Discussions By Condition: I cannot get a diagnosis.

Suffering from a vast array of symptoms for almost two years and no diagnosis!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • June 6, 2014
  • 09:30 PM

Good day, everyone! I apologize in advance if this is too long for you to keep your attention (I could hardly keep focus while writing it), but I'm absolutely miserable and would be eternally grateful for any help.

I'm a 28 year old female that has always been in great health. I was always super energetic and active, always ate clean and healthy (aside from delicious beer), and was mentally healthy and stable as well.

I moved from Arizona to Washington in January of 2013. In March of 2013, I went to an MD because of a significant ear infection. He prescribed me amoxicillin, which caused me to break out in a rash after the seventh day of taking it. He informed me that the ear infection was gone, and to discontinue taking the amoxicillin. Ever since then, my symptoms have been....

-Brain fog - I feel as if I'm stoned all day every day (and it's not fun). My cognitive function has definitely decreased, though not exponentially. I find myself in deep stares (not deep enough to where I am not aware of my surroundings, though), and I have issues with concentration.

- Dizziness - Not vertigo, but a complete unbalanced feeling. I cannot even walk around without feeling like I'm going to faint.

-Presyncope - Or near-fainting. I've never actually fainted. I will get super dizzy to the point where I feel woozy/lightheaded, but the feeling goes away after sitting for a few moments and focusing on breathing.

-Upper left quadrant pain in my abdomen - It manifests when it feels like it... It's not always present, and I can never pinpoint exactly what it is that brings it on.

-Light sensitivity - Oh, man, do I hate lights! They intensify my symptoms a million times! Okay, maybe not a million. I have to wear these hideous rose colored lenses in my glasses, and I don't even need a spectacle prescription! I have 20/10- vision in my right eye and 20/15 in my left eye, but the lights are killer.

-HUNGER - I'm staaaaaarving! My blood sugar is always normal, and I don't want sugar anyway (it's not hypoglycemia). I want real food - meats and cheeses and veggies! I'm almost never satisfied. I never eat sugary foods (I even stay away from most fruit), and I rarely eat carbs. I DO have a gluten intolerance, so when I allow myself to eat grains, it's brown rice or quinoa, but that's super rare.

-Amenorrhea - Aunt Flo stopped coming to visit all together. I don't know why she's so angry.

-Enlarged lymph nodes in my neck - The cervical lymph nodes for those who know anatomy. This is new, I have yet to have the lovely biopsy.

-Panic attacks - Stores make me freak the ***l out! My chest hurts, it's hard to breathe, heart beats super fast, dizziness intensifies by, well, a lot, I get tunnel vision, I feel anger, my vision is almost distorted like it would be when drunk, and I feel like I'm going to faint in the middle of the store and everyone will just stand there staring at the weird girl who fainted. I'm a woman. We enjoy shopping. I enjoy grocery shopping, especially... Now I dread even driving to the store knowing how uncomfortable I'll be.

The MD I saw for the ear infection ordered an ultrasound on all of my organs, which turned out to be unremarkable, except I have a larger spleen (not swollen, just a "bigger normal"). My blood work for sugars/A1C, thyroid (omg my poor veins have been poked so many times for the thyroid), CBC, etc... and urinalysis tests have all been "normal". He then told me that I just need to "find peace within myself" and shoo'd me away.

I'm now seeing a DO (highly recommend over MD's), and he's sent me to a neurologist who ordered a brain MRI. Normal. I have proof I have a brain! My fiancee did make the point that it doesn't prove I'm smart, though... The MRI did show slightly enlarged neck lymph nodes, so my DO ordered a CT Scan and that simply reconfirmed the enlargement, so now I get a biopsy. Joy.

I've had a ton of blood tests from him also, all normal. They include adrenal gland function, hormonal balances, liver and kidney function, etc... At my last appointment, he said; "You look very healthy and the tests are proving that you are, so I'm at a loss." I appreciated the honesty more than I can express, but it's still disheartening.

I am not fatigued, I am not in pain (aside from my stomach and that's not constant), and I am not depressed.

I'm getting married soon, and I'm afraid I'll be the fainting bride, or will be too sick to have children, or, well, I could list a million other hypochondria scenarios.

If you can shed any light on these miserable symptoms of mine, I would certainly appreciate it.

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2 Replies:

  • It sounds like your reaction to the antibiotic merited more than simply stopping them. Then when your doctor stopped them early the infection raged on causing the dizziness, imbalance issues, light sensitivity,, swollen lymph nodes, etc. Antibiotics, especially those you react that way to can stop periods and cause panic, stomach pain & nausea. Being allergic to antibiotics can cause a million symptoms.
    Anonymous 1 Replies Flag this Response
  • Be your own advocate & get a copy of all of your tests, including radiology reports & review them yourself. It would also be helpful to have these copies when you see other doctors in the future & may give you a direction of what doctors you might need to see for future testing. My doctors told me everything was normal & once I reviewed my tests I found abnormalities that they didn't tell me about, which included adrenal tumor, mass in abdomen & dilated intra & extra hepatic ducts.
    Anonymous 1 Replies Flag this Response
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