Discussions By Condition: I cannot get a diagnosis.

stretch marks from sitting, please read!

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: niceguy
  • August 16, 2008
  • 04:31 AM

I and my identical twin brother have an unidentifeid skin disorder. After the age of 16, we are extremely prone to stretch marks. Before 16, we lifted weights and did not get stretch marks. From 16 on, lifting weights, slight weight gain, and bam a stretch mark. Recently it has gotten much worse. I have noticed (28 male, normal weight, normal tension) I have stretch marks on my dorsal, superior thighs just from sitting! It hurts to sit for medium periods of time because of my skin. Also all of my skin looks extremely old for my age. I have wrinkles on my wrist, neck, knees, and mid arm. I even have two wrinkles along my stomach. I also have rosacea which I think has been caused by skin weakness. I have been to a geneticist and she said I have something that has not been identified and did not offer any diagnostic testing. I also have folliculitis, blackheads all over my nose, and backacne all of which I don't know if its related. It's freaken hard to deal with all this. I never had these things when I was younger. It has all gotten extremely worse in the past two months and there's nothing I can about it. Piece of **** dermatologist claims I am "normal". I have gotten on antiboitics for the folliculitis (which I have had for months!!!) and tretonion for the backacne. I was wondering if anyone could help figure out what is wrong with my skin (sensitivity to stretch marks). Anyone know of a company that does skin fibroblast diagnostic testing? Advice? I have a ton of blood/hormone/saliva tests and so far I have only noticed that I have high dhea (normal dhea-s)(normal testosterone). Apparently there is no disease of high dhea and normal cortisol in men. Maybe I am wrong?

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10 Replies:

  • Please keep testing and retesting your cortisol levels. AM/PM blood as well as 24hr urine and salivia. Elevated cortisol levels can be very hard to catch. If you visit www.cushing-help.com they have a forum and you will find many many with the same problem. My step-dad had the problems you are having and some more... It took almost 8 years for the doctors to catch his elevated cortisol levels. Cortisol is more then likely the cause of your strechmarks and weakness. It also causes the acne and backne you are experincing You should also demand to have an MRI with contrast of your adrenal glands. AND you should also have your sibling have these same tests. The elevated DHEA is a sign that there is something going on there and you only need to catch the elevated cortisol for a diagnose. For more info you might want to read more and even get in touch with www.goodhormonehealth.com . If you are outside the US there is a list of doctors on the cushing site. Hope you find some help... Kiera
    Anonymous 42789 Replies
    • August 16, 2008
    • 00:32 PM
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  • The problem is that I am not overweight and I don't have hypertension and I have don't have hump back. Can you have Cushing's disease without these symptoms? Can Cushing's make your skin look aged? Can you please tell me your uncle exact symptoms? Was he treated? If so, how was he treated? Did his cortisol levels just spike every now and then?
    niceguy 22 Replies
    • August 16, 2008
    • 01:52 PM
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  • Can you provide a link where someone says they got stretch marks from sitting on www.cushings-help.com. I have looked over the site before and I don't remember reading that anyone had symptoms like mine.
    niceguy 22 Replies
    • August 16, 2008
    • 01:55 PM
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  • As kids, you guys probably over-did the weight training:http://www.medicinenet.com/script/main/art.asp?articlekey=78937http://www.mm2k.com/bodybuilding-stretch-marks.htmlhttp://www.trulyhuge.com/news/tips63iy.htm You could run your symptoms by a homeopathic doctor. You might need a chiropractor after you rule out any glandular problem. Try colloidial silver spray on your face.
    Monsterlove 2921 Replies
    • August 16, 2008
    • 08:19 PM
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  • You don't have to have all the symptoms to have cushings. There is at least one girl there that is covered with strechmarks and has hardly any other symptoms. You are definitly not getting those marks from sitting! Your dhea is elevated. DHEA is produced by the adrenal glands. You do not overproduce DHEA if nothing is going on with one of them. If I were you I would at least join the boards and post some questions. There are many different cases and it is more then likely that someone will be able to guide you in the right direction. Kiera
    Anonymous 42789 Replies
    • August 16, 2008
    • 11:13 PM
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  • You wouldn't have a second to find the posting or contact information of that girl you mentioned? You could find it much faster than me probably, but I will try looking for myself in the meantime. Can you tell more about her? What symptoms did she have? Did she actually get diagnosed? Did she get treatment? I had my salvia hormones check twice. Normal cortisol morning, normal afternoon, normal midnight. I had one really high score in the evening (the next time it was measured it was normal). I figure it was blood in the saliva or a lab error. I have had my blood pressure measured multiple times and it is 120/80 which is apparently very good. I guess I will try a UFC test next, but I might just have normal cortisol levels but be hypersensitive to cortisol. There is a protein call 11B-hsd which converts cortisone to cortisol in tissues and its possible that I just have higher amounts of that protein in my skin. What do you think of that possibility? Have you heard if Growth hormone shots improve cushing's patient's skins?
    niceguy 22 Replies
    • August 17, 2008
    • 02:12 AM
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  • Hi, I wish I could answer all your questions, but I can't. Even tho I do know ALOT about cushings, since I have been an active member at the cushing-help boards and I have read all there is to read on the subject. I can tell you that cushings comes in all shapes and sizes and some have ALL the symptoms while others only have some. Some have sleeping problems as the main complaint while others will have strechmarks. Cortisol is extremely hard to measure and since it cycles and the diurnal rythm gets messed up. As I mentioned before it took years for my step-dad to catch his highs, and the same thing happened to everyone I have ever talked to that has had cushings. The girl I mentioned is called persephone at the boards. She has strechmarks as her worst symptom. They are all over her body. If I remember correctly she is diagnosed, but I logged in today and I see that she is still active there. You say you have one high evening cortisol, so that should be more then enough to make you keep testing (and it also shows that your diural rythm is off, since yoru cortisol levels should be at there lowest in the pm). There are people that never have one high, but they have symptoms that keep them testing and testing. They start charting symptoms and after years they catch those highs. As I said, there are many knowledgeable people at those boards who will help you with the questions like the 11B-hsd one. They have educated themselves for years and know more about the endocrine system then many doctors do. Join the board... you have nothing to lose. Kiera
    Anonymous 42789 Replies
    • August 17, 2008
    • 07:43 AM
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  • Maybe Ehler-Danlos syndrome?
    Felsen 510 Replies
    • August 17, 2008
    • 11:14 PM
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  • A geneticist "checked" for Ehler's danlos and I don't have stretchy skin or hypermobile joints or weak bones or weak tendons. So its not that. I had normal skin at 15. It just seems to have thinned/weakened/aged prematurely.
    niceguy 22 Replies
    • August 18, 2008
    • 01:46 AM
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  • Two things come to mind, this one mentions the tissue papery skin. Acrodermatitis chronica atrophicans (ACA)represents the persistent late stage of borreliosis in which Borrelia species may survive for decades.The second for the stretch marks, Bartonella.A few other areas to look into. Hope this helps~~JerseyLymie
    Anonymous 42789 Replies
    • August 19, 2008
    • 11:21 AM
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