Discussions By Condition: I cannot get a diagnosis.

sudden dizziness, heavy limbs, slurred speech

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: amy_s774
  • September 23, 2009
  • 00:38 PM

Over the past several months I have experienced sudden onset of extreme dizziness, heavy limbs, can't hold/grip anything, and slurred speech. It usually only lasts about 5-10 mins and then stops as suddenly as it began.

Two weeks ago it happened, but was much worse. I was totally unresponsive, but could hear everything that everyone was saying. My husband says I was like a rag doll. I had no muscle control at all. After about 15-20 mins I could finally respond a little. I thought I was speaking clearly, but they said my speech was very slurred. I couldn't stand for about an hour and that was only with the help of my 2 teenage daughters. I tried to hold a cup to drink, but couldn't. It took about 2 hours before I was even close to "normal" again, but was very drained.


I am very concerned because I would have been driving when it happened if my son had been ready when he was supposed to. There are no triggers that I can identify that cause it. The last time it happened before this I was sitting on the bed folding laundry. My vital signs are always nml, blood glucose nml, insulin level nml. I had a CT scan at the ER, which was nml.

I am at my wits end. Please tell me any suggestions you may have.

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13 Replies:

  • My Husband and I are going through the same thing and Doctors think we are crazy. We finally found a doctor in New york that says we were exposed to black mold and low and behold we had air tested in our home and it showed we did indeed have it. Dr Eckardt Johanning MDhttp://www.fungalresearchgroup.com/new%20home.htmOver the past several months I have experienced sudden onset of extreme dizziness, heavy limbs, can't hold/grip anything, and slurred speech. It usually only lasts about 5-10 mins and then stops as suddenly as it began. Two weeks ago it happened, but was much worse. I was totally unresponsive, but could hear everything that everyone was saying. My husband says I was like a rag doll. I had no muscle control at all. After about 15-20 mins I could finally respond a little. I thought I was speaking clearly, but they said my speech was very slurred. I couldn't stand for about an hour and that was only with the help of my 2 teenage daughters. I tried to hold a cup to drink, but couldn't. It took about 2 hours before I was even close to "normal" again, but was very drained. I am very concerned because I would have been driving when it happened if my son had been ready when he was supposed to. There are no triggers that I can identify that cause it. The last time it happened before this I was sitting on the bed folding laundry. My vital signs are always nml, blood glucose nml, insulin level nml. I had a CT scan at the ER, which was nml. I am at my wits end. Please tell me any suggestions you may have.
    Chevy2413 12 Replies
    • September 23, 2009
    • 01:27 PM
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  • My Husband and I are going through the same thing and Doctors think we are crazy. We finally found a doctor in New york that says we were exposed to black mold and low and behold we had air tested in our home and it showed we did indeed have it. Dr Eckardt Johanning MD http://www.fungalresearchgroup.com/new%20home.htm That is very interesting because the building I work in has mold in the walls and under the floor. The strange part though is that it has only happened once at work. It usually happens at home. I probably need to have the house tested.
    amy_s774 3 Replies
    • September 24, 2009
    • 01:09 PM
    • 0
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  • It could be that you may have it at work and home. I've learned that if you were exposed to mold at very high levels your body becomes very sensitive to it even if there is a moderate amount.My husband and I have been sick for months before we found out what was making us so ill. The slurred speech happend to me and the extreme fatigue also. This happens because of mold toxins that my be in your body which leads you to get very sick. If you had mold at work did they clean it properly? I'll give you a few websites to look at which helped me so much. My husband and I go to a specialist in New york. We've been to so many ER's and doctors and all of our tests came out negative but we were so sick Doctor's did not know what to do with us.Doctor Johanning is part of a fungal research group and is in the process of treating us.Never thought that I would become so sick because of mold but it is an illness that unfortunatley is not recognized by many practitioner's. Here are some websites that I think you would be interested in.http://www.mold-help.org/http://www.sdmold.com/health_effects.htmlThat is very interesting because the building I work in has mold in the walls and under the floor. The strange part though is that it has only happened once at work. It usually happens at home. I probably need to have the house tested.
    Chevy2413 12 Replies
    • September 27, 2009
    • 04:47 PM
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  • Over the past several months I have experienced sudden onset of extreme dizziness, heavy limbs, can't hold/grip anything, and slurred speech. It usually only lasts about 5-10 mins and then stops as suddenly as it began. Two weeks ago it happened, but was much worse. I was totally unresponsive, but could hear everything that everyone was saying. My husband says I was like a rag doll. I had no muscle control at all. After about 15-20 mins I could finally respond a little. I thought I was speaking clearly, but they said my speech was very slurred. I couldn't stand for about an hour and that was only with the help of my 2 teenage daughters. I tried to hold a cup to drink, but couldn't. It took about 2 hours before I was even close to "normal" again, but was very drained. I am very concerned because I would have been driving when it happened if my son had been ready when he was supposed to. There are no triggers that I can identify that cause it. The last time it happened before this I was sitting on the bed folding laundry. My vital signs are always nml, blood glucose nml, insulin level nml. I had a CT scan at the ER, which was nml. I am at my wits end. Please tell me any suggestions you may have.Have you seen a neurologist?Had an mri and eeg?Its really important to have this done if you havn't already done so.What are your cholesterol levels like?Have you had this tested?You only mentioned vital signs, blood glucose, insulin level and CT.If these are all that you've had tested then these are just the most basic of tests and you really should see a neurologist asap for more thorough testing considering your symptoms
    Anonymous 42789 Replies
    • September 28, 2009
    • 10:13 PM
    • 0
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  • Do you have a history of stroke?
    kermworm 81 Replies
    • September 29, 2009
    • 01:23 AM
    • 0
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  • Have you seen a neurologist?Had an mri and eeg?Its really important to have this done if you havn't already done so.What are your cholesterol levels like?Have you had this tested?You only mentioned vital signs, blood glucose, insulin level and CT.If these are all that you've had tested then these are just the most basic of tests and you really should see a neurologist asap for more thorough testing considering your symptoms I did see a neurologist last week. He said he had no idea what it could be. I had a MRI on Sunday that showed a tiny spot bright spot in the right frontal lobe. I don't have the report with me and don't remember the exact wording, but it said it may be related to history of chronic headache. I have a headache every day that is moderate to severe and usually starts in the afternoon right after lunch. My cholesterol has been a little elevated, like 215, but nothing dramatic. He is referring me to a sleep Dr. to have sleep testing done.
    amy_s774 3 Replies
    • September 29, 2009
    • 02:13 PM
    • 0
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  • Over the past several months I have experienced sudden onset of extreme dizziness, heavy limbs, can't hold/grip anything, and slurred speech. It usually only lasts about 5-10 mins and then stops as suddenly as it began. Two weeks ago it happened, but was much worse. I was totally unresponsive, but could hear everything that everyone was saying. My husband says I was like a rag doll. I had no muscle control at all. After about 15-20 mins I could finally respond a little. I thought I was speaking clearly, but they said my speech was very slurred. I couldn't stand for about an hour and that was only with the help of my 2 teenage daughters. I tried to hold a cup to drink, but couldn't. It took about 2 hours before I was even close to "normal" again, but was very drained. I am very concerned because I would have been driving when it happened if my son had been ready when he was supposed to. There are no triggers that I can identify that cause it. The last time it happened before this I was sitting on the bed folding laundry. My vital signs are always nml, blood glucose nml, insulin level nml. I had a CT scan at the ER, which was nml. I am at my wits end. Please tell me any suggestions you may have.Did the neurologist suggest TIA or partial seizures?Do you use any artificial sweeteners?What do you eat for lunch?Why is he referring you for a sleep study?Does it happen in your sleep too?Are they doing a sleep eeg?
    Anonymous 42789 Replies
    • September 30, 2009
    • 01:58 AM
    • 0
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  • Did the neurologist suggest TIA or partial seizures? Do you use any artificial sweeteners?What do you eat for lunch?Why is he referring you for a sleep study?Does it happen in your sleep too?Are they doing a sleep eeg? I don't use artificial sweetners. I usually eat something like a baked potatoe from a bbq place close to here, chicken fingers, something like that. Hardly ever like a burger and fries. He said he wants sleep testing to check for narcalepsy (?spelling) which I don't believe I have since I don't have episodes where I fall asleep and the last episode I had is the 1st time I have been unresponsive.
    amy_s774 3 Replies
    • September 30, 2009
    • 00:17 PM
    • 0
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  • This sounds like what my Mom is going through to a "T". I read this and looked up to see if maybe she started a thread here to try and get some answers. She has just begun to go see a doc about it and does not have any answers yet. I just couldn't believe after all the research we've done so far to come across someone with the exact same thing. She too has had a CT scan and nothing showed up. She is following up with her doctor, as that was done at the ER. I would love to follow your story and if you want, follow ours and hope that we can get some answers. The only thing I have found so far in doing research that sounds some what like the symptoms is atonic seizures but it's not a perfect match. I hope we can get some answers soon!
    shilowe 1 Replies
    • October 10, 2009
    • 07:24 AM
    • 0
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  • Have you had the sleep study done yet?What did it say?Did the neurologist mention anything at all about the possibility of TIA's(mini strokes) as the symptoms are very similar?http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Stroke_signs_and_symptoms?openhttp://stroke.about.com/od/whatisatia/a/TIAs.htmWas any of your bloodwork abnormal at all?
    Anonymous 42789 Replies
    • October 10, 2009
    • 08:46 AM
    • 0
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  • Shilowe or Amy-did you ever find answers? My mother has been having the same/similar the past couple of years and keeps getting handed off to another doctor. She passes out, wakes up with slurred speech and contractors of her limbs. They are not strokes or seizures. She recently had an episode and I'm getting more concerned.
    ErinAshlie1 3 Replies Flag this Response
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  • My symptoms are as followed... Slurred speech, contact ice walking, can't hold things can't remember things, foggy ness, anger outbursts , extreme lethargy, muscles tensing, blurred vision, skin lesions, hair falling out, lines in fingernails, shaking, hypothyroid, to hyperthyroid, anaphylaxis asthma
    I had never been sick before this
    All documented.
    Had MRI X-ray EKG Blood work Psychological Psychiatric
    No one can tell me what is wrong
    My apartment had LETHAL LEVELS OF MOLD!
    Anonymous 1 Replies
    • August 28, 2014
    • 02:26 PM
    • 0
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  • That was contractions while walking
    Anonymous 1 Replies
    • August 28, 2014
    • 02:38 PM
    • 0
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