Discussions By Condition: I cannot get a diagnosis.

Sudden onset Blindness

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: KariMac
  • April 9, 2009
  • 01:57 AM

It is easier to just tell the story, then get opinions. About ten years ago, my husband, who was about to turn 35, lost his sight. Just out of nowhere, his eyes just shut off. Naturally we made Dr's appointments to see if they could tell us what was going on. For almost a year we went back and forth to doctor after doctor, at least once a week, which included nuerologists and every type of specialist that would look at him. They did every single test that you could imagine, all types of blood work, and they even tested him for leber's. After a year, he decided that was enough, when it all started, he was also experiencing severe migrain headaches, and the lights being shown into his eyes made them much worse. In the end all they would tell us or could tell us is that it was optic neuropathy. That is such a general thing that we still don't really know why. His symptoms include: Migraines (which kept him bed bound for almost two years), loss of appetite (which has resulted to date in the loss of almost 70 lbs) weakness in left leg and arm which would alternate from weakness to numbness, Lack of energy, an all over body ache and being cold most of the time. Now over the years there have been other things come up, that I am not sure wether or not they have to do with his condition or not. His eyesight is at 20/1000 now, he has chest pains, and his blood pressure gets very low. He is very weak, and eats very little. I keep him on nutritional drinks, and vitamins, trying to keep him energized a little. But the situation is not getting any better. He is suffering from depression, but I attribute that to losing his sight. Had it been me, I would have been depressed also. There is not much that will help the headaches, he tends to stay in bed alot, and does not have much energy. He refuses to go to the doctor again, because they were of no help through that whole year, and it was very painful for him. If anyone has any clues about this condition please let me know. They did an MRI in that first year and said the only thing they could see was that he had a sinus infection. Another note is that when he was about 13, he went blind for about a year. His vision was gone for right about a year and then just turned back on. I have researched this till my eyeballs feel as though they will pop out, and the closest thing that I can come up with is Mulitple Sclerosis. Any other thoughts would be appreciated.

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