Discussions By Condition: I cannot get a diagnosis.

struggling through life

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • November 15, 2006
  • 01:24 AM

I HAVE FLU-LIKE SYMPTOMS THAT COME AND GO DAILY.. I CAN FELL Y BODY STARTING TO GET SICK.. I HAVE BEEN TO SO MANY DOCTORS, ALL MY BLOOD TEST COME OUT NEGATIVE... I HAVE BEEN TOLD ITS CFS, I DONT BELIEVE THAT... MY SYMPTOMS ARE SO BAD ESPECIALLY AFTER I MENSTRATE. ONE DAY IM GREAT , THE NEXT DAY I FEEL LIKE MY ENTIRE BODY HURTS, MY GLANDS ARE SWOLLEN. MY HEAD HURTS, MY MIND IS FOGGY.. I WAS TESTED FOR ALL IMMUNE DISORDERS, THYROID. EVERYTHING,,, I HAVE 3 KIDS AND I WORRY SO MUCH ABOUT WHAT MY LIFE IS GOING TO BE LIKE IF I DONT FIND WHAT THIS IS... FINDING ANSWERS,, ALLYSON

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  • All the same here, down to the three kids. I am trying to do an elimination diet. I think some of my symptoms are coming from what I eat. It seems to be sugar and wheat. I start to have fevers about 1/2 after eating. I also used to drink a lot of diet pop a day and recently quit. I feel like I am going to die soon. I have a serious infection that I think kicked off some unfindable autoimmune disorder that is making me highly allergic to things. Some of this may have something to do with candida too. At this point I will try anything.
    Angst2Amity 12 Replies
    • November 16, 2006
    • 06:30 PM
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  • If neither of you have done so already:--visit greatplainslaboratory.com (or a similar website) and order some allergy tests--blood tests. Undiagnosed food allergies can cause SO many symptoms. We found out our 4 year-old was allergic to 55 foods and they caused symptoms such as: seizures, rashes, vomiting, behavioral problems--depression/manic disorder, gastro problems, urinary problems....ect... It was a lifesaver for our family (literally). We have also done celiac testing, which came back borderline. This is another often undiagnosed problem.Metals testing is another one we did and passed thankfully.We are looking into some other things. Just research your symptoms and start weeding through diseases and test for the ones you think are close in match. that is what has gotten us to where we are now.--visit a kinesiologist. REad up on them, they specialize in imbalances in your body. Even if you only go for a consult, they may give you a clue into what might be going on. I skeptically saw one and he dx. me with 2 things that I had been dx. for already by MDs. (and I didn't tell him any symptoms or anything).
    Anonymous 42789 Replies
    • November 16, 2006
    • 07:02 PM
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  • when looking into allergies look into IgE and IgG. IgG are often the allergies that cause chronic illnesses. Many allergists will overlook this test also.
    Anonymous 42789 Replies
    • November 16, 2006
    • 07:04 PM
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  • I had my IgG anti-bodies tested, like the levels - are there other tests like for certain irritants?
    Angst2Amity 12 Replies
    • November 16, 2006
    • 07:16 PM
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  • try going into garden of life. Products with Jordan Rubin. He had over come may of his sickness with natural herbs. He is a Christina speaker known world wide. Look into his web site and maybe call his office. You can get his "Garden of Life" vitimins at most health food store. It has helped me in my stomach problems and much more.
    Anonymous 42789 Replies
    • November 16, 2006
    • 07:30 PM
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  • .....It seems to be sugar and wheat. I start to have fevers about 1/2 after eating. I..... If this means 1 - 2 hours after eating, it sounds like it might be reactive hypoglycemia. Check it out anyway.
    Anonymous 42789 Replies
    • November 16, 2006
    • 07:37 PM
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  • "I HAVE FLU-LIKE SYMPTOMS THAT COME AND GO DAILY.. I CAN FELL Y BODY STARTING TO GET SICK.. I HAVE BEEN TO SO MANY DOCTORS, ALL MY BLOOD TEST COME OUT NEGATIVE" just on reading that my thoughts (even before you mentioned CFS) were.. i think you must have CFS. I know you dont want to hear that thou but if you do have CFS the sooner you accept the diagnoses the better it will be for you. i myself have had CFS for 10 yrs now .. the key to helping myself was accepting i had this.. and then learning "pacing" (not doing too much and not pushing myself over my limits). Many actually make the CFS worst by not accepting it and not trying to limit some what they are doing. The illness (if you have CFS) worsing on doing more and pushing yourself is a clear give away to CFS. CFS can vary at certain times of the month too..
    taniaaust1 2267 Replies
    • November 18, 2006
    • 11:17 AM
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  • We have also done celiac testing, which came back borderline. This is another often undiagnosed problem.Whoa, listen. There's no such thing as borderline. Considering in America, only 1 in 40 people are diagnosed compared to the rates of other nations, there's just a flat out problem with how the doctors consider and test for this condition. In other countries, they diagnose it on a scale of 1 - 4, where 1 is no visible symptoms yet minor internal damage is being done, and 4 is irreperable life-long digestive malfunction. Since the allergy can develop at any point in life because of stress or unrelated illness, you could be 3, 30, or even 60 years old and be considered a 1, but if you don't treat and the doctors would actually test again in following years, you'll be a 4 before too long.The #1 test for Celiac in America is a judgment on the amount of damage already done to the intestine's ability to absorb nutrients. Basically, they don't want to diagnose until you're almost dead from starvation. If the blood allergy serum even HINTS at it, you gotta get the wheat/rye/barley out of there. Its a killer, no joke.
    Azaral 152 Replies
    • November 18, 2006
    • 02:26 PM
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