who have similar complaints. Eventually, I got so nervous about it that I made a doctor's appointment, and visited a medexpress before that was even up. The MedExpress guys, needless to say, were not very much help in retrospect. The guy who say me took some blood for testing (CBC, Lyme disease, and some STDs like syphilis), and after a short neurological exam, dismissed me with anti-anxiety pills, explaining that my problems were most likely in my head. At the time, I was considering that seriously as a possibility, just because the brain fog was so weird and I had nothing else to go on. Several days later though, new symptoms popped up - weird aches and pains, fatigue, and muscle weakness. I was actually quite glad when physical symptoms appeared, because I sort of felt like I was losing it earlier. Anyway, I got through this stuff until the doctors appointment (with my childhood DO) and she was very nice and listened while I related my problems. She took yet more blood, scheduled an MRI, and told me we'd get to the bottom of this, so I feel lucky to have such a good doctor since I know a lot of you have had less pleasant experiences.So! This was all about a week ago. Since then, I've had the blood work and the MRI come back negative/normal, with only a few exceptions: first of all, my TSH (thyroid stimulating hormone) was in the low range, and secondly, I have a huge deficiency of vitamin D. Other than that, all of my testing is okay, including CBC, WBC, other vitamins, Lyme, etc. and the MRI has ruled out (for the time being) anything like an aneurysm, stroke, or Multiple Slcerosis, which I feared at the beginning. I'm still waiting on the results of a couple blood tests, including one that measures vitamin B12 and HIV/AIDS test. I am gay and have taken some risks in the past so I can't rule it out, but I feel like it's unlikely.That's basically where I'm at now. To recap, here's all of my symptoms: -brain fog (impaired memory, concentration)-mood swings/emotional detachment (not sure if related to the brain fog or not)-muscle and joint aches-muscle weakness/twitching-fatigue -chest pains -feeling of food stuck in throat, neck stiffness and tightness-tingling in fingertipsIn addition, here are some other symptoms whose clinical significance I'm unsure of:-crazy itchy/dry eyes, seems different than normal allergies-inability to sneeze (seems to be resolved now?) -capricious appetite Okay, that's about all I can think of :3 I realize that's a lot of seemingly random symptoms, but the list of possible causes I have found to explain them is also quite large. Here's a sample of the most compelling reasons I have right now:1.vitamin deficiencies2.lyme disease3.pineal cyst? (this turned up on the MRI, but apparently they are benign and normal)4.thyroid problems Those are just the things that I have in my mind at the moment as being the most likely. For those of you out there who have been repeatedly tested negative for this, there are maaaany other possible explanations, and I'd be glad to share them with you if you ask. For simplicity's sake though, I'm going to leave it here.The path forward for me right now is waiting for my follow-up with my PCP, and on the results of the other blood tests. When I see my doctor next, I plan on asking her about the 4 things mentioned above - I'll be asking for a thyroid panel, and another Lyme test since they are often inaccurate. Beyond that, Idk really :sThanks for reading through all of this if you did, and please post your replies whatever they may be. I will check this thread regularly and reply back. I'm especially interested in people in my age group with similar symptoms, but if ANY one is interested in contacting me on skype so that we can help each other out, please don't hesitate. My sn is aarontastic13 and I'll be on there lots too. I sympathize with all the students and adults who have had their lives interrupted by this, and I really think keeping in touch with each other online will help in a lot of ways. Thanks!I can tell you EXACTLY what you have...You have depression. I know it is hard for some to accept that they have depression or try to convince themselves otherwise because people think depression is based off ones negative outlook on life or that it's their "Own ability to control their emotions" which isn't true...Depression can effect ANYONE and ANYTIME in their life, it does not discriminate. You can be a hard worker, have everything going for you, and a good out look on life and you can still fall prey to depression...It has NOTHING to do with how you perceive life, it should be treated just as a knee scrap should be treated...It isn't the persons fault, it is just genetics and has a TRUE physical impact on your brain activity...Believe me, you have depression 100%...EVERY SINGLE symptom you mentioned is a symptom of depression....Depression doesn't last forever...But the first step is understanding that is what you have...Then you can treat it and move on..Good luck...Now I know you're probably saying, "I don't have depression"...No one ever wants to think or admit they have it...And MAJORITY of the time it comes with a lot of anxiety...You freaking out that you have a physical ailment or that you're going to die from some disease is part of your anxiety that comes with your depression....People me, it runs in my family and everything you said is to the T of depression....Again, don't try to fight against it because you don't want to admit it because you won't be able to treat it....Depression doesn't last forever, it can be treated....So I would set up an appointment with a psychologist/physiatrist and start treating your depression...Good Luck
    Anonymous 42789 Replies Flag this Response
  • Have you considered B-12 deficiency? Watch this video. http://www.youtube.com/watch?v=BvEizypoyO0 I had brain fog, feeling of electricity going down a leg, occasional feelings of bugs crawling under my skin, weight loss, years of upper back muscle spasm, all which I attributed to getting older. it wasn't until I developed severe and constant muscle spasms in both arms that i went looking for a cause and discovered that i might be B-12 deficient. Didn't get levels drawn and wish i would have now, just out of curiosity. Just started taking a B vitamin concentrate plus additional B-12 from a company called Biomaxx Energy. Within a week all my muscle spasm was gone and then I started realizing how many of my other symptoms were related to B-12 ( or possibly other B vitamins) deficiency as symptoms I had for 15 years started disappearing. 3 months later i feel like a new person.
    Anonymous 42789 Replies Flag this Response
  • Have you considered B-12 deficiency? Watch this video. http://www.youtube.com/watch?v=BvEizypoyO0 I had brain fog, feeling of electricity going down a leg, occasional feelings of bugs crawling under my skin, weight loss, years of upper back muscle spasm, all which I attributed to getting older. it wasn't until I developed severe and constant muscle spasms in both arms that i went looking for a cause and discovered that i might be B-12 deficient. Didn't get levels drawn and wish i would have now, just out of curiosity. Just started taking a B vitamin concentrate plus additional B-12 from a company called Biomaxx Energy. Within a week all my muscle spasm was gone and then I started realizing how many of my other symptoms were related to B-12 ( or possibly other B vitamins) deficiency as symptoms I had for 15 years started disappearing. 3 months later i feel like a new person.No, and it's not a vitamin B12 deficiency I can guarantee it...He has depression..The impact of vitamin B12 is basically irrelevant to ones mood...It's just another way for people to sell products..And for someone to TRULY even have a B12 deficiency that is medically proven through blood work they would have to have some illness or very bad malnutrition...That is the real truth about vitamin B12...Again, The so called "deficiencies" in B12 is basically NON EXISTENT...And on TOP OF IT, even if someone had a B12 deficiency it would not have as strong emotional/mental effects on a person as depression would...It's VERY clear this person has depression...They just need to get it treated
    Anonymous 42789 Replies Flag this Response
  • There is a doctor saying that goes "If you hear hoof-beats, look for horses not zebras." The doctors have all been giving you the normal causes around your symptoms, i.e. horses.If you want to go zebra hunting, check with an Endocrinologist and have them look at your adrenal hormones. You might have to push for this a little, because we are talking about rather rare problems. http://en.wikipedia.org/wiki/Adrenal_gland
    Brandella 2 Replies Flag this Response
  • No, and it's not a vitamin B12 deficiency I can guarantee it...He has depression..The impact of vitamin B12 is basically irrelevant to ones mood...It's just another way for people to sell products..And for someone to TRULY even have a B12 deficiency that is medically proven through blood work they would have to have some illness or very bad malnutrition...That is the real truth about vitamin B12...Again, The so called "deficiencies" in B12 is basically NON EXISTENT...And on TOP OF IT, even if someone had a B12 deficiency it would not have as strong emotional/mental effects on a person as depression would...It's VERY clear this person has depression...They just need to get it treatedWatch the video and you will discover that everything you just wroted is incorrect. Not only can low B-12 affect one's mood, it can cause dementia and pychosis.
    Anonymous 42789 Replies Flag this Response
  • Hey everyone, posting back with a belated update - sorry for being so slow with it, but there's been a lot going on. So much, in fact, that it's probably not even worth detailing here. To make a long story short, I have experienced more symptoms that have come and gone, and seen more doctors (no specialists yet however), and gotten more tests done. I'll try and list the relevant info and keep it simple.First of all, here's am updated list of my symptoms:-brain fog (cognitive impairment, trouble focusing, poor memory)-depression and emotional detachment of varying intensity-paresthesias (tingling/burning in hands in feet)-weakness/fatigue-aches in bones and muscles-spinal pain The most severe symptoms are definitely the neuro-psychiatric ones (brain fog and depression, that kind of stuff); the physical symptoms are much less problematic for me.Here's a list of tests I've had thus far (most of them at my own request - do your homework!!) -CBC-Complete metabolic panel-thyroid panel (including T3 and T4 and TSH)-Vitamin deficiencies (vitamin D, B12, Calcium, Folate, Magnesium) -homocysteine and methylmalonic acid (more comprehensive testing of possible B12 deficiency) -MRI with and without contrast-neurological signs (when you are in the doc's office and they ask you to touch your nose, etc.)-intact PTH -heavy metal poisoning (arsenic, lead, and mercury) -lyme disease-HIV-syphilis -hepatitis -ANA -C-reactive protein (CRP)-HLA-27 -ESRSo there's that. All of these tests I managed to obtain with agreement from my primary care physician, but there are also private org.'s that allow you to run your own tests, provided that you can pay for them. It's so important to be able to do the testing though, because putting the results together with your symptoms can be elucidating. Here's the abnormal/significant things that have popped up in my lab work:-a few raised liver results - slightly elevated TBIL, DBIL, and ALB-borderline hypercalcemia -severe vitamin d deficiency-pineal cyst (from MRI), .5 cm -borderline low PTH-functionally low TSH-low T3Okay, neato. Now none of those things on their own seem important on their own, but it's also important to remember to take the lab results in conjunction with one another. Using all of the info available to me so far, I've narrowed down what was initially a huge differential diagnosis to 3 leading suspects: 1. Hypercalcemia due to either hyperparathyroidism, or granulomatous disease (ie, sarcoidosis)2. Secondary hypothyroidism due to Pituitary gland dysfunction 3. a combination of both 1 & 2 due to MEN (multiple endocrine neoplasia) Besides those possibilities, I haven't ruled out the pineal cyst causing problems, either in the form of hydrocephalus, or from merely pressing on surrounding tissues in my brain.So that is where I'm at so far. Coming up, I have a specialist appointment with a neurosurgeon specializing in pineal gland cysts on the 28th (of May), and a follow up with my PCP following that. I feel like I"m getting close to zeroing in on my problem : ]
    Aaron-o 27 Replies Flag this Response
  • I want to say to all of you who may read this thread occasionally that the secret in finding out what's wrong is doing your own research, both on your symptoms AND finding the right doctors to help you. I'm not done with my problem yet, but if I do manage to pin this thing down after only just 2 months, then that would be pretty amazing and it will be 100% because of the vast amount of info out there online. My doctor is good, but like all doctor's she is overworked with patients, and has limited time to do extensive research on behalf of one patient. Specialists have deeper knowledge of particular conditions in their field, but are utterly lacking sometimes when it comes to being able to integrate information or look at the big picture. It's up to us as patients to be able to synthesize all of the data for them, and then present it to the right people so that we can get a diagnosis, and ultimately treatment. So stay positive and be assiduous, research research research. That is what will get you the answers in the end; just remember that there is always an answer to your problems. If something is wrong with you and you can't get a diagnosis, it doesn't mean that nothing's wrong, it just means the doctor's can't figure it out until you get them more info :p so just something to keep in mind.
    Aaron-o 27 Replies Flag this Response
  • Hi Aaron, I suspect by now you have established low B12 as a cause of many of your symptoms. Healthy lower intestine is an understated but important factor in maintaining overall health. Many of the symptoms you describe are asociated with reduced production of Intrinsic factor, of which B12 is critical. Why your B12 and vitamin D are low could be due a range of causes. Low Vit D indicates either reduced sun exposure or your immune system is using it to combat a foreign body in your system. Recent studies into low B12 indicate a variety of possible causes, most obvious being diet, but also some bacterial infections of the gut that absorb Intrinsic factor and deny it from the body. Recent UK studies indicate a B12 level below 300 is in the deficient range, although current Australian/UK standard is 150.Hope this helps you find an accurate diagnosis and you are feeling better.
    CoreyJ 3 Replies Flag this Response
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  • I have to second what Brandela said. You might want to check on your cortisol and adrenal functioning to rule it out. That would explain the symptoms including the low vitamin D.
    Paula1849 5 Replies Flag this Response
  • So sorry to anyone who has been keeping an eye on this thread; I know I haven't been updating it very often, but things are hectic as usual :p anyways, I am back with some news and I will be making another thread soon to sum up all of my findings.Anyways, I am pretty sure that I've found out what's been the cause of my brain fog (and other symptoms): to sum it up simply, it's called Celiac Disease, which was one of the things that I had been considering from the beginning. Just about a week ago, I had myself tested for food allergies by my doctor, which came back positive for multiple allergies - tree nuts, wheat, soy, hazlenut, and a couple of other things. The severity of these allergies varies, but they all may well have been contributing to my symptoms. However, it's more likely that gluten intolerance/Celiac Disease (and I will write more about these things in later posts) have been at the root of my problems. Towards that end, I had an endoscopy/duodenal biopsy done to look for the villous atrophy and intraepithelial infiltration that are the hallmarks of that condition; I should have the results in a week or two. Sound complicated? That's just the beginning of it. Complications of Celiac Disease that can cause brain fog include vitamin malabsorbtion, intestinal dysbiosis, gluten-sensitive enteropathy, and autoimmune diseases. It's a lot to learn about and deal with.Anyway, It's very late at night where I am and I need to get some sleep, but I just wanted to post this quick update. I will elaborate more on it later. I also intend to post all of my research into the causes, tests, and treatments for brain fog onto this site and onto my youtube channel, 'Aaronthegreatest' (shush I made it when I was like 15). So yeah! Will provide more info soon, hope things are going well for everyone else.
    Aaron-o 27 Replies Flag this Response
  • Hello My name's Aaron; I'm a student in my 20s who has been going through some creepy stuff for the past three weeks now. The collection of symptoms I have is so vague and non-specific, that it's been a real struggle to even just list the pertinent ones, much less come up with a diagnosis >_So I have sort of a novel idea with this post. Not only do I get people with similar symptoms together and share their stories/solutions, but I'd also like continue keeping in contact with any people who are interested, so that we can support each other more easily by sharing updates/research as they come. My hope is to get together a small group of people on Skype to act sort of like a support group of sorts - maybe if we can pool our info, we can help each other get through this and eventually share relevant findings with everyone else on this thread/site.So without further adieu I guess I should share my actually story now; I'll try and keep it concise. The first thing that I noticed was a tingling sensation in the back of my head. It seemed like nothing for a while, but it was so importunate that I ended up feeling the back of my head reflexively (I guess I was subconsciously checking for something abnormal), and came across a small but noticeable dip in my skull. I started getting very anxious about this, and it bothered me throughout the rest of Easter weekend. Later the next week, I started experiencing what I'd come to know as 'brain fog' - inability to concentrate, impaired memory, emotional detachment, and just a general 'fogginess' as if I were not completely awake. This is the most annoying symptom by far for me and most others who have similar complaints. Eventually, I got so nervous about it that I made a doctor's appointment, and visited a medexpress before that was even up. The MedExpress guys, needless to say, were not very much help in retrospect. The guy who say me took some blood for testing (CBC, Lyme disease, and some STDs like syphilis), and after a short neurological exam, dismissed me with anti-anxiety pills, explaining that my problems were most likely in my head. At the time, I was considering that seriously as a possibility, just because the brain fog was so weird and I had nothing else to go on. Several days later though, new symptoms popped up - weird aches and pains, fatigue, and muscle weakness. I was actually quite glad when physical symptoms appeared, because I sort of felt like I was losing it earlier. Anyway, I got through this stuff until the doctors appointment (with my childhood DO) and she was very nice and listened while I related my problems. She took yet more blood, scheduled an MRI, and told me we'd get to the bottom of this, so I feel lucky to have such a good doctor since I know a lot of you have had less pleasant experiences.So! This was all about a week ago. Since then, I've had the blood work and the MRI come back negative/normal, with only a few exceptions: first of all, my TSH (thyroid stimulating hormone) was in the low range, and secondly, I have a huge deficiency of vitamin D. Other than that, all of my testing is okay, including CBC, WBC, other vitamins, Lyme, etc. and the MRI has ruled out (for the time being) anything like an aneurysm, stroke, or Multiple Slcerosis, which I feared at the beginning. I'm still waiting on the results of a couple blood tests, including one that measures vitamin B12 and HIV/AIDS test. I am gay and have taken some risks in the past so I can't rule it out, but I feel like it's unlikely.That's basically where I'm at now. To recap, here's all of my symptoms: -brain fog (impaired memory, concentration)-mood swings/emotional detachment (not sure if related to the brain fog or not)-muscle and joint aches-muscle weakness/twitching-fatigue -chest pains -feeling of food stuck in throat, neck stiffness and tightness-tingling in fingertipsIn addition, here are some other symptoms whose clinical significance I'm unsure of:-crazy itchy/dry eyes, seems different than normal allergies-inability to sneeze (seems to be resolved now?) -capricious appetite Okay, that's about all I can think of :3 I realize that's a lot of seemingly random symptoms, but the list of possible causes I have found to explain them is also quite large. Here's a sample of the most compelling reasons I have right now:1.vitamin deficiencies2.lyme disease3.pineal cyst? (this turned up on the MRI, but apparently they are benign and normal)4.thyroid problems Those are just the things that I have in my mind at the moment as being the most likely. For those of you out there who have been repeatedly tested negative for this, there are maaaany other possible explanations, and I'd be glad to share them with you if you ask. For simplicity's sake though, I'm going to leave it here.The path forward for me right now is waiting for my follow-up with my PCP, and on the results of the other blood tests. When I see my doctor next, I plan on asking her about the 4 things mentioned above - I'll be asking for a thyroid panel, and another Lyme test since they are often inaccurate. Beyond that, Idk really :sThanks for reading through all of this if you did, and please post your replies whatever they may be. I will check this thread regularly and reply back. I'm especially interested in people in my age group with similar symptoms, but if ANY one is interested in contacting me on skype so that we can help each other out, please don't hesitate. My sn is aarontastic13 and I'll be on there lots too. I sympathize with all the students and adults who have had their lives interrupted by this, and I really think keeping in touch with each other online will help in a lot of ways. Thanks![/Q. Hey did you ever find out what was going on ad I have similar symptoms
    rileyocool 2 Replies
    • August 14, 2013
    • 04:09 AM
    • 0
    Flag this Response
  • My symptoms the same ad yours started 3 days after sexy brainfog feeling of unwell did hours ??? Hello My name's Aaron; I'm a student in my 20s who has been going through some creepy stuff for the past three weeks now. The collection of symptoms I have is so vague and non-specific, that it's been a real struggle to even just list the pertinent ones, much less come up with a diagnosis >_So I have sort of a novel idea with this post. Not only do I get people with similar symptoms together and share their stories/solutions, but I'd also like continue keeping in contact with any people who are interested, so that we can support each other more easily by sharing updates/research as they come. My hope is to get together a small group of people on Skype to act sort of like a support group of sorts - maybe if we can pool our info, we can help each other get through this and eventually share relevant findings with everyone else on this thread/site.So without further adieu I guess I should share my actually story now; I'll try and keep it concise. The first thing that I noticed was a tingling sensation in the back of my head. It seemed like nothing for a while, but it was so importunate that I ended up feeling the back of my head reflexively (I guess I was subconsciously checking for something abnormal), and came across a small but noticeable dip in my skull. I started getting very anxious about this, and it bothered me throughout the rest of Easter weekend. Later the next week, I started experiencing what I'd come to know as 'brain fog' - inability to concentrate, impaired memory, emotional detachment, and just a general 'fogginess' as if I were not completely awake. This is the most annoying symptom by far for me and most others who have similar complaints. Eventually, I got so nervous about it that I made a doctor's appointment, and visited a medexpress before that was even up. The MedExpress guys, needless to say, were not very much help in retrospect. The guy who say me took some blood for testing (CBC, Lyme disease, and some STDs like syphilis), and after a short neurological exam, dismissed me with anti-anxiety pills, explaining that my problems were most likely in my head. At the time, I was considering that seriously as a possibility, just because the brain fog was so weird and I had nothing else to go on. Several days later though, new symptoms popped up - weird aches and pains, fatigue, and muscle weakness. I was actually quite glad when physical symptoms appeared, because I sort of felt like I was losing it earlier. Anyway, I got through this stuff until the doctors appointment (with my childhood DO) and she was very nice and listened while I related my problems. She took yet more blood, scheduled an MRI, and told me we'd get to the bottom of this, so I feel lucky to have such a good doctor since I know a lot of you have had less pleasant experiences.So! This was all about a week ago. Since then, I've had the blood work and the MRI come back negative/normal, with only a few exceptions: first of all, my TSH (thyroid stimulating hormone) was in the low range, and secondly, I have a huge deficiency of vitamin D. Other than that, all of my testing is okay, including CBC, WBC, other vitamins, Lyme, etc. and the MRI has ruled out (for the time being) anything like an aneurysm, stroke, or Multiple Slcerosis, which I feared at the beginning. I'm still waiting on the results of a couple blood tests, including one that measures vitamin B12 and HIV/AIDS test. I am gay and have taken some risks in the past so I can't rule it out, but I feel like it's unlikely.That's basically where I'm at now. To recap, here's all of my symptoms: -brain fog (impaired memory, concentration)-mood swings/emotional detachment (not sure if related to the brain fog or not)-muscle and joint aches-muscle weakness/twitching-fatigue -chest pains -feeling of food stuck in throat, neck stiffness and tightness-tingling in fingertipsIn addition, here are some other symptoms whose clinical significance I'm unsure of:-crazy itchy/dry eyes, seems different than normal allergies-inability to sneeze (seems to be resolved now?) -capricious appetite Okay, that's about all I can think of :3 I realize that's a lot of seemingly random symptoms, but the list of possible causes I have found to explain them is also quite large. Here's a sample of the most compelling reasons I have right now:1.vitamin deficiencies2.lyme disease3.pineal cyst? (this turned up on the MRI, but apparently they are benign and normal)4.thyroid problems Those are just the things that I have in my mind at the moment as being the most likely. For those of you out there who have been repeatedly tested negative for this, there are maaaany other possible explanations, and I'd be glad to share them with you if you ask. For simplicity's sake though, I'm going to leave it here.The path forward for me right now is waiting for my follow-up with my PCP, and on the results of the other blood tests. When I see my doctor next, I plan on asking her about the 4 things mentioned above - I'll be asking for a thyroid panel, and another Lyme test since they are often inaccurate. Beyond that, Idk really :sThanks for reading through all of this if you did, and please post your replies whatever they may be. I will check this thread regularly and reply back. I'm especially interested in people in my age group with similar symptoms, but if ANY one is interested in contacting me on skype so that we can help each other out, please don't hesitate. My sn is aarontastic13 and I'll be on there lots too. I sympathize with all the students and adults who have had their lives interrupted by this, and I really think keeping in touch with each other online will help in a lot of ways. Thanks!
    rileyocool 2 Replies
    • August 14, 2013
    • 04:22 AM
    • 0
    Flag this Response
  • Aaron - I really bad brain fog and I'd like to talk to you. I can't seem to find your YouTube channel or or on Skype. Can you tell me how best to get in touch? Thanks. -David
    Anonymous 1 Replies Flag this Response
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