Discussions By Condition: I cannot get a diagnosis.

Suffering for years, still no clue. ARGH!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: sylvie
  • March 15, 2007
  • 04:25 PM


I'm not even sure where to begin here. It seems like the majority of my problems started around 1998 or so. I noticed a throbbing, squeezing sensation in my left arm. The following summer, in '99, I was then having a sharp chest pain when I would breathe in, and then a traveling pain of sorts in my left arm. (Sometimes the sensations of pins & needles). It wasn't all the time, and not always severe. But I did go to the ER because it did hurt bad enough at one point. Chest xrays, EKG's, all showed nothing abnormal. I was told by a doctor in the ER that at some point, it might be a good idea to get a cardiac echo, but that has yet to be done.

November of 2000, I woke up with severe pain in my left arm. For quite some time, I was unable to use this arm w/out pain. It was very weak- I couldn't lift anything, I could not raise my arm to wash my hair, etc. (I did not go to the doctor)

August of 2001, I was still experiencing chest pains, and this issue with my left arm. I was tested for carpal tunnel, didn't have it. More EKG's, chest xrays, but all normal. (About this time, I became pregnant with my first child, and did not start to see a doctor about any of my issues again til last year).

Aug '01-April '02- first pregnancy, circular rash on back of left thigh. Red, raised. Dry in center. Did not itch. Dr suspected ring worm, but I am sure I was not exposed to it. (Have had this show up in same spot years prior, then disappear suddenly). Other rashes/patches on chest and abdomen during pregnancy.

Post Sept '03- after second pregnancy, intense sciatic nerve pains down right buttock, thigh. Pains down sides of legs, when I sleep on opposite side. Frequent diarrhea (at least once a weak, very intense, with serious nausea).

Sept '04, big toe on right foot felt partially numb (has remained this way ever since). I also feel pins and needles sensation there. I did have an EMG/nerve conduction test, was told I have healthy nerves!

2006, intense leg cramps begin, mostly in left leg (sometimes in calf, mostly in outer thigh). Also, had pains in my breasts. Had a breast sonogram, as well as mammogram & follow-up, only showed small spot in one breast declared to be my normal "tissue".


Some of my other problems:
sometimes burning skin/pins & needles in various parts of body (upper back of thigh or on left shoulder blade), frequent headaches (especially in hot weather, or when exposed to sunlight), overactive bladder, stabbing pains in lower back. My knees creak.


I am seeing a Neurologist, and have had an MRI. Been tested for Celiac Disease, MS (which my mother has), Lupus, and probably a few other things. All tests are negative/normal. In fact, the dr doesn't even think I have Fibromyalgia (which several cousins have been diagnosed with). My son's Geneticist suggested I be tested for Fabry Disease, but I'm not sure if the Neuro is ready to go that route yet.

I'm currently taking meds for the pain. I'm also muscle relaxers for the muscle cramping in my leg- however, they're not working at all. :(

I am SO tired of this BS. I just want to cry!! I'm a 32 yr old female (mother of 2 kids under the age of 5), and I feel like I'm in the body of an elderly person!) Ok, well.. maybe I don't have it that bad. I just want to know what's wrong with me already!

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2 Replies:

  • Undx'd Lyme and coinfections come to mind. Sounds like you have been through the gamit with many of us. Try this site for more info and some possible help. lymenet.org Best wishes~~Dee
    Anonymous 42789 Replies Flag this Response
  • Thank you so much for your post.. my husband and I were just thinking over the last few days, about the chances I could have been infected with LD. Actually, back in '96, about the time my arm pain kicked in, I was living in northern California. I was in one of the few counties in that state with a moderate risk factor for LD, and I did go outdoors a lot- my dorm was in the Redwood forest. Even more scary, is that back in 1986, I was actually bit by a tick in York County, Pennsylvania (a high risk county, in that state). I'm trying to recall the timeline of events, because at some point around that period of time, I remember having a very swollen lymph node unde rmy left arm, for weeks- the arm where I have so many problems. And the side of my body (and side of my chest) where I have so many issues. It seems wild I could possibly have been suffering from this for 20 years, though? :eek:
    sylvie 31 Replies Flag this Response
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